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update from Ruffabug (End of life plan)
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
Ruffabug
in
Restless Legs Syndrome
20 hours ago
Advice sought on switching from Tramadol to THC/CBD
I'm on 50 - 100mg of tramadol a day and slowly getting augmentation. Started with 50mg and now I alternate nights at 100mg. I'm reluctant to go to 100mg everyday yet but most nights 50mg doesn't work great. My Dr has suggested I try a THC 10mg/CBD 10mg medication and stopping Tramadol, so I will give
I'm on 50 - 100mg of tramadol a day and slowly getting augmentation. Started with 50mg and now I alternate nights at 100mg. I'm reluctant to go to 100mg everyday yet but most nights 50mg doesn't work great. My Dr has suggested I try a THC 10mg/CBD 10mg medication and stopping Tramadol, so I will give
TheGiz
in
Restless Legs Syndrome
1 day ago
Restless legs
I haven't posted here for a while RLS has been over the years quite unbearable now I'm taking tramadol and Premaprexole and it has been a life saver I'm not saying I don't suffer at all but it is bearable I'm not walking round the bungalow all hours day or night I hope i can help someone else with this
I haven't posted here for a while RLS has been over the years quite unbearable now I'm taking tramadol and Premaprexole and it has been a life saver I'm not saying I don't suffer at all but it is bearable I'm not walking round the bungalow all hours day or night I hope i can help someone else with this
Piecrusl1
in
Restless Legs Syndrome
2 days ago
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NASH progressed
Hi I've had fatty liver disease for many years nowIt progressed to NASH eventually Now on my latest fibroscan it shows 80 percent of fat in my liver (highest ever) And more scarring bringing me out of F4 fibrosis into suspected Cirrhosis All I can do is wait. I'm in the UK and drs don't prescribe the
Hi I've had fatty liver disease for many years nowIt progressed to NASH eventually Now on my latest fibroscan it shows 80 percent of fat in my liver (highest ever) And more scarring bringing me out of F4 fibrosis into suspected Cirrhosis All I can do is wait. I'm in the UK and drs don't prescribe the
LaurieRose
in
Living with Fatty Liver and NASH
3 days ago
Restless Leg Syndrome and Mirapex
Hello, I have severe RLS. I have been taking Mirapex for about 3 years. It was a relief to find something that helped,! After trying natural remedies with no success, I went to a doctor about my RLS and was prescribed a medicine called Requip. I took Requip for several years, but it made be sick
Hello, I have severe RLS. I have been taking Mirapex for about 3 years. It was a relief to find something that helped,! After trying natural remedies with no success, I went to a doctor about my RLS and was prescribed a medicine called Requip. I took Requip for several years, but it made be sick
GreenChilie
in
Restless Legs Syndrome
3 days ago
Changing meds
I've been on Tramadol for almost a year now but am beginning to augment. I have been referred to a neurologist but don't expect an appointment until some time next year. In the meantime my GP is putting me on codeine. Does anyone have any advice about changing from Tramadol to codeine? The GP said
I've been on Tramadol for almost a year now but am beginning to augment. I have been referred to a neurologist but don't expect an appointment until some time next year. In the meantime my GP is putting me on codeine. Does anyone have any advice about changing from Tramadol to codeine? The GP said
restlessinlondon
in
Restless Legs Syndrome
3 days ago
A Natural Approach to Calming Restless Legs
I want to share my personal experience in the hope that it might benefit someone else. I was prescribed Ropinirole 2mg slow-release and Pramipexole 0.18mg for restless leg syndrome, but they were not very effective. I had rough nights, and at least once or twice a week, I had to take Tramadol 50mg
I want to share my personal experience in the hope that it might benefit someone else. I was prescribed Ropinirole 2mg slow-release and Pramipexole 0.18mg for restless leg syndrome, but they were not very effective. I had rough nights, and at least once or twice a week, I had to take Tramadol 50mg
fazull0
in
Restless Legs Syndrome
3 days ago
A cause for concern or?
For the past couple of months i started getting notifications via my Samsung 6 watch that my HR was anything from 44 to 52,for more than 10 minutes, numerous times a day or night . I am taking various medications, Bu trans patch, HRT co-codamol 30/500 Pregabalin tramadol & citalopram 40mg. They are
For the past couple of months i started getting notifications via my Samsung 6 watch that my HR was anything from 44 to 52,for more than 10 minutes, numerous times a day or night . I am taking various medications, Bu trans patch, HRT co-codamol 30/500 Pregabalin tramadol & citalopram 40mg. They are
caz1967
in
British Heart Foundation
5 days ago
Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
7 days ago
PMR struggles and weight gain.
I was diagnosed with polymyalga Rhumatica November 2023 after a lot of discussion with several professionals as many of you know it was agony.Was put on 15mg of Steroids which didn’t touch the pain,this made the doctors think it wasn’t polymyalga.After second opinion put me on 30mg steroids which helped
I was diagnosed with polymyalga Rhumatica November 2023 after a lot of discussion with several professionals as many of you know it was agony.Was put on 15mg of Steroids which didn’t touch the pain,this made the doctors think it wasn’t polymyalga.After second opinion put me on 30mg steroids which helped
Catnap44
in
PMRGCAuk
8 days ago
Help - kindling?
As described in my other posts, my dopamine agonist withdrawal is awful. I suffer from DAWS, and I've done several stays in an hospital neurology service, and they are doing their best to help me, but something is awfully wrong. I got out of the hospital the day after yesterday. Yesterday, I had a
As described in my other posts, my dopamine agonist withdrawal is awful. I suffer from DAWS, and I've done several stays in an hospital neurology service, and they are doing their best to help me, but something is awfully wrong. I got out of the hospital the day after yesterday. Yesterday, I had a
Mikatrap
in
Restless Legs Syndrome
8 days ago
What dose of Gabapentin
Hello Lovely People I'm now down to 1/2 a tab of 0.08 pramipexole and got a prescription for 300mg of Gabapentin which I take 2 hours before bed. Ive been doing that for around a week now - as well as the iron every second night The thing is I wake up around 3 hours wanting to thrash around the bed
Hello Lovely People I'm now down to 1/2 a tab of 0.08 pramipexole and got a prescription for 300mg of Gabapentin which I take 2 hours before bed. Ive been doing that for around a week now - as well as the iron every second night The thing is I wake up around 3 hours wanting to thrash around the bed
Goagal
in
Restless Legs Syndrome
9 days ago
My response to the AASM Guidelines For RLS
I am posting this in the hope that it helps in forming your own response and if you agree with some of them, including them in your own response might help them pay more attention to them. ---------------------------------------------------------------------------------------------------------------
I am posting this in the hope that it helps in forming your own response and if you agree with some of them, including them in your own response might help them pay more attention to them. ---------------------------------------------------------------------------------------------------------------
SueJohnson
in
Restless Legs Syndrome
10 days ago
Refused Buprenorphine tablet's.
I thought that I would leave you all in peace for a while but I had a terrible day yesterday with the Buprenorphine patch itching my skin and then, last, night the RLS came back full force and I haven't slept. It was the 5th day of the patch so I assume it had worn off. I have a new patch today and feeling
I thought that I would leave you all in peace for a while but I had a terrible day yesterday with the Buprenorphine patch itching my skin and then, last, night the RLS came back full force and I haven't slept. It was the 5th day of the patch so I assume it had worn off. I have a new patch today and feeling
Danni54
in
Restless Legs Syndrome
10 days ago
How fast is brain iron deficiency restored after IV iron?
Hello everyone.In January I got transcranial sonography done and they found brain iron deficiency. I had ferritin at 150, TS at 30% so they gave me 500mg ferric carboxymaltose. We are planning to repeat it. My question is, those who had BID diagnosed, after how many infusions did RLS pain go away? Did
Hello everyone.In January I got transcranial sonography done and they found brain iron deficiency. I had ferritin at 150, TS at 30% so they gave me 500mg ferric carboxymaltose. We are planning to repeat it. My question is, those who had BID diagnosed, after how many infusions did RLS pain go away? Did
vikkkk
in
Restless Legs Syndrome
15 days ago
Pregabalin
Can one add gabapentin to pregabalin or is it better to stick to one. Also what is the highest dose of pregabalin. Is it 600mgs or is that too much. I'm now on 3000 mgs gabapentin and I'm still waking up with my leg. I'm going to change to pregabalin to see if it helps. If it doesn't help I will lessen
Can one add gabapentin to pregabalin or is it better to stick to one. Also what is the highest dose of pregabalin. Is it 600mgs or is that too much. I'm now on 3000 mgs gabapentin and I'm still waking up with my leg. I'm going to change to pregabalin to see if it helps. If it doesn't help I will lessen
Coeso
in
Restless Legs Syndrome
16 days ago
Dipyridamole working great
I started taking gabapentin 900mg at bedtime 15 yrs ago, recently switched to 600mg at 9pm and midnight. Not much benefit. Probably developed a tolerance over the years. Started tramadol 50-100mg at bedtime a month ago, some relief but was concerned about addiction with long term use. Showed the dipyridamole
I started taking gabapentin 900mg at bedtime 15 yrs ago, recently switched to 600mg at 9pm and midnight. Not much benefit. Probably developed a tolerance over the years. Started tramadol 50-100mg at bedtime a month ago, some relief but was concerned about addiction with long term use. Showed the dipyridamole
joemomma
in
Restless Legs Syndrome
17 days ago
Oxynorm
I have stage 4 Endo which has caused irreversible damage to my insides (largely due to it taking 15 years to diagnose) I’ve had to really battle and even get my MP involved to be allowed some stronger pain relief for flare ups. I have tramadol (for mild flares) and codeine and naproxen for daily pain
I have stage 4 Endo which has caused irreversible damage to my insides (largely due to it taking 15 years to diagnose) I’ve had to really battle and even get my MP involved to be allowed some stronger pain relief for flare ups. I have tramadol (for mild flares) and codeine and naproxen for daily pain
Lily1986
in
Endometriosis UK
18 days ago
insomnia
I have been off pramipexole for 2 weeks now but insomnia is terrible. I was prescribed lorazepam to help me sleep. It made my restless leg worse. So many meds aggravate it. Has codeine helped anyone. Tramadol helped me relax, but never a good sleep. Running out of things to try. And getting desperate
I have been off pramipexole for 2 weeks now but insomnia is terrible. I was prescribed lorazepam to help me sleep. It made my restless leg worse. So many meds aggravate it. Has codeine helped anyone. Tramadol helped me relax, but never a good sleep. Running out of things to try. And getting desperate
Saladl
in
Restless Legs Syndrome
19 days ago
Why don’t my Family understand what Fibro does to me?
Despite everything that I put in front of them and how much my GP has told my wife I still get sarcastic comments about when I just can’t push myself any further with doing things? I suppose it doesn’t help that in my 40’s I was almost ready to enter the over 40’s Bodybuilding novice championships! However
Despite everything that I put in front of them and how much my GP has told my wife I still get sarcastic comments about when I just can’t push myself any further with doing things? I suppose it doesn’t help that in my 40’s I was almost ready to enter the over 40’s Bodybuilding novice championships! However
Tisme72
in
Fibromyalgia Action UK
19 days ago
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