Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,324 members•1,183 posts

All posts for April 2022

Cerebral version

Hello, Thank you to everyone who has answered my questions. I am sorry to say, I am still confused. If your AMN changes into the cerebral version, does your...

Hello, Thank you to everyone who has answered my questions. I am sorry to say, I...

•3 years ago

Sinemet

Hello everyone, Happy spring wishes. Just curious if anyone has been prescribed or is taking Sinemet?

Hello everyone, Happy spring wishes. Just curious if anyone has been prescribed...

•3 years ago

Do all AMN patients have some brain lesions?

Hello, I always thought that all adult AMN patients have some demyelination in the brain not just the people with the devastating cerebral version. Am I wrong?

Hello, I always thought that all adult AMN patients have some demyelination in t...

•3 years ago

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Adult cerebral version

Hello, Does anyone know what percentage of adult patients with AMN eventually get the cerebral version?

Hello, Does anyone know what percentage of adult patients with AMN eventually g...

•3 years ago

Alex TLC General Catch Up: Men with Symptoms

Hi All, We have a general catch up tomorrow, Wednesday 20th April, from 18:00-19:00 for men with mild symptoms of Leukodystrophy. This will be held on Zoom in...

Hi All, We have a general catch up tomorrow, Wednesday 20th April, from 18:00-19...

•3 years ago

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Bone marrow transplant

Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I am wheelchair bound, but can still stand. My symptoms have been stable for many...

Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I a...

•3 years ago

Male Kegel Exercises

Kegel muscles support the pelvic floor and are also part of sexual activity. Yes, males have them too. I started 6 months ago. My urinary incontinence is...

Kegel muscles support the pelvic floor and are also part of sexual activity. Y...

•3 years ago

Improvement of motor function in patients with AMN

Cruising about for AMN clinical trials, I found this from the 2012 European Leukodystrophies Association:...

Cruising about for AMN clinical trials, I found this from the 2012 European Leuk...

•3 years ago

Exercise Study of Function and Pathology for Women With X-linked Adrenoleukodystrophy

Has this been posted here before? Have it a second time if so. Read afresh if not. Objective: To evaluate abnormalities of the brain and spinal cord by...

Has this been posted here before? Have it a second time if so. Read afresh if ...

•3 years ago