Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,439 members • 26,854 posts

All posts for August 2019

August 9 2019

It is very sunny and bright bay . it is beautiful day gift from god

Geanton

•5 years ago

8 Replies

A month with out meds

Hello all. I have been doing great after taking the advice from this group. I have been on Zytiga for over a year, something my first oncologist refused to...

Hello all. I have been doing great after taking the advice from this group. I ...

Danb1a

•5 years ago

5 Replies

Clinical Implications of New Data on Apalutamide + ADT in Castrate-Sensitive Prostate Cancer

FYI - one Dr’s opinion on Apalutamide vs Abi. https://www.practiceupdate.com/C/84441/56?elsca1=emc_enews_topic-alert

FYI - one Dr’s opinion on Apalutamide vs Abi. https://www.practiceupdate.com/C/...

snoraste

•5 years ago

4 Replies

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Nothing left to do?

My husband was diagnosed right out the door with stage 4 prostate cancer in March 2017. Gleason of 9, bone mets found. Cancer outside of prostate into...

My husband was diagnosed right out the door with stage 4 prostate cancer in Marc...

Mauvemood

•5 years ago

27 Replies

ODD Question regarding Testosterone Levels BEFORE ADT

Hi Gents, My husband will soon be starting Formula 509 and will begin ADT and Salvage Radiation. Only recently has he gotten his first baseline Testosterone...

Hi Gents, My husband will soon be starting Formula 509 and will begin ADT and Sa...

JosephineS

•5 years ago

5 Replies

Dattoli Clinic Radiation Treatment

I received the following private message asking about the Dattoli Clinic. I thought I would post it here and answer it. Perhaps others may contribute as well....

I received the following private message asking about the Dattoli Clinic. I thou...

cesanon

•5 years ago

54 Replies

5 years today from dx

5 years out today. Started at 212 PSA, Gleason 9 with lymph mets up to my neck. Don't give up hope. PSA is currently hovering around 2. No Lupron since...

5 years out today. Started at 212 PSA, Gleason 9 with lymph mets up to my neck. ...

Fuzzman77

•5 years ago

70 Replies

No need for ADT yet??

Fully expected to go on Lupron today but CT scan came back negative. This coupled with slow doubling time and negative bone scan has my MO thinking that we can...

Fully expected to go on Lupron today but CT scan came back negative. This couple...

Tommyj2

•5 years ago

24 Replies

PSMA PET finds more cancer than Axumin

This is for the Ga-68-PSMA-11 PET/CT scan. It was especially good at detecting cancer in the pelvic lymph nodes....

This is for the Ga-68-PSMA-11 PET/CT scan. It was especially good at detecting c...

Tall_Allen

•5 years ago

27 Replies

FLASH radiotherapy: from preclinical promise to the first human treatment

https://physicsworld.com/a/flash-radiotherapy-from-preclinical-promise-to-the-first-human-treatment/?utm_medium=email&utm_source=iop&utm_term=&utm_campaign=1429

https://physicsworld.com/a/flash-radiotherapy-from-preclinical-promise-to-the-fi...

puxi

•5 years ago

5 Replies

experience with 4 drugs protocol of Care Oncology clinic

Does any body has experience with COC protocol for PC

Karmaji

•5 years ago

12 Replies

$200 honorarium - Online Patient and caregiver research for stage 4 prostate cancer OR non-metastatic castration-resistant prostate cancer

Online Patient and caregiver research for stage 4 prostate cancer OR non-metastatic castration-resistant prostate cancer Find A Cure Panel has some new online...

Online Patient and caregiver research for stage 4 prostate cancer OR non-metasta...

Darryl

Partner•5 years ago

Be the first to reply

Starting a hopeful course of RT

I'm about to embark on a 44-session radiation treatment which my RO calls "out of the box." Diagnosed in summer of '17 with gleason 8, I immediately...

I'm about to embark on a 44-session radiation treatment which my RO calls "out...

npaulson1

•5 years ago

18 Replies

Xgeva frequency ?

My latest bone scan on April 8, 2019, showed T-scores as follows: Lumbar spine (-2.4) Left hip (-2.2) Right hip (-2.0) Right femoral neck (-2.6) My...

My latest bone scan on April 8, 2019, showed T-scores as follows: Lumbar spine (...

JazzMan42

•5 years ago

18 Replies

LU-177

In a couple weeks I will receive my 6th and final LU-177 treatment as part of the Vision trial. Thus far I have been very happy with the results. Does anyone...

In a couple weeks I will receive my 6th and final LU-177 treatment as part of th...

pinejogave

•5 years ago

21 Replies

soy isoflavones not good for advanced PC

can we share recent studies though limited and not reliable that isoflavones should be avoided... confusing...

can we share recent studies though limited and not reliable that isoflavones sho...

Karmaji

•5 years ago

10 Replies

A Day to Panic About my "Bonus Cancer"

My latest blog post, in which things are going so well on the prostate cancer front that I have the luxury to panic about a follow-up cystoscopy to check for...

My latest blog post, in which things are going so well on the prostate cancer fr...

tom67inMA

•5 years ago

13 Replies

Psa after starting treatments

My husband was diagnosed metastatic to bones (back, rib, and hip) and pelvic lymph nodes in April. He received a firmagon shot in late April and then...

My husband was diagnosed metastatic to bones (back, rib, and hip) and pelvic ly...

longleaf

•5 years ago

9 Replies

Cancer treatment at the end of life

Cancer Treatment at the End of Life https://www.nytimes.com/2019/08/05/well/live/cancer-treatment-at-the-end-of-life.html?smid=nytcore-ios-share

Cancer Treatment at the End of Life https://www.nytimes.com/2019/08/05/well/liv...

Darryl

Partner•5 years ago

8 Replies

Docetaxel treatment update

I thought it would be interesting to share results from my first 5 sessions of chemo and maybe get some thoughts. Cycle 1, 2, 4 and 5 have been mainly low...

I thought it would be interesting to share results from my first 5 sessions of c...

easeytiger

•5 years ago

13 Replies

Zytiga after taxotere chemo? Help understanding

Hi everyone, My father has had 10 rounds of chemo (his last one is this week), he went from a psa of 2000 to his current psa of 0.2, we started this journey...

Hi everyone, My father has had 10 rounds of chemo (his last one is this week),...

ellie2211

•5 years ago

8 Replies

NEED THE COMMUNITY INPUT

I recently shared my husbands rise in PSA. It had gone from 4 to 7.99. Dr had him do a bone scan and CT scan of abdomen, chest and pelvis. Today was our appt...

I recently shared my husbands rise in PSA. It had gone from 4 to 7.99. Dr had h...

Hidden

•5 years ago

15 Replies

Options for stage 4

My husbands blood levels are not high enough for the lu-177 or AC 225. We need to know if there is anything left. He’s had all the standard of care treatments...

My husbands blood levels are not high enough for the lu-177 or AC 225. We need ...

joann48

•5 years ago

72 Replies

Generic Zytiga Cost

I just ordered my Zytiga generic refill from Community Specialty Pharmacy division of Walgreens. The retail price was just over $3000 and my Medicare copay was...

I just ordered my Zytiga generic refill from Community Specialty Pharmacy divisi...

Mkeman

•5 years ago

11 Replies

Anyone figured out how to lose their fat gut ?

I’ve been on and off ADT for five years. I’ve got this huge beer belly which totally pisses me off! I exercise vigorously 5-6 days a week but have tremendous...

I’ve been on and off ADT for five years. I’ve got this huge beer belly which tot...

Break60

•5 years ago

75 Replies

Entering Part 3 of CPI-1205 Phase II Trial

My retro-peritoneal mass has neither increased nor decreased in size over the past month. Still no bone mets. Feeling fortunate and very grateful. PSA results...

My retro-peritoneal mass has neither increased nor decreased in size over the pa...

beatPC

•5 years ago

Be the first to reply

Peripheral neuropathy with ADT

Has anyone experienced 4 extremity peripheral neuropathy in the form of numbness and tingling while on the combination of Lupron ( 6 1/2 years and 16 months...

Has anyone experienced 4 extremity peripheral neuropathy in the form of numbnes...

wagscure259

•5 years ago

14 Replies

What kind of Alk Phos numbers suggest bone mets?

Are numbers markedly elevated when there are bone mets or just higher than ones " usual " ie... substantially out of range... or just elevated substantially...

Are numbers markedly elevated when there are bone mets or just higher than ones ...

Tommyj2

•5 years ago

14 Replies

Cyproterone

Just a quick post, I recently had my treatment changed to Zytiga, before that I was on Cyproterone. I live in mainland europe ( cancer treatment is 100% exempt...

Just a quick post, I recently had my treatment changed to Zytiga, before that I ...

Lettuce231

•5 years ago

3 Replies

Symptoms Returned after stopping Casodex

After 2 months on Casodex urine flow and frequency greatly improved. RO ordered 3 month Eligard injection Stopped Casodex 2 weeks after injection. Now I’m...

After 2 months on Casodex urine flow and frequency greatly improved. RO ordered ...

BadNews4me

•5 years ago

4 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for August 2019

August 9 2019

A month with out meds

Clinical Implications of New Data on Apalutamide + ADT in Castrate-Sensitive Prostate Cancer

Nothing left to do?

ODD Question regarding Testosterone Levels BEFORE ADT

Dattoli Clinic Radiation Treatment

5 years today from dx

No need for ADT yet??

PSMA PET finds more cancer than Axumin

FLASH radiotherapy: from preclinical promise to the first human treatment

experience with 4 drugs protocol of Care Oncology clinic

$200 honorarium - Online Patient and caregiver research for stage 4 prostate cancer OR non-metastatic castration-resistant prostate cancer

Starting a hopeful course of RT

Xgeva frequency ?

LU-177

soy isoflavones not good for advanced PC

A Day to Panic About my "Bonus Cancer"

Psa after starting treatments

Cancer treatment at the end of life

Docetaxel treatment update

Zytiga after taxotere chemo? Help understanding

NEED THE COMMUNITY INPUT

Options for stage 4

Generic Zytiga Cost

Anyone figured out how to lose their fat gut ?

Entering Part 3 of CPI-1205 Phase II Trial

Peripheral neuropathy with ADT

What kind of Alk Phos numbers suggest bone mets?

Cyproterone

Symptoms Returned after stopping Casodex

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