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Just a quick one about little things that can affect us
I had my follow up on Wednesday as I mentioned I’m still not 100%. My heart failure is going to be checked out next month with an echo. The doctor wants at least a month to give the pacemaker a chance to do some magic. My EP does not just treat the heart as if the person does not exist. After our
I had my follow up on Wednesday as I mentioned I’m still not 100%. My heart failure is going to be checked out next month with an echo. The doctor wants at least a month to give the pacemaker a chance to do some magic. My EP does not just treat the heart as if the person does not exist. After our
DawnTX
in
AF Association
1 year ago
Maggie
Due to arthritis I've been living with chronic back pain for 15yrs, had a knee replacement and also hip bursitis. I had an operation on one hip last year but I find I can't get very far with the physio because of my back pain.I've also been taken off buprenorphine then more recently tramadol.my pain
Due to arthritis I've been living with chronic back pain for 15yrs, had a knee replacement and also hip bursitis. I had an operation on one hip last year but I find I can't get very far with the physio because of my back pain.I've also been taken off buprenorphine then more recently tramadol.my pain
Mauimags
in
Pain Concern
1 year ago
Half Sineset
Have been asked to try Half Sineset for RLS Anybody used this ,it is for Parkinson but also used for RLS told to come off Gabapentin and Tramadol ,the Consultant say these make RLS worse bit confused .
Have been asked to try Half Sineset for RLS Anybody used this ,it is for Parkinson but also used for RLS told to come off Gabapentin and Tramadol ,the Consultant say these make RLS worse bit confused .
auldreekie18
in
Restless Legs Syndrome
1 year ago
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Post Pred motivation?
Hi all, I'm finally off Pred after starting at 50mg back in Aug '21 for a crippling PMR attack. I took my final (hopefully) 0.5 mg about three weeks ago. However, I'm now often feeling very slow and lacking in motivation to do much at all. "Brain dead" would be a good way to express it. This is not
Hi all, I'm finally off Pred after starting at 50mg back in Aug '21 for a crippling PMR attack. I took my final (hopefully) 0.5 mg about three weeks ago. However, I'm now often feeling very slow and lacking in motivation to do much at all. "Brain dead" would be a good way to express it. This is not
Hidden
in
PMRGCAuk
1 year ago
Pre diagnosis and lost in the weeds
Hi everybody, I hope I'm doing this correctly. I'm feeling very lost at the moment. What did any of you do for pain relief while waiting for your rhuem appt and diagnosis? I'll happilly accept recommendations if that is allowed here or maybe I missed a pinned post? I'm pre diagnosis, so no 'good drugs
Hi everybody, I hope I'm doing this correctly. I'm feeling very lost at the moment. What did any of you do for pain relief while waiting for your rhuem appt and diagnosis? I'll happilly accept recommendations if that is allowed here or maybe I missed a pinned post? I'm pre diagnosis, so no 'good drugs
Quinni
in
NRAS
1 year ago
Stopping Cerazette
First time poster, but I’ve taken many tips from this board so thank you all in advance. 2 years ago I doubled over in agony, eventually got sent to A&E via my GP with suspected appendicitis. Wasn’t appendicitis, it was a haemorrhaging ovarian cyst. Sent home with painkillers, had a couple of scans and
First time poster, but I’ve taken many tips from this board so thank you all in advance. 2 years ago I doubled over in agony, eventually got sent to A&E via my GP with suspected appendicitis. Wasn’t appendicitis, it was a haemorrhaging ovarian cyst. Sent home with painkillers, had a couple of scans and
Bookworm3371
in
Endometriosis UK
1 year ago
Cyst on ovary
I recently posted here about pain on my left side after an ulcerative colitis flare. I’ve been having this pain since October and was given antibiotics for diverticulitis. All my other UC symptoms are now gone and a colonoscopy and CT scan have ruled out any further bowel issues but the pain is still
I recently posted here about pain on my left side after an ulcerative colitis flare. I’ve been having this pain since October and was given antibiotics for diverticulitis. All my other UC symptoms are now gone and a colonoscopy and CT scan have ruled out any further bowel issues but the pain is still
Jooniper
in
Endometriosis UK
1 year ago
Pain relief
Has anyone found any pain relief to be effective? I’ve tried so, so many and there’s not much left for me to try. I have a brilliant GP who is always happy to listen so I thought if anyone had found anything effective, then I could always suggest it. Currently prescribed naproxen and diclofenic suppositories
Has anyone found any pain relief to be effective? I’ve tried so, so many and there’s not much left for me to try. I have a brilliant GP who is always happy to listen so I thought if anyone had found anything effective, then I could always suggest it. Currently prescribed naproxen and diclofenic suppositories
mrsswinnydm
in
Endometriosis UK
1 year ago
pain!
Hi, I have end stage osteoarthritis and was told before Christmas I would have my op by April. I’ve still not heard anything. The pain is horrendous now. I am taking Tramadol. Paracetamol, naproxen and amitriptyline . The Dr also recently prescribed morphine which done absolutely nothing so stopped taking
Hi, I have end stage osteoarthritis and was told before Christmas I would have my op by April. I’ve still not heard anything. The pain is horrendous now. I am taking Tramadol. Paracetamol, naproxen and amitriptyline . The Dr also recently prescribed morphine which done absolutely nothing so stopped taking
Holycow2
in
Osteoarthritis Action
1 year ago
Sugar
I have known for a long time that wine is a trigger for me. I decided to cut out sugar, not all carbs just sugar. The result is amazing. I still take 0.09 mirapexin (which hasn't worked on its own for years)I was adding Kratom, tramadol, codeine and still pacing the floor quite often. However now after
I have known for a long time that wine is a trigger for me. I decided to cut out sugar, not all carbs just sugar. The result is amazing. I still take 0.09 mirapexin (which hasn't worked on its own for years)I was adding Kratom, tramadol, codeine and still pacing the floor quite often. However now after
Memmy
in
Restless Legs Syndrome
1 year ago
Buprenorphine
I am writing this to highlight how miraculous Buprenorphine has been for me and many others on this site. My sleep app shows how good my sleep is. I had never heard of buprenorphine until Shumbah posted that it had resolved her severe, refractory RLS. No neurologist has ever mentioned it. Like Shumbah
I am writing this to highlight how miraculous Buprenorphine has been for me and many others on this site. My sleep app shows how good my sleep is. I had never heard of buprenorphine until Shumbah posted that it had resolved her severe, refractory RLS. No neurologist has ever mentioned it. Like Shumbah
Joolsg
in
Restless Legs Syndrome
1 year ago
Shortage of Pramipexole 0.18mg? UK
Hi fellow sufferers, can I ask please if anyone else in the UK is finding it impossible to get Pramipexole 0.18mg? I didn’t have a problem until late January. My local pharmacy just tell me they cannot get it. The pharmacy attached to my GP surgery offered to prescribe Ropinerole instead and I
Hi fellow sufferers, can I ask please if anyone else in the UK is finding it impossible to get Pramipexole 0.18mg? I didn’t have a problem until late January. My local pharmacy just tell me they cannot get it. The pharmacy attached to my GP surgery offered to prescribe Ropinerole instead and I
Felixstowe
in
Restless Legs Syndrome
1 year ago
GBAPENTIN TIMES
Hi, Sue I take Madopor for Parkinsons 1200 mg split into 4 doses and evening I take 2 600mg Gabapentin 4 hrs before bed and 2 600mg Gabapentin and 2 Tramadol 2 hours before bed but waken every morning at 4am with restless legs and take 1 300mg Madapor to help me to getting up what times do
Hi, Sue I take Madopor for Parkinsons 1200 mg split into 4 doses and evening I take 2 600mg Gabapentin 4 hrs before bed and 2 600mg Gabapentin and 2 Tramadol 2 hours before bed but waken every morning at 4am with restless legs and take 1 300mg Madapor to help me to getting up what times do
auldreekie18
in
Restless Legs Syndrome
1 year ago
Move or Stay Put?
Hiya everyone, and thank you for all replies to my previous post.I saw specialist physio recently it transpires that around S1 area of my spine(?) the disc is squashed probably due to my BMI and this is causing the horrible pain down my left leg that I'm experiencing. It may get better on its own and
Hiya everyone, and thank you for all replies to my previous post.I saw specialist physio recently it transpires that around S1 area of my spine(?) the disc is squashed probably due to my BMI and this is causing the horrible pain down my left leg that I'm experiencing. It may get better on its own and
Seascapes31
in
Fibromyalgia Action UK
1 year ago
Hell: Weaning off pramipexole
I need your help: I am on my transiation from pramipexole to Gabapentin. I'm now at 300mg gabapentin at 6pm and 600mg gabapentin at 10pm. My maximum dose of prami was 0.125. I am almost off it. Every couple of days (first: weeks) I am reducing the dose which was not easy because I can't divide the tablet
I need your help: I am on my transiation from pramipexole to Gabapentin. I'm now at 300mg gabapentin at 6pm and 600mg gabapentin at 10pm. My maximum dose of prami was 0.125. I am almost off it. Every couple of days (first: weeks) I am reducing the dose which was not easy because I can't divide the tablet
Happyfriday123
in
Restless Legs Syndrome
1 year ago
PLMD and pramipexole
I have suffered with restless legs and PLMD since about 2005/6 when I contracted a form of rheumatoid arthritis. Having tried various medications and self help treatments over the years, I am currently on pramipexole (since about a month ago). However, I am finding that my symptoms are much worse recently
I have suffered with restless legs and PLMD since about 2005/6 when I contracted a form of rheumatoid arthritis. Having tried various medications and self help treatments over the years, I am currently on pramipexole (since about a month ago). However, I am finding that my symptoms are much worse recently
Grandy1962
in
Restless Legs Syndrome
1 year ago
Extended release or regular Tramadol?
For those on Tramadol, do you find the ER version of the immediate release version most effective? What dose are you taking? Thank you.
For those on Tramadol, do you find the ER version of the immediate release version most effective? What dose are you taking? Thank you.
SleeplessinOR
in
Restless Legs Syndrome
1 year ago
TRAMADOL
I'm asking my GP to take me off Pregabalin as A) it doesn't really work even though it has been increased again and B) horrendous weight gain. 2 stone weight gain. I'm asking to be put on tramadol instead but I'm not sure if he will do this as I have bad liver damage. Any help would be appreciated
I'm asking my GP to take me off Pregabalin as A) it doesn't really work even though it has been increased again and B) horrendous weight gain. 2 stone weight gain. I'm asking to be put on tramadol instead but I'm not sure if he will do this as I have bad liver damage. Any help would be appreciated
golly123
in
Fibromyalgia Action UK
1 year ago
Miserable…when will this flare up end😔..
Hey everyone, I hope those who read this aren’t in as much pain as I am at the moment, this flare up has lasted days now. I’m on regular paracetamol, tramadol and naproxen. My hot water bottle has actually started to blister my already mottled skin on my stomach. I’ve tried hot baths too. Does anyone
Hey everyone, I hope those who read this aren’t in as much pain as I am at the moment, this flare up has lasted days now. I’m on regular paracetamol, tramadol and naproxen. My hot water bottle has actually started to blister my already mottled skin on my stomach. I’ve tried hot baths too. Does anyone
endowarrior12
in
Endometriosis UK
1 year ago
Augmentation
I have been taking 0.26mg of Pramapexole plus 100mg Tramadol for around 8 years. This is my second bout of Pramapexole, first time around after a good few years I augmented, had a break then started again. It really has been a good drug for me but of course I am paying the price again. My question is
I have been taking 0.26mg of Pramapexole plus 100mg Tramadol for around 8 years. This is my second bout of Pramapexole, first time around after a good few years I augmented, had a break then started again. It really has been a good drug for me but of course I am paying the price again. My question is
keiralee
in
Restless Legs Syndrome
1 year ago
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