AMN EASIER | HealthUnlocked

Summary: I started taking 4 mg saroglitazar before breakfast, I'm optimistic about its efficacy for AMN, and I'm still taking pioglitazone in the evening,...

https://www.theguardian.com/society/2025/jan/20/weight-loss-jabs-linked-to-reduced-risk-of-42-conditions-including-dementia Yes, I realise these...

Very interesting. At the bottom there’s a link to the table of foods to avoid and foods to eat. https://www.mdpi.com/2072-6643/16/19/3341

Hi guys. I really love my work, it does wonders for my mental health/purpose. I know alot of us blokes (and ladies) are the same. I am currently managing to...

Thinking about it, spasms were the first of the annoying as hell symptoms that I experienced. I had abnormal wear on my shoes, used to trip a lot, had sleep...

I don't have pain when I'm sitting or sleeping at night, but after I start walking, the pain continues to increase in intensity. I have to sit on a bench and...

Sulforaphane (SFN) is an antioxidant that is found in cruciferous vegetables like broccoli. I started paying attention to it about a week ago when I started...

Does anyone have any experience or knowledge about the benefits of citicoline supplementation on AMN?

Why: We know that leriglitazone/MIN-102 is effective at slowing the progression of AMN and greatly reducing the risk of cerebral involvement, but unless I'm...

A technology for treating ALD has appeared in our country; there are no analogues in the world. They take stem cells, make a vaccine and inject it into the...

I saw that they used the ethyl ester form in a few studies, but some of the doctors I talked to said something like, you can use EPA/DHA supplements in...

Has everyone here heard about the ALD drug PXL 770? It is undergoing phase II trials and will soon be available for...

Has anyone used prescription marijuana? There are many papers on its anti-inflammatrory properties and other benefits...

Hi guys, has anyone had sacral neuromodulation fitted? My urologist finally says I could try this but I'm now unsure due to having to have surgery to have this...

Have anyone tried taking Nervonic Acid? The following article showing benefits from NA...

Hello everyone!!! I think I have been dealing with peripheral neuropathic pain. There’s not a medicine yet that has helped with this pain. Anyone else...

I was wondering if anybody with ALD/AMN in the UK was using Dalfampridine (Ampyra) to help with walking? I believe that it was initially an MS drug but it is...

https://www.minoryx.com/media/leriglitazone_halts_disease_progression_in_adult_patients_with_early_cerebral_adrenoleukodystrophy_in_compassionate-use_study_publ

I really want to know how our illness affects our sense of smell? Neurodegenerative diseases such as Parkinson's and Alzheimer's are known to damage the sense...

I recall folks posting about skin issues and AMN a few years back, or did they? Never mind try this for size. Been going on for months and months now, When...

how is the community doing? Anything new and exciting or happy and sad?🤷‍♂️😊

Just starting to tick my hands are painful Just had a scan for arthritis she said to me do you have park decei. I don't think I have why. Am I...

Hello, Has anyone woth AMN here ever had a stem cell transplant as a result of a diagnoses involving cerebral involvement? Please tell all! Is it a viable...

Hi everyone, I got a letter a few days ago from NHNN London saying they're terminating the MIN-102 trial. This was expected as the trial didn't show any...

Anyone know how this study is going? I did a google search and there was something posted a few days ago but you had to buy the report. $500. I’m very...

ALD Connect and Alex TLC are hosting a community breakout call for phenotypes of ALD this Sunday 2/25 @ 3pm GMT/10am EST. Here in the states I help...

Will all the women with ALD have arthritis?? Any relation between both??

Hello, I ask one more time the community about a problem I met yesterday and many times ago. Sometimes, I'm having trouble to watch, for example, the screen...

Will all AMN man will have Addison disease?how common it is?? Twitches in full body can be the initial symptom??

Pregnancy seizures can be the symptom of ALD for women??