Posts - AMN EASIER | HealthUnlocked

AMN EASIER

1,312 members • 1,165 posts

All posts for January 2016

Baclofen - your experiences

Good afternoon, My neurologist recently recommended that I begin taking baclofen to help treat pain and stiffness in my legs. I generally do not like taking...

Good afternoon, My neurologist recently recommended that I begin taking baclofe...

Aaron98

•8 years ago

14 Replies

Antioxidants Halt Axonal Degeneration in a Mouse Model of X-Adrenoleukodystrophy

This was dated 2011, but it is news to me Out of desperation more than anything else I ordered some bulk antioxidant powders last year. NAC, Vitamin C, a...

This was dated 2011, but it is news to me Out of desperation more than anything...

monkeybus

•8 years ago

2 Replies

Doctors, diagnoses.

At my insistence, my brother had his VLCFA levels checked. His doctor told him he has a "mild form of AMN". He's not the slightest bit concerned. After...

At my insistence, my brother had his VLCFA levels checked. His doctor told hi...

monkeybus

•8 years ago

7 Replies

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My introduction - AMN

This is my first post on this forum. I am a 30-year-old male from the Pacific Northwest who was diagnosed with AMN in the summer of 2015. I had been...

This is my first post on this forum. I am a 30-year-old male from the Pacific N...

Aaron98

•8 years ago

14 Replies

ALD & AMN Patient Learning Academy

Registration is now open for ALD Connect's Patient Learning Academy on Saturday, February 20, 2016 in Austin, Texas! Come listen to Drs. Florian Eichler and...

Registration is now open for ALD Connect's Patient Learning Academy on Saturday,...

bsc78

•8 years ago

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Spasticity woes.

So many times, I feel I've got the old spasticity cracked. I've been through umpteen medicines, and I know by now not to be so complacent. The spasticity...

So many times, I feel I've got the old spasticity cracked. I've been through ...

monkeybus

•8 years ago

10 Replies

I need to locate a doctor who doesn't think I am telling a lie when I reveal that I had Undulant Fever as a teenager and have it back.

I have many health problems most of which are identical to those I an 2 of my cousins suffered over 50 years ago. I think it is back and causing my diabetes,...

I have many health problems most of which are identical to those I an 2 of my co...

Barbara-Halverson74

•8 years ago

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Newly diagnosed AMN woman w/AMN son looking for diet/oil advice and experiences.

Hi. My name is Kristie and I am 45. At 12 years of age I tested negative for VLCFAs and was told I dos not have ALD and could not pass it on. My sister, who...

Hi. My name is Kristie and I am 45. At 12 years of age I tested negative for VLC...

Blacksheep

•8 years ago

18 Replies

Crutches

My crutches arrived yesterday from the good people at Amazon. A big psychological hurdle for me, but I was sick and tired of lumbering/lurching about. I am...

My crutches arrived yesterday from the good people at Amazon. A big psychologic...

monkeybus

•8 years ago

3 Replies

ALD Connect's Patient Learning Academy

Just posted by ALD Connect: "Save the date: ALD Connect will be hosting its next free Patient Learning Academy in Austin, Texas on Saturday, February 20,...

Just posted by ALD Connect: "Save the date: ALD Connect will be hosting its nex...

bsc78

•8 years ago

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Hello I'm new to this helpful community

I was recently diagnosed with AMN after a long search for the source of my neuropathy in my upper legs. I had the long chain fatty acid test b/c of a relative...

I was recently diagnosed with AMN after a long search for the source of my neuro...

mch1976

•8 years ago

3 Replies

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At my wits end(sex and anorgasmia related post)

Hello, everyone, I want to consult, amn patients sexual dysf...

AMN and diet

Endocrinology information

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Women-only: at what age did your symptoms first become noticeable?

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VLCFA (12)

All things AMN EASIER(9)

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Posts - AMN EASIER | HealthUnlocked

AMN EASIER

All posts for January 2016

Baclofen - your experiences

Antioxidants Halt Axonal Degeneration in a Mouse Model of X-Adrenoleukodystrophy

Doctors, diagnoses.

My introduction - AMN

ALD & AMN Patient Learning Academy

Spasticity woes.

I need to locate a doctor who doesn't think I am telling a lie when I reveal that I had Undulant Fever as a teenager and have it back.

Newly diagnosed AMN woman w/AMN son looking for diet/oil advice and experiences.

Crutches

ALD Connect's Patient Learning Academy

Hello I'm new to this helpful community

Search posts

Pinned Posts

Latest poll

Women-only: at what age did your symptoms first become noticeable?

Topics

Archive