Anyone else suffering arm pains in conjunction with ADT hot flashes?

[LeakyLad]

Ever since commencing ADT (Decapeptyl 11.5mg) following recurrent PCa in 2022 I've been getting muscle pain in both arms. It always commences simultaneously with the onset of hot flashes. The pain courses down both arms from the shoulder to the backs of my hands. It's not too severe and each bout only lasts a few minutes so not worthwhile taking medication.

However, because of the combined impact of arm pain and other side effects of ADT including regular bouts of extreme debilitation, breathlessness and exhaustion, I decided to quit ADT in February 2023 once my PSA had returned and stayed at zero.

It's now over a year since I quit ADT yet the side effects, though milder and less regular, continue to bother me. I have discussed this issue with the oncologist who is adamant that the arm pain must be totally unrelated to the ADT treatment. The clear implication is that my arm pain is probably psychosomatic, ie brought on by anxiety etc.

Anyone else suffered anything similar?

[Bkraus1]

You should inquire about a cervical MRI to evaluate for cervical stenosis.

[Big_Mcc]

I suffer arm pain in the bone of the upper arms, a deep ache. Oncologist told me it was bone thinning but didn't give me anything for the pain. Guess your supposed to grin and live with it. That seems to be the norm in UK NHS SoC

[SteveTheJ]

Consider the fact your symptoms might have nothing to do with ADT.

[LeakyLad in reply to SteveTheJ]

Worth mentioning that the leaflet accompanying Decapeptyl states that arm and leg pain are 'common' side effects of Decapeptyl.

The arm pain started up from day one in tandem with the hot flashes and seems inextricably bound up with them, When a hot flash starts, so does the arm pain, and when the hot flash subsides, so too does the arm pain.

However, maybe the ADT has somehow sparked a pre-existing condition I was unaware of? Or maybe my ageing body (I'm 80) just happens to be unequal to the stress of coping with ADT? Could it be there some chemical in the Decapeptyl formula that just happens to be incompatible with my constitution?

Maybe I just need to accept that it is all purely sychosomatic, as my onco seems to imply. I just need to hear a plausible explanation.