Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,324 members•1,183 posts

All posts for September 2017

CRISPR news

CRISPR keeps progressing, this time in China. 'Chemical surgery' used to mend harmful mutations in human embryos...

CRISPR keeps progressing, this time in China. 'Chemical surgery' used to mend h...

•7 years ago

Lyrica changed to a generic pregablin.

Has anyone else been changed from Lyrica to a generic pregablin medication. I was changed to Lecaent and I have had a teribble week with not being able to...

Has anyone else been changed from Lyrica to a generic pregablin medication. I wa...

•7 years ago

Electrical brain stimulation

https://www.theguardian.com/science/2017/sep/25/nerve-implant-restores-consciousness-to-man-in-vegetative-state Have a read of this, folks. Here is a...

https://www.theguardian.com/science/2017/sep/25/nerve-implant-restores-conscious...

•7 years ago

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Child/Adult ALD

Don't know if this is a silly question or not but my son was diagnosed with ALD when he was 10.... He's now 27 so does he now have adult ALD or is that only if...

Don't know if this is a silly question or not but my son was diagnosed with ALD ...

•7 years ago

CRISPR Gene Editing

https://www.theguardian.com/science/2017/sep/20/dna-editing-in-human-embryos-reveals-role-of-fertility-master-gene CRISPR research is powering ahead. Here,...

https://www.theguardian.com/science/2017/sep/20/dna-editing-in-human-embryos-rev...

•7 years ago

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2017 ALD Connect Annual Meeting & Patient Learning Academy

The only conference dedicated solely to ALD is going to be held in Bethesda, MD on Nov 17-18, 2017. This is a great opportunity to meet others affected by...

The only conference dedicated solely to ALD is going to be held in Bethesda, MD ...

•7 years ago

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33 with AMN - Introduction

*No, I'm no Britney! Haha I stumbled upon this great community tonight and just wanted to introduce myself. My name is Ken and I am 33 from central...

*No, I'm no Britney! Haha I stumbled upon this great community tonight and just...

•7 years ago

Female Amn

Does anyone suffer with cramps in whole of legs especially at night keeping me awake

Does anyone suffer with cramps in whole of legs especially at night keeping me a...

•7 years ago

Looking for support from others dealing with ALD/AMN

My brother and my mother both began having problems (mostly with walking) around 15 years ago. They were diagnosed with Hereditary Spastic Paraparesis. My...

My brother and my mother both began having problems (mostly with walking) around...

•7 years ago

Neuropathy or AMN?

I always thought my father had MS. We now know he must've had AMN. He died 40 years ago. My sister walks just like he did and my nephew is exhibitiing the...

I always thought my father had MS. We now know he must've had AMN. He died 40 ...

•7 years ago

Piracetam, 4-AP, spasticity, myelin, constipation.

I have mentioned Piracetam several times before. I first tried it just for the hell of it. I’d taken it way, way back when I was in University as a...

I have mentioned Piracetam several times before. I first tried it just for the ...

•7 years ago

Lenti-D investigational gene therapy in boys under 18 years old results.

About the Starbeam (ALD-102) Study The Starbeam Study is assessing the efficacy and safety of an investigational gene therapy in boys up to 17 years of age...

About the Starbeam (ALD-102) Study The Starbeam Study is assessing the efficacy ...

•7 years ago

Electricity, the mother of all medicines

Could electrical implants replace pills for some illnesses?...

Could electrical implants replace pills for some illnesses?...

•7 years ago

New Here. Elevated VLCFA, Possible AMN. California Surfer:)

Hi Everyone! I'm new here. My name is Sam and I'm a 27 year old surfer from Southern California. Anyways, my (possible) AMN story starts about 8 years ago,...

Hi Everyone! I'm new here. My name is Sam and I'm a 27 year old surfer from Sout...

•7 years ago

I have had 4 Adrenal Crisis' this year

Is this a record? Until the 3rd episode in early July I didn't actually realise what was happening. I have always been wiped out with a 'flu / bug' for a...

Is this a record? Until the 3rd episode in early July I didn't actually realise...

•7 years ago