Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,312 members • 1,165 posts

All posts for April 2022

Cerebral version

Hello, Thank you to everyone who has answered my questions. I am sorry to say, I am still confused. If your AMN changes into the cerebral version, does your...

Hello, Thank you to everyone who has answered my questions. I am sorry to say, I...

HenryW

•2 years ago

4 Replies

Sinemet

Hello everyone, Happy spring wishes. Just curious if anyone has been prescribed or is taking Sinemet?

Hello everyone, Happy spring wishes. Just curious if anyone has been prescribed...

Catherine62

•2 years ago

3 Replies

Do all AMN patients have some brain lesions?

Hello, I always thought that all adult AMN patients have some demyelination in the brain not just the people with the devastating cerebral version. Am I wrong?

Hello, I always thought that all adult AMN patients have some demyelination in t...

HenryW

•2 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Adult cerebral version

Hello, Does anyone know what percentage of adult patients with AMN eventually get the cerebral version?

Hello, Does anyone know what percentage of adult patients with AMN eventually g...

HenryW

•2 years ago

7 Replies

Alex TLC General Catch Up: Men with Symptoms

Hi All, We have a general catch up tomorrow, Wednesday 20th April, from 18:00-19:00 for men with mild symptoms of Leukodystrophy. This will be held on Zoom in...

Hi All, We have a general catch up tomorrow, Wednesday 20th April, from 18:00-19...

Hidden

•2 years ago

Be the first to reply

Bone marrow transplant

Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I am wheelchair bound, but can still stand. My symptoms have been stable for many...

Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I a...

HenryW

•2 years ago

4 Replies

Male Kegel Exercises

Kegel muscles support the pelvic floor and are also part of sexual activity. Yes, males have them too. I started 6 months ago. My urinary incontinence is...

Kegel muscles support the pelvic floor and are also part of sexual activity. Y...

mariagno

•2 years ago

4 Replies

Improvement of motor function in patients with AMN

Cruising about for AMN clinical trials, I found this from the 2012 European Leukodystrophies Association:...

Cruising about for AMN clinical trials, I found this from the 2012 European Leuk...

monkeybus

•2 years ago

3 Replies

Exercise Study of Function and Pathology for Women With X-linked Adrenoleukodystrophy

Has this been posted here before? Have it a second time if so. Read afresh if not. Objective: To evaluate abnormalities of the brain and spinal cord by...

Has this been posted here before? Have it a second time if so. Read afresh if ...

monkeybus

•2 years ago

2 Replies

Search posts

Pinned Posts

See all

At my wits end(sex and anorgasmia related post)

Hello, everyone, I want to consult, amn patients sexual dysf...

AMN and diet

Endocrinology information

Latest poll

See all polls

Women-only: at what age did your symptoms first become noticeable?

Vote

Topics

All posts(27)

VLCFA (12)

All things AMN EASIER(9)

Addison's(6)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - AMN EASIER | HealthUnlocked

AMN EASIER

All posts for April 2022

Cerebral version

Sinemet

Do all AMN patients have some brain lesions?

Adult cerebral version

Alex TLC General Catch Up: Men with Symptoms

Bone marrow transplant

Male Kegel Exercises

Improvement of motor function in patients with AMN

Exercise Study of Function and Pathology for Women With X-linked Adrenoleukodystrophy

Search posts

Pinned Posts

Latest poll

Women-only: at what age did your symptoms first become noticeable?

Topics

Archive