AMN EASIER

AMN EASIER

AMN EASIER

AMN Easier was set up to help men and women who have adrenomyeloneuropathy (AMN) - to help make this disease a bit easier to live with. AMN EASIER...Read more

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  • Hi this is about my son who's 27 , diagnosed with ALD/ Addison's age 10, more or less fit & healthy, he having problems with bladder urgency...

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    I'm finding that as soon as I sit food an evening my legs start going into spasm ... Toes point to ceiling & tightens right up the back of...

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    This isn't exactly new, but this is an interview with Christopher Reeve's doctor. Interesting for me is what he says about myelin, Baclofen...

    By 10 Replies
  • http://www.theguardian.com/science/2015/aug/04/can-we-reverse-ageing-process-young-blood-older-people This could have implications for...

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    Hello folks, Does anyone here use Tizanidine for their spasticity/spasms? It made me feel as sick as a dog two years back, I gave up on it...

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  • So Nutra Pharma is in the final stage of the R&D pipeline for the drug RPI-78m. It is suppose to treat numerous diseases including AMN. The...

    By 7 Replies
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    We need everyone to help us get the 100,000 signatures in support of ALD newborn screening to present to the Secretaries Advisory Committee...

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  • Does anyone have a good Doctor or Consultant near Coventry in England who is knowledgeable about ALD

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  • I was diagnosed with AMN after my left kidney was removed when I was repairing HVAC. I was part of the Lorenzo's Oil study for about four...

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  • Hello. My husband was diagnosed with AMN 10 years ago when he was 30. He was in the Lorenzo's Oil study at Kennedy Krieger until it was...

    By 4 Replies
  • Received the results of my tests today : MRI, two small lesions on my occipital lobe. Auditory Brain Stem Response, longer than usual...

    By 5 Replies
  • I have a lot of time for 4-aminopyridine, and despite a lot (most) of my posts being about drugs, I really am not a drug person. I've been...

    By 12 Replies
  • For those of you who don't already know, ALD Connect, a non-profit consortium of doctors, pharmaceutical industry, and ALD patients and...

  • Hello My husband is 33. He was diagnosed with Addison's disease when he was 18. We have been married for 13 years and have two boys that...

  • Hello folks. Does anyone here actually take Lorenzo's Oil? My neurologist (who only prescribes an extremely limited set of drugs) says the...

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