Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,312 members • 1,164 posts

All posts for August 2019

Hello, everyone,

https://adrenoleukodystrophynews.com/2019/06/11/combo-of-antioxidants-a-potential-therapy-for-adrenomyeloneuropathy-trial-suggests/ Hello, everyone, today we...

https://adrenoleukodystrophynews.com/2019/06/11/combo-of-antioxidants-a-potentia...

•5 years ago

MIN-102 clinical trial, is it worth?

Hi , Any updates on MIN-102? I am really excited about this molecule because the first time there is a possibility of a drug that can help to overcome AMN....

Hi , Any updates on MIN-102? I am really excited about this molecule because the...

justcarryondude

•5 years ago

Good news for us, bad news for sheep.

The Roslin scientists used the gene-editing technique Crispr-Cas9 to create the faulty CLN1 gene in the sheeptant sheep are being bred in lab to fight lethal...

The Roslin scientists used the gene-editing technique Crispr-Cas9 to create the...

•5 years ago

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where to begin?

never reached out before...after reading previous posts,dont know if my complaints are insignificant or if I have too many to list...I'm 66 yrs and so far I...

never reached out before...after reading previous posts,dont know if my complain...

•5 years ago

What a weekend

I was playing with my friend's children on Thursday. I remember the first five minutes, next thing I know, I am strapped to a hospital bed at 3am. Imagine...

I was playing with my friend's children on Thursday. I remember the first five ...

•5 years ago

CBD and SCI

In this month's New Mobility is an informative article on CBD and spinal cord injuries which will be most helpful for those who are considering its use. It has...

In this month's New Mobility is an informative article on CBD and spinal cord in...

•5 years ago

Spasticity, incontinence, constipation, and that.

I went for a week without a bowel movement. Plenty of bran, stayed hydrated, etc, but no joy, so I took some laxatives. Ahhh. But then days went by, close to...

I went for a week without a bowel movement. Plenty of bran, stayed hydrated, et...

•5 years ago

Netflix show about mysterious diseases, or something like that.

https://www.netflix.com/jp-en/title/80201543 Dr. Lisa Sanders crowdsources diagnoses for rare and mysterious medical conditions in a documentary series based...

https://www.netflix.com/jp-en/title/80201543 Dr. Lisa Sanders crowdsources diagn...

•5 years ago

Feel that Burn!

A new elevated feeling for me, especially while sleeping. I used to be woken up with leg cramps, which when I started the MIN-102 trial that seemed to go...

A new elevated feeling for me, especially while sleeping. I used to be woken up...

•5 years ago

Disability

Just got my disability denial letter. Lawyer time, hopefully will work for small percentage and nothing down. No check since last September but my wife’s small...

Just got my disability denial letter. Lawyer time, hopefully will work for small...

•5 years ago

Doctors altered a person's genes with CRISPR for the first time in the U.S. Here's what could be next

Did I post this already. Here it is again if so. A woman with sickle cell anemia had her genes edited to make normal functioning red blood cells....

Did I post this already. Here it is again if so. A woman with sickle cell anem...

•5 years ago

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Misdiagnosis

Good morning!! So I recently had a visit with my neurologist and he told me that a specialist from Kennedy Krieger visited UVA for a teaching session on...

Good morning!! So I recently had a visit with my neurologist and he told me that...

•5 years ago

vk0214

https://adrenoleukodystrophynews.com/2019/08/06/first-clinical-trial-of-vk0214-for-x-linked-ald-planned-for-2020/ Vk0214 I started clinical trials early next...

https://adrenoleukodystrophynews.com/2019/08/06/first-clinical-trial-of-vk0214-f...

•5 years ago

First human-monkey chimera raises concern among scientists

First human-monkey chimera raises concern among scientists...

First human-monkey chimera raises concern among scientists...

•5 years ago

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Survey-based Natural History Study for Men and Women with AMN

I received the following email from ULF inviting to participate in a survey-based natural history study for men and women with AMN. Please share and...

I received the following email from ULF inviting to participate in a survey-base...

•5 years ago

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At my wits end(sex and anorgasmia related post)

Hello, everyone, I want to consult, amn patients sexual dysf...

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