AMN Easier was set up to help men and women who have adrenomyeloneuropathy (AMN) - to help make this disease a bit easier to live with.
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I was wondering if any female carriers on this forum had any type of in vitro fertilization in order to have healthy babies? My sister, who...
I just attended the annual ELA meeting in Paris.
The General Assembly was somewhat stormy as ELA announced that they are...
ALD CONNECT Biomarker Summit – March 6-7, 2015 – Boston
--- draft recap by Ben Lenail-- not an official transcript -- does not cover March...
Do you know anything about a new clinical trial called VSN16, which is being currently developed by Queen Mary's University Hospital? The...
From yesterday's Telegraph:
"A pioneering new stem cell treatment is allowing multiple sclerosis sufferers to walk, run and even dance...
my partner has amn he's 25. Been diagnosed 3 years.
he has a stretching routine every morning and night, he also uses his cross...
My Dad (65) was diagnosed with AMN a few years ago, when his brother died from it. We were not aware this gene mutation was in the...
Has anyone ever heard of the Dr. Terry Wahls? She claims to have reversed her MS symptoms with a slightly altered Paleo diet and physical...
Is anyone in the community located in Florida
I am trying to find help for my AMN I was diagnosed when I was 21 and now that Im 40 it has progressed much. I want to ask if anyone has...
I plan on seeing a genetic counsellor soon to determine my plan of action to have babies one day. I am a carrier of ALD, and...
Hi does anybody with ALD or anyone's son with ALD have a low iron count
Hello all. As many of you seem to be located in London, I was wondering if anybody would want to meet. I would love to meet others with AMN...
I saw my neurologist on Wednesday to discuss my recent mri scan, he confirmed no gadolinium showed up on the scan which was great news...
I'm seriously thinking about having this procedure, it sounds a bit uncomfortable but I think 20 mins discomfort for 6 to 9 months of...
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