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Experiences with
Takayasu arteritis
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Severe deep knee pain both knees??? Cause
3.5 years of PMR, on 3.5 for a year now. For no apparent reason sudden onset of deep severe ache in both knees, worse when not moving, keeping me awake at night. My blood test was up to 10 which is unusual for me (erp..). It feels different from my PMR pain??, no history of injury..any idea??? Thanks
3.5 years of PMR, on 3.5 for a year now. For no apparent reason sudden onset of deep severe ache in both knees, worse when not moving, keeping me awake at night. My blood test was up to 10 which is unusual for me (erp..). It feels different from my PMR pain??, no history of injury..any idea??? Thanks
Kaaswinkel
in
PMRGCAuk
4 years ago
Baking Soda May Be What the Doctor Ordered for Rheumatoid Arthritis
Very interesting topic to know about - Baking Soda https://www.healthline.com/health-news/baking-soda-may-be-what-the-doctor-ordered-for-rheumatoid-arthritis
Very interesting topic to know about - Baking Soda https://www.healthline.com/health-news/baking-soda-may-be-what-the-doctor-ordered-for-rheumatoid-arthritis
Amy_Lee
in
NRAS
4 years ago
Arthritis surgery
I am about to have surgery for my arthritic foot & have been told that I must stop my medication: methotrexate & salfasalozine, for 2 weeks prior to surgery. I guessing other people have done this? What can I expect pain-wise & what have others done to relieve this?
I am about to have surgery for my arthritic foot & have been told that I must stop my medication: methotrexate & salfasalozine, for 2 weeks prior to surgery. I guessing other people have done this? What can I expect pain-wise & what have others done to relieve this?
KayteP
in
NRAS
4 years ago
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An update on inflammatory arthritis diagnosis
I finally had a face to face appointment with the rheumatologist a few days ago and he has diagnosed psoriatic arthritis based on me saying I have psoriasis in my scalp. The psoriasis had cleared I assume because I was on methotrexate. I have no symptoms in my hands or feet but fit in with the average
I finally had a face to face appointment with the rheumatologist a few days ago and he has diagnosed psoriatic arthritis based on me saying I have psoriasis in my scalp. The psoriasis had cleared I assume because I was on methotrexate. I have no symptoms in my hands or feet but fit in with the average
Surami2020
in
PMRGCAuk
4 years ago
Pneumonia
I was rushed into hospital on Saturday morning with pneumonia (though my bra was causing the pain) but the pain still got worse I didn't think you could get Pneumonia after having the injection, anyway whilst they were doing the tests they think I've got scaring on the lungs and sent me for a CT scan
I was rushed into hospital on Saturday morning with pneumonia (though my bra was causing the pain) but the pain still got worse I didn't think you could get Pneumonia after having the injection, anyway whilst they were doing the tests they think I've got scaring on the lungs and sent me for a CT scan
lifeboatann58
in
NRAS
4 years ago
Axial Spondyloarthritis?
Hi Guys and Gals. Just wondering if anyone on here has been diagnosd with Axial Spondyloarthritis. From 2009 - 2013 I had major spine surgery, in 2013 (my last surgery) I developed septicaemia which triggered my RD. 7 years on my back gives me unbelievable pain still and my consultant has said that
Hi Guys and Gals. Just wondering if anyone on here has been diagnosd with Axial Spondyloarthritis. From 2009 - 2013 I had major spine surgery, in 2013 (my last surgery) I developed septicaemia which triggered my RD. 7 years on my back gives me unbelievable pain still and my consultant has said that
Diamondpainting
in
NRAS
4 years ago
How we Cope with Our Conditions
I personally have 19 conditions, I have 5 arthritis or rheumatic conditions, so I suffer from constant pain throughout my body, which differs from day today. I have chest pain from osteoarthritis, fibromyalgia, chest infections & heart condition. I also suffer from pain in my toes, ankles, knees, hips
I personally have 19 conditions, I have 5 arthritis or rheumatic conditions, so I suffer from constant pain throughout my body, which differs from day today. I have chest pain from osteoarthritis, fibromyalgia, chest infections & heart condition. I also suffer from pain in my toes, ankles, knees, hips
disabledkenny1
in
Fibromyalgia Action UK
4 years ago
Hey, newbie here with a whole wirlwind hoping someone can advise me on.
Hey, im new to this site, from South Wales. i currently have an arteriovenus malformation (AVM) in my brain, degenerative disc disease since i was 16 for almost 12 years. i have rhumatoid arthritis along with psoriatic arthritis, ive got a whole host of other issues too. The GP prescribed Morphgesic
Hey, im new to this site, from South Wales. i currently have an arteriovenus malformation (AVM) in my brain, degenerative disc disease since i was 16 for almost 12 years. i have rhumatoid arthritis along with psoriatic arthritis, ive got a whole host of other issues too. The GP prescribed Morphgesic
rarebraindisease28
in
Pain Concern
4 years ago
Help research by taking an online survey
Want to help academic research come up with a new solution to safety caps for people with arthritis? You can help the research team, by filling out an online survey: https://bucks.onlinesurveys.ac.uk/mtsc-safer-cap For more information on the project, visit the project webpage: https://medtechsuperconnector.com
Want to help academic research come up with a new solution to safety caps for people with arthritis? You can help the research team, by filling out an online survey: https://bucks.onlinesurveys.ac.uk/mtsc-safer-cap For more information on the project, visit the project webpage: https://medtechsuperconnector.com
arthritis_action
Partner
in
Arthritis Action
4 years ago
MRI results
I've been having PMR symptoms since February, and finally just had x-rays and MRI (no contrast) done, to see if anything showed up - both came back clear. I understand that rules out osteoarthritis and rheumatoid arthritis, but would my clear MRI rule out PMR as well? My rheumatologist didn't mention
I've been having PMR symptoms since February, and finally just had x-rays and MRI (no contrast) done, to see if anything showed up - both came back clear. I understand that rules out osteoarthritis and rheumatoid arthritis, but would my clear MRI rule out PMR as well? My rheumatologist didn't mention
Anna135
in
PMRGCAuk
4 years ago
Is this hereditary?
I have GCA with
Takayasu
Arteritis
and my children have been asking whether it may be hereditary. Does anyone know whether any research has been undertaken to find out if it is and, if so, is it more likely to affect females or males?
I have GCA with
Takayasu
Arteritis
and my children have been asking whether it may be hereditary. Does anyone know whether any research has been undertaken to find out if it is and, if so, is it more likely to affect females or males?
MrsChips
in
PMRGCAuk
4 years ago
Baracinitib (Jak) or abatacept for lupus/rheumatoid arthritis?
Hi! Has anyone used the one of the above to treat their lupus/rheumatoid arthritis? What were your side effects if you had any? Would you recommend it? Do you know the possible long-term issues it may cause? Or if you have any information on these drugs please let me know! Thanks!
Hi! Has anyone used the one of the above to treat their lupus/rheumatoid arthritis? What were your side effects if you had any? Would you recommend it? Do you know the possible long-term issues it may cause? Or if you have any information on these drugs please let me know! Thanks!
Sandy1212
in
LUPUS UK
4 years ago
ALS or Pernicious Anemia
My mother was diagnose with ALS and died Sep 1997. I was diagnose with Pernicious Anemia 6 months ago. Could she have been misdiagnosed with ALS.
My mother was diagnose with ALS and died Sep 1997. I was diagnose with Pernicious Anemia 6 months ago. Could she have been misdiagnosed with ALS.
lavada12
in
Pernicious Anaemia Society
4 years ago
Christmas Shopping
At Rugby Fibromyalgia Support Group, we are trying to raise funds so that we can get our twice a week Hydrotherapy classes back up and running once the pandemic subsides. All of our participants are suffering more pain since we were forced to stop the classes when the pool closed last March. On Facebook
At Rugby Fibromyalgia Support Group, we are trying to raise funds so that we can get our twice a week Hydrotherapy classes back up and running once the pandemic subsides. All of our participants are suffering more pain since we were forced to stop the classes when the pool closed last March. On Facebook
releasethemagic
in
Fibromyalgia Action UK
4 years ago
No running
I have had quite a painful foot this week. My doctor yesterday thinks it's osteoarthritis in my big toe of all places. He's told me not to run for the next week. I'm so disappointed as since starting the Couch to 5k programme this year I love the freedom of running & feeling the wind in my hair
I have had quite a painful foot this week. My doctor yesterday thinks it's osteoarthritis in my big toe of all places. He's told me not to run for the next week. I'm so disappointed as since starting the Couch to 5k programme this year I love the freedom of running & feeling the wind in my hair
IzzyWiz
Graduate
in
Couch to 5K
4 years ago
Osteoarthritis
I have been prescribed Hydroxychloroquine for arthritis yesterday by my consultant, has anyone tried this medicine, he said they use it for malaria also I am a bit worried about taking it has anyone had this , as he said about the side effects ,one was they have to keep a check on your eyes ,as it may
I have been prescribed Hydroxychloroquine for arthritis yesterday by my consultant, has anyone tried this medicine, he said they use it for malaria also I am a bit worried about taking it has anyone had this , as he said about the side effects ,one was they have to keep a check on your eyes ,as it may
Indersisive71
in
Atrial Fibrillation Support
4 years ago
Ceramic Hip Replacement
Hello, I am due to have a ceramic hip replacement to my right hip next week, and if that is successful, I will have my left hip replaced in the coming months also. Has anyone else had this done? Would be interested to hear how you feel about it and how your recovery was/is. I am 38 and have been
Hello, I am due to have a ceramic hip replacement to my right hip next week, and if that is successful, I will have my left hip replaced in the coming months also. Has anyone else had this done? Would be interested to hear how you feel about it and how your recovery was/is. I am 38 and have been
Opals
in
Arthritis Action
4 years ago
5 day break but did 6 km today
Its not been the best week, nor the worst either. The arthritis flare up has really knocked the stuffing out of me and the weather has been miserable. I can cope with one or the other but both together just not conducive to running and so I have been giving myself the license not to run, but still
Its not been the best week, nor the worst either. The arthritis flare up has really knocked the stuffing out of me and the weather has been miserable. I can cope with one or the other but both together just not conducive to running and so I have been giving myself the license not to run, but still
Bogshuffler
Graduate
in
Couch to 5K
4 years ago
Probiotic to help with Acid reflux
Hi I am on injections for Rheumatoid arthritis. Doc prescribed 40mg Sandoz which isn't helping. I read taking a good probiotic can help but dont know which to choose any suggestions appreciated. Thank you.
Hi I am on injections for Rheumatoid arthritis. Doc prescribed 40mg Sandoz which isn't helping. I read taking a good probiotic can help but dont know which to choose any suggestions appreciated. Thank you.
MIckeyrow
in
Cure Arthritis Community
4 years ago
Eye sensitivity
Was diagnosed with fibro 2 yrs ago also have osteoarthritis osteoporosis and high blood pressure.Having trouble with eyes they are very sensitive to sun and bright lights in certain shops.I read that vit d deficiency can cause this but doc already has me on vit d since last year as it was low .Does anyone
Was diagnosed with fibro 2 yrs ago also have osteoarthritis osteoporosis and high blood pressure.Having trouble with eyes they are very sensitive to sun and bright lights in certain shops.I read that vit d deficiency can cause this but doc already has me on vit d since last year as it was low .Does anyone
Sauceman
in
Fibromyalgia Action UK
4 years ago
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