Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,326 members•1,186 posts

All posts for March 2019

The Master Membership List

I have noticed that we have had several new members join our forum in recent months, which is of course wonderful! Some of these members have written detailed...

I have noticed that we have had several new members join our forum in recent mon...

•6 years ago

Crispr CAS-9

Apart from Modafinil and 4-Aminpyridine, I regularly post about Crispr CAS-9. It is coming, folks. Like it or not. Never mind the designer babies,...

Apart from Modafinil and 4-Aminpyridine, I regularly post about Crispr CAS-9. It...

•6 years ago

(Nordic) Trekking Poles

https://www.youtube.com/watch?v=umjdLSoIY3Y Learning how to use POLES can help people achieve, maintain, even regain mobility.. People with Parkinson's, MS,...

https://www.youtube.com/watch?v=umjdLSoIY3Y Learning how to use POLES can help p...

•6 years ago

Want to take advantage of all our features? Just log in!

or

AMN carriers and more

I thought AMN was genetic I have 4 brothers and 2 sisters we were all tested and I am only female who is a carrier my mum was tested and she did not have it my...

I thought AMN was genetic I have 4 brothers and 2 sisters we were all tested and...

•6 years ago

Lessthanrich thank you...

OK, he is stubborn, OK, he writes with a bitter tongue, he is a man who fears for his health. He is very very intelligent since his childhood and his vision of...

OK, he is stubborn, OK, he writes with a bitter tongue, he is a man who fears fo...

•6 years ago

Are carrier symptoms just "mild"

Hi everyone! I've just joined the group today. I'm a 20 year old ALD carrier. My family found out I was a carrier after my dad was diagnosed with cALD in 2001....

Hi everyone! I've just joined the group today. I'm a 20 year old ALD carrier. My...

•6 years ago

Rich is still sending private messages.

Is there a way to remove Rich from sending private messages? I have a physical therapy appointment today and his message(s) are affecting my mindset. They are...

Is there a way to remove Rich from sending private messages? I have a physical t...

•6 years ago

Independence.

I have been posting here for about a month. I read a lot of the website before I began. It inspired me to address serious issues I feel have been left out or...

I have been posting here for about a month. I read a lot of the website before I...

•6 years ago

Medication.

It has been brought to my attention that I am not an authority on "medication". I am willing to agree with this, as I don;t take any pills other than Toviaz...

It has been brought to my attention that I am not an authority on "medication". ...

•6 years ago

Be the first to reply

Penises.

I have been saving this post, but I have been prompted to approach this subject. And its a delicate one.. Its just one for the guys. ED, erectile dysfunction...

I have been saving this post, but I have been prompted to approach this subject....

•6 years ago

An artificial brain

Scientists grow 'mini-brain on the move' that can contract muscle Now this is very interesting. Scientists grow 'mini-brain on the move' that can contract...

Scientists grow 'mini-brain on the move' that can contract muscle Now this is ve...

•6 years ago

Be the first to reply

Feedback.

I have received quite a bit of negative feedback over my posts. I'm not sure how, I am talking about myself and suggesting things that might help you, based on...

I have received quite a bit of negative feedback over my posts. I'm not sure how...

•6 years ago

Question for the ladies

At what age did you start noticing symptoms? Asking for my daughter who is 17. She is going to her first neurologist appointment today at the request of my...

At what age did you start noticing symptoms? Asking for my daughter who is 17. S...

•6 years ago

Appreciation.

This is a very new sensation for me, but I have a greater appreciation of EVERYTHING. Especially the little things. Whilst drinking a coffee, door wide open, I...

This is a very new sensation for me, but I have a greater appreciation of EVERYT...

•6 years ago

Venting.

I need to thank one and all who have contributed to my posts. Over the last month I have expressed a lot of opinions, got a lot off my chest and hopefully...

I need to thank one and all who have contributed to my posts. Over the last mont...

•6 years ago

Be the first to reply

Ashamed.

Before my diagnosis I was ashamed of my handicaps. My body was literally falling apart with no explanation. I progressively became more of a cripple over 7...

Before my diagnosis I was ashamed of my handicaps. My body was literally falling...

•6 years ago

Be the first to reply

Potential.

For 9 years I suffered without diagnosis. Trying to do life, falling down literally, inevitably hurting myself bad eventually. Since receiving a diagnosis a...

For 9 years I suffered without diagnosis. Trying to do life, falling down litera...

•6 years ago

Be the first to reply

Min-102 (I am not on the trial, but how are you doing if you are?)

Folks, I know it is early days, but are any of you on the Min-102 trial showing any progress at all? Not, of the sort of - "Well, maybe XXX, sometimes, I can...

Folks, I know it is early days, but are any of you on the Min-102 trial showing ...

•6 years ago

Disregard this if you are early stage AMN.

AMN is a terrible progressive affliction with no cure or even treatment. I think its great if you still can walk a bit and don;t fall over on the whole, but...

AMN is a terrible progressive affliction with no cure or even treatment. I think...

•6 years ago

Acceptance.

This will be my last post on this as if you haven't understood my point by now, there is no chance. Accepting AMN and that you are now handicapped is a...

This will be my last post on this as if you haven't understood my point by now, ...

•6 years ago

Min-102 - The Story Continues...

(My ill attempt of a tag for a movie thriller sequel.) So, it's exactly 4 mos. in the trial and I get a call from my home nurse regarding my upcoming visit to...

(My ill attempt of a tag for a movie thriller sequel.) So, it's exactly 4 mos. i...

•6 years ago

First fall

I guess this is the beginning, just got up from my first fall. (Nothing broken, maybe a bruise later) And I was right telling my physical therapist that I was...

I guess this is the beginning, just got up from my first fall. (Nothing broken, ...

•6 years ago

Posting guidelines

Some recent discussion on this forum has prompted me to reflect on the way that AMN Easier should be administered. Long-standing members will know that I was...

Some recent discussion on this forum has prompted me to reflect on the way that ...

Administrator•6 years ago

Stiffness in legs

I am a female carrier of AMN. I am 42 years old and I exercise 5 days a week. Lately, I have been noticing a little more stiffness in my legs after working...

I am a female carrier of AMN. I am 42 years old and I exercise 5 days a week. La...

•6 years ago

AMN Canadians.

Are there any Members in Canada? Thanks

Are there any Members in Canada? Thanks

•6 years ago

Trulife Matrix

While I was in Boston in late 2018 seeing Dr.Reza (Neuromuscular, very cool guy!) he had a guy there who specialized in orthotics in the area and let me try on...

While I was in Boston in late 2018 seeing Dr.Reza (Neuromuscular, very cool guy!...

•6 years ago

Brain Fog.

Whilst I have mainly addressed physical symptoms so far in my posts, I feel we should also talk about the dreaded BRAIN FOG. As the name suggests its a pretty...

Whilst I have mainly addressed physical symptoms so far in my posts, I feel we s...

•6 years ago

Be the first to reply

Suffering

There are certain aspects to AMN where you suffer. I need crutches to walk, otherwise I can;t move. I can't go far even if I can move. I can only walk on solid...

There are certain aspects to AMN where you suffer. I need crutches to walk, othe...

•6 years ago

Severity.

When I have been writing to you, I have been considering everyone suffers like me. Then it got me thinking, maybe people don;t suffer as badly as me, so what I...

When I have been writing to you, I have been considering everyone suffers like m...

•6 years ago

Speculation.

All this week I have been promoting wheelchairs for AMN users. And despite people telling me you guys aren;t against wheelchairs, I definitely feel the stigma....

All this week I have been promoting wheelchairs for AMN users. And despite peopl...

•6 years ago

Search posts

Pinned Posts

At my wits end(sex and anorgasmia related post)

Hello, everyone, I want to consult, amn patients sexual dysf...

Endocrinology information

Latest poll

Women-only: at what age did your symptoms first become noticeable?

Topics

All things AMN EASIER(10)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2025

Apr

May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2024

Jan Feb Mar Apr

May

Jul

Aug Sep Oct Nov Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug

Sep

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov

Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct

Nov

2012

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Jan Feb Mar Apr May Jun Jul

Aug

Oct

Nov

2010

Jan

Feb

Mar

Apr

May

Jun

Jul

Aug Sep Oct Nov Dec