Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,283 members • 26,573 posts

All posts for March 2023

patient and provider portal

How do you access the provider portal at a hospital. I am getting the run around and advised this is not available as I am not a doctor. I was under the...

How do you access the provider portal at a hospital. I am getting the run aroun...

lewicki

•1 year ago

46 Replies

Electrochemotherapy

Hi has anyone had this ?

aprail

•1 year ago

12 Replies

Stage 4 ~ Now Losing Blood Somewhere

Hi, my husband was diagnosed stage 4 with lymph node and bladder neck margins involvement 3/2018. He has done chemo, radiation, and hormone therapy over the...

Hi, my husband was diagnosed stage 4 with lymph node and bladder neck margins in...

drb1966

•1 year ago

7 Replies

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PSA & Testosterone 3 months post RT

After MRI/biopsy was recommended AS for G7 in Jan 2020 and PSA 4.1, which stayed stable until mid 2021 - I opted for HIFU for in Decembers 2021 when my PSA...

After MRI/biopsy was recommended AS for G7 in Jan 2020 and PSA 4.1, which staye...

SimMartin

•1 year ago

1 Reply

Melanoma and prostate cancer

About five years ago Karmanos in Detroit doctor said my prostate cancer biopsy resembled Melanoma. I did have Melanoma removed from my arm and leg ten and...

About five years ago Karmanos in Detroit doctor said my prostate cancer biopsy r...

lewicki

•1 year ago

10 Replies

Testosterone Replacement Therapy

Testosterone level seems to have plateaued at 250 post 2018-19 IMRT, ADT and brachyboost; was never more than 270 pre-treatment. Criteria for...

Testosterone level seems to have plateaued at 250 post 2018-19 IMRT, ADT and bra...

EdinBmore

•1 year ago

32 Replies

Does mind over matter work?

At this juncture I’d have to say yes. My psa has been rising for the last 6 months. With no changes other than deep meditation, mindset work and stress...

At this juncture I’d have to say yes. My psa has been rising for the last 6 mont...

No_stone_unturned

•1 year ago

52 Replies

Incontinence after RP and ADT

I had a RO approximately 2 1/2 years ago with a recurrence 12 months later. I have had 37 sessions of radiotherapy and am in month 16 of 18 hormone therapy in...

I had a RO approximately 2 1/2 years ago with a recurrence 12 months later. I ha...

Runner1957

•1 year ago

15 Replies

Enzalutamide or Darolutamide

Hi, I have advanced metastatic hormone sensitive prostate cancer and as well as my usual three monthly ADT (Lucrin-Depot) injection, I have been offered...

Hi, I have advanced metastatic hormone sensitive prostate cancer and as well as...

x-rays1

•1 year ago

29 Replies

If all treatment has failed do you continue with ADT?

Now that all treatment has failed to stop the beast do you continue ADT ? Husband has failed out of 6 pluvicto and now 6 Jevtana. No further treatment is...

Now that all treatment has failed to stop the beast do you continue ADT ? Husban...

Cynthgob

•1 year ago

12 Replies

LU177 not working for me

On the day before my 3rd infusion of Lu177 PNT2002, my bone scan shows increase in size of my old mets and numerous new mets. It is obvious that the Lu177...

On the day before my 3rd infusion of Lu177 PNT2002, my bone scan shows increase ...

Ollie1948

•1 year ago

8 Replies

desert blooms

I’m not sure how to post multiple pictures but I’m hoping you can all enjoy what we see out here in the desert

I’m not sure how to post multiple pictures but I’m hoping you can all enjoy wha...

Keeper70

•1 year ago

9 Replies

AZ Desert

More to come😄

Keeper70

•1 year ago

1 Reply

Is it normal taking lupron shots and after awhile doesn’t work?

Writing for my husband, he had his prostate removed and after his first blood to test his psa , it wasn’t zero so the doctor wanted him to do radiation but he...

Writing for my husband, he had his prostate removed and after his first blood to...

Angelface52

•1 year ago

12 Replies

Trials for alternatives to Pluvicto?

Are any of you participating in a phase 1 or phase 2 trial studying an alternative to the radioligand Pluvicto? I ask because I was one business day away from...

Are any of you participating in a phase 1 or phase 2 trial studying an alternati...

tallguy2

•1 year ago

12 Replies

New MMAI Genomics Test for Risk Stratification

I just started researching a new genomics test from Artera ( https://artera.ai/our-science/ ). Supposed to do a better job at risk stratification for high...

I just started researching a new genomics test from Artera ( https://artera.ai/o...

billd50

•1 year ago

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Clinical trial discussion with Black and African American men in the USA

A pharmaceutical company wants to discuss clinical trials with Black and African American men in the USA. If interested, please email me at...

A pharmaceutical company wants to discuss clinical trials with Black and African...

Darryl

Partner•1 year ago

Be the first to reply

radiation to C2 or hilar lymph node

has anyone ever had successful radiation to the C2 and/or the hilar lymph node? Dr. Sartor says it is tricky but thinks it would be a good option for my...

has anyone ever had successful radiation to the C2 and/or the hilar lymph node? ...

Drandma

•1 year ago

7 Replies

Recent Diagnosed - Gleason 4+4=8

Initial diagnosis in February with PSA 4.38. Biopsy shows highest Gleason 8. CT scan found 3 lung nodules, in both lower lobes with largest approx 5mm, but...

Initial diagnosis in February with PSA 4.38. Biopsy shows highest Gleason 8. C...

Eightydeuce

•1 year ago

33 Replies

Bicycle seats..

My goal is to ride my bicycle wherever I can and not use the truck. My bike needs a new seat. The current one is the standard skinny thing that pushes pretty...

My goal is to ride my bicycle wherever I can and not use the truck. My bike nee...

groundhogy

•1 year ago

24 Replies

QoL lifts us up where we Belong

https://youtu.be/bjrOcrisGyI Had a busy QoLity time from Friday to Sunday :-) St. Patrick's Night at PDubs where an ex employee sang with a cover band Blue...

https://youtu.be/bjrOcrisGyI Had a busy QoLity time from Friday to Sunday :-) ...

dockam

•1 year ago

12 Replies

miR Sentinel assay

I heard about this assay on a Dr. Klotz video. It is suppose to be better than PSA for screening. My husband and I have 2 sons....

I heard about this assay on a Dr. Klotz video. It is suppose to be better than P...

Cinderelda

•1 year ago

4 Replies

PSMA PET-CT Ga68 Scan results

Profile recap: family history of PCa; RALP 5/18/09; post-surgery pathology Gleason 3+3; no evidence of PCa extracapsular or in pelvic lymph nodes....

Profile recap: family history of PCa; RALP 5/18/09; post-surgery pathology Glea...

KeyboardGuy

•1 year ago

11 Replies

Game On🤣

Had 1st of 28 IMRTs PSA almost doubled in a month to 34 39 Chemos didn't do it 🤣 All Good tho Have a QoL post for later Life is Beautiful 💙 Fight on Y'all...

Had 1st of 28 IMRTs PSA almost doubled in a month to 34 39 Chemos didn't do it �...

dockam

•1 year ago

72 Replies

Can you really end all ADT?

Hello all warriors! My husband is on 23 of 44 IG/IMRT treatments. Radiology Oncologist has suggested he stop all Elligard & Zytiga ehen he finishes his...

Hello all warriors! My husband is on 23 of 44 IG/IMRT treatments. Radiology Onc...

Keeper70

•1 year ago

38 Replies

He is at peace

Sadly, after a 9+ year fight, my husband passed on Saturday, March 18. He was the most amazing guy and part of my heart is gone now. He never gave up, always...

Sadly, after a 9+ year fight, my husband passed on Saturday, March 18. He was th...

Wyldhare22

•1 year ago

77 Replies

PSA and Images all stable for 4.5 years.

Tired of the side effects so with OK's from both of my MO's I started a vacation. Lupron and Zytiga stopped until either chemical or image progression shows...

Tired of the side effects so with OK's from both of my MO's I started a vacation...

pdold

•1 year ago

10 Replies

zyyiga

anyone taking zyyiga get random jabbing abdomen pain ..... sides only never had this before starting Z

anyone taking zyyiga get random jabbing abdomen pain ..... sides only never h...

warrior22

•1 year ago

8 Replies

Constipation

This has been awful for weeks now. Using the usual methods to minimize. I've searched far and wide for best intervention and causes. I know structures are...

This has been awful for weeks now. Using the usual methods to minimize. I've ...

rfgh20

•1 year ago

44 Replies

How to monitor intraductal PCa that has low PSA production?

My aggressive intraductal PCa (0.88 Decipher) does not express PSA/PSMA very well (see my bio). Dx in June,2022. I've been getting 3 month Eligard injections...

My aggressive intraductal PCa (0.88 Decipher) does not express PSA/PSMA very wel...

Danskor

•1 year ago

20 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for March 2023

patient and provider portal

Electrochemotherapy

Stage 4 ~ Now Losing Blood Somewhere

PSA & Testosterone 3 months post RT

Melanoma and prostate cancer

Testosterone Replacement Therapy

Does mind over matter work?

Incontinence after RP and ADT

Enzalutamide or Darolutamide

If all treatment has failed do you continue with ADT?

LU177 not working for me

desert blooms

AZ Desert

Is it normal taking lupron shots and after awhile doesn’t work?

Trials for alternatives to Pluvicto?

New MMAI Genomics Test for Risk Stratification

Clinical trial discussion with Black and African American men in the USA

radiation to C2 or hilar lymph node

Recent Diagnosed - Gleason 4+4=8

Bicycle seats..

QoL lifts us up where we Belong

miR Sentinel assay

PSMA PET-CT Ga68 Scan results

Game On🤣

Can you really end all ADT?

He is at peace

PSA and Images all stable for 4.5 years.

zyyiga

Constipation

How to monitor intraductal PCa that has low PSA production?

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