Sadly, after a 9+ year fight, my husband passed on Saturday, March 18. He was the most amazing guy and part of my heart is gone now. He never gave up, always swore he would be the one to beat this beast. He was smiling and cracking jokes till the end. And even managed to make me laugh when he could not longer speak.
Thank you to all the kind people in this forum who answered my questions and addressed my fears. May the person reading this, beat this beast.
I'm so sorry for your loss. He sounds like a lovely man.