Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

22,277 members•27,978 posts

All posts for June 2024

PROSTOX Tests

Is Conventionally Fractionated Radiotherapy (CFRT) mentioned on https://mirakind.org/prostox-testing/ the same as Intensity-Modulated Radiation Therapy (IMRT)?...

Is Conventionally Fractionated Radiotherapy (CFRT) mentioned on https://mirakind...

Infamous9597

•4 months ago

8 Replies

Anyone else suffering arm pains in conjunction with ADT hot flashes?

Ever since commencing ADT (Decapeptyl 11.5mg) following recurrent PCa in 2022 I've been getting muscle pain in both arms. It always commences simultaneously...

Ever since commencing ADT (Decapeptyl 11.5mg) following recurrent PCa in 2022 I'...

LeakyLad

•4 months ago

4 Replies

hair loss

I was wondering what others experience has been with hair loss during docetaxel. I completed my 10th round on May 2. After my first five treatments, I didn’t...

I was wondering what others experience has been with hair loss during docetaxel...

Oct18

•4 months ago

11 Replies

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Help me juggle SOC and my anxiety

I have just finish this May 18 months of Zoladex and had RT (VMRT 20x3Gy prostate and SV only) for localised G9 (PSMA no spread no SV involvement) after PSA...

I have just finish this May 18 months of Zoladex and had RT (VMRT 20x3Gy prosta...

SimMartin

•4 months ago

13 Replies

Five years later

Good day to all fellow warriors, I used to post as Arnie1970, but that account stopped working. After the initial scare of a stage 4 cancer diagnosis, a lot...

Good day to all fellow warriors, I used to post as Arnie1970, but that account ...

ArnieAfrica

•4 months ago

30 Replies

Looking for vitamin C infusions in Perth, Western Australia without glutathione?

Dear all Vitamin C infusions were tremendously helpful for my Dad in 2017 when he was diagnosed with metastatic prostate cancer and underwent a prostatectomy,...

Dear all Vitamin C infusions were tremendously helpful for my Dad in 2017 when h...

TomsD1

•4 months ago

1 Reply

how soon after starting orgovyx can one test PSA levels.

Dad started using orgovyx about 17 days ago. It is an Indian brand of relugolix which a reputed company here has started manufacturing here since this...

Dad started using orgovyx about 17 days ago. It is an Indian brand of relugo...

Tinkudi

•4 months ago

15 Replies

After Lupron I have been having seizures

Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had...

Hi, In December 2023 I decided to finally undergo treatment for my prostate c...

darrylw

•4 months ago

7 Replies

MRI report shows enhancing bone lesion is noted involving the left sphenoid bone.

That’s from an MRI taken six weeks after 10 sessions of IMRT were completed for a surgically inoperable metastasis in my skull. Apparently this means the...

That’s from an MRI taken six weeks after 10 sessions of IMRT were completed for ...

Gl448

•4 months ago

11 Replies

How do I update my bio?

My bio on Health Unlocked website needs updating. How do I do that? I can't seem to update my bio from 2023. I'm interested in adding PSAs and testosterone...

My bio on Health Unlocked website needs updating. How do I do that? I can't seem...

happycamperguy

•4 months ago

2 Replies

T never recovered after ADT and 44 EBRT sessions.

I had gleason 7 /3+4. Completed ADT and EBRT (44 sessions) November of 2020. Undetectable psa up until 6 months ago. Then went to 0.1. I had been taking...

I had gleason 7 /3+4. Completed ADT and EBRT (44 sessions) November of 2020. Und...

Chasu

•4 months ago

18 Replies

Phasing down prednisone

Finishing my 2 years on Abiraterone (yay!) in mid-July. My doc said to phase down my prednisone, but wasn't very specific, just not to stop all at once. I'll...

Finishing my 2 years on Abiraterone (yay!) in mid-July. My doc said to phase dow...

Atdabeach

•4 months ago

32 Replies

Anyone treated with enzalutamide +cabazitaxel?

Hi, I have stage4b with extensive bone mets. I've had sequentially ADT+abiraterone; docetaxel+carboplatin; Pluvicto. PSA never got below 3. Latest CT bone scan...

Hi, I have stage4b with extensive bone mets. I've had sequentially ADT+abiratero...

BeLikeWater

•4 months ago

14 Replies

upcoming PET scan

so, here’s where we are… My Joe has been experiencing increasing pain in his left hip and thigh. Today he said the thigh is numb. PET scan scheduled this...

so, here’s where we are… My Joe has been experiencing increasing pain in his le...

Cateydid

•4 months ago

21 Replies

skin redness after 3 weeks of pelvic radiation

I am on a 6-month hormone therapy treatment plan. I’m also receiving radiation treatments. After 3 weeks of pelvic radiation treatments (proton therapy), I...

I am on a 6-month hormone therapy treatment plan. I’m also receiving radiation t...

brilliant17

•4 months ago

3 Replies

Assisted living costs and Aid and Attendance policy for Veterans

Good morning. For those fellow warriors who served our country thank you. My dad is a former coast guard and served from 1960-1964. He was a corpsman and flew...

Good morning. For those fellow warriors who served our country thank you. My da...

lgutman

•4 months ago

1 Reply

Being Mortal Book by Atul Gawande

I want to thank those folks who suggested I read "Being Mortal" especially chapters 5-8. We are meeting with my Dad's oncologist on July 5 and his palliative...

I want to thank those folks who suggested I read "Being Mortal" especially chapt...

lgutman

•4 months ago

6 Replies

QoL: Strawberry Moonset 1

Mixed media on prepared board. I was lucky enough to wake up in time to see the Strawberry Moon set from our bedroom window. This is an impression of it...

Mixed media on prepared board. I was lucky enough to wake up in time to see the...

BrentW

•4 months ago

8 Replies

White Button Mushroom Extract

Hello everyone, Has anyone who has Metastatic Prostate Cancer taken White Button Mushroom Extract at the same time as getting Standard Of Care Treatments?...

Hello everyone, Has anyone who has Metastatic Prostate Cancer taken White Butto...

spolyu

•4 months ago

7 Replies

what now failed R223

‘what now’ failed R223 My husband this week because of low Hb 83 had a blood transfusion + iron infusion. He has suffered ‘Proctitis’ rectal bleeding since...

‘what now’ failed R223 My husband this week because of low Hb 83 had a blood t...

Janhpr

•4 months ago

9 Replies

Is radiation to prostate useful if one has bone mets ?

I see many people with bone mets advanced cancer say they took many sessions of radiation to the prostate. My MO’s never mentioned radiation ever , except...

I see many people with bone mets advanced cancer say they took many sessions of...

Tinkudi

•4 months ago

13 Replies

sweet sugar taste after 3rd docetaxel infusion

anyone ever have a really sweet sugary taste after docetaxel. after the first 2 my taste went back to normal after about 7 days but the only problem i had...

anyone ever have a really sweet sugary taste after docetaxel. after the first ...

casperrose

•4 months ago

2 Replies

External RT to prostate when already mCRPC?

Hello, I'm writing because of my father. Information in bio. A month ago he had a Ga68 PSMA PET/CT. Conclusion: A voluminous inhomogeneously filling...

Hello, I'm writing because of my father. Information in bio. A month ago he ha...

WatchTheSunsets

•4 months ago

12 Replies

Patient refuses abiraterone

From a very concerned daughter: My father was prescribed ADT, abiraterone, and prednisone. He started ADT earlier before the other two were added to the...

From a very concerned daughter: My father was prescribed ADT, abiraterone, and...

Healing1826

•4 months ago

48 Replies

Surprising TRT research results in PCa patients

I’ve been researching the implications of testosterone replacement therapy (TRT) as it relates to the odds of biochemical recurrence with prostate cancer. I...

I’ve been researching the implications of testosterone replacement therapy (TRT)...

ManuteBol1

•4 months ago

29 Replies

metastasised kidney cancer led to Nivolab immunotherapy

Writing for my husband, in brief: Had kidney out due to cancer Metastasised to both lungs and thorax. Five years of scans. Now on his spine, shown on pet...

Writing for my husband, in brief: Had kidney out due to cancer Metastasised to...

MydogBrandy

•4 months ago

2 Replies

PSA Rising and Falling during Chemo

I have been receiving chemotherapy since November 2023. Started with Docetaxel until it failed after 7 cycles. Switched to Cabazitaxel and currently on the 5th...

I have been receiving chemotherapy since November 2023. Started with Docetaxel u...

Islandboy2021

•4 months ago

3 Replies

drugs repurposing: another promising path!

not yet tested for prostate cancer (I think) but still… “But two years after starting a treatment regimen that combined ruxolitinib with the checkpoint...

not yet tested for prostate cancer (I think) but still… “But two years after st...

Maxone73

•4 months ago

4 Replies

Kaempferol

Does anyone have experience using Kaempferol as an off label Pca therapy? It has been studied: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6913338/ I am...

Does anyone have experience using Kaempferol as an off label Pca therapy? It ha...

Cebubob

•4 months ago

1 Reply

Which supplements are members using for advanced prostate? I take curcumin and others. I want to know more.

I am diagnosed stage 4 adeno carcinoma of prostate. Receiving Erleada and injections of Leuprolide. I want to supplement with everything known to fight this...

I am diagnosed stage 4 adeno carcinoma of prostate. Receiving Erleada and injec...

Cebubob

•5 months ago

101 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for June 2024

PROSTOX Tests

Anyone else suffering arm pains in conjunction with ADT hot flashes?

hair loss

Help me juggle SOC and my anxiety

Five years later

Looking for vitamin C infusions in Perth, Western Australia without glutathione?

how soon after starting orgovyx can one test PSA levels.

After Lupron I have been having seizures

MRI report shows enhancing bone lesion is noted involving the left sphenoid bone.

How do I update my bio?

T never recovered after ADT and 44 EBRT sessions.

Phasing down prednisone

Anyone treated with enzalutamide +cabazitaxel?

upcoming PET scan

skin redness after 3 weeks of pelvic radiation

Assisted living costs and Aid and Attendance policy for Veterans

Being Mortal Book by Atul Gawande

QoL: Strawberry Moonset 1

White Button Mushroom Extract

what now failed R223

Is radiation to prostate useful if one has bone mets ?

sweet sugar taste after 3rd docetaxel infusion

External RT to prostate when already mCRPC?

Patient refuses abiraterone

Surprising TRT research results in PCa patients

metastasised kidney cancer led to Nivolab immunotherapy

PSA Rising and Falling during Chemo

drugs repurposing: another promising path!

Kaempferol

Which supplements are members using for advanced prostate? I take curcumin and others. I want to know more.

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