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Takayasu arteritis
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feeling a little hopeless!
hi all, First time posting on here! I have been reading all the threads and finding lots of comfort, so thought I’d reach out. I was diagnosed with psoriatic arthritis in mid-March. It took almost three years to get my diagnosis due to my symptoms not “fitting in a box” (words of the Rheumy nurse
hi all, First time posting on here! I have been reading all the threads and finding lots of comfort, so thought I’d reach out. I was diagnosed with psoriatic arthritis in mid-March. It took almost three years to get my diagnosis due to my symptoms not “fitting in a box” (words of the Rheumy nurse
Becrosep
in
NRAS
3 months ago
Can I take predisolone for PMR and have shockwave therapy for foot arthritis. Or will one affect the other?
Can I take predisolone for PMR and have shockwave therapy for foot arthritis. Or will one affect the other?
Can I take predisolone for PMR and have shockwave therapy for foot arthritis. Or will one affect the other?
Sumojo
in
PMRGCAuk
8 months ago
Patients with higher apolipoprotein A-I levels at greater risk for giant cell arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
perceptual63
in
PMRGCAuk
5 months ago
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Newbi
I'm 54 and have been trying to lose weight for a years. I take medication for depression and have arthritis which resulted in two joints replacements.Starting weight - 195 Last weeks weight - 198 Weight loss- 3 lbs Total loss- 5 lbs
I'm 54 and have been trying to lose weight for a years. I take medication for depression and have arthritis which resulted in two joints replacements.Starting weight - 195 Last weeks weight - 198 Weight loss- 3 lbs Total loss- 5 lbs
Jerry02
2023 December
in
Weight Loss Support
8 months ago
Over 50
I have been struggling withy weight for years. I started putting on weight when I started depression medication. Now I'm over 50 still battling obesity. Growing up I was very active,but that has decreased due arthritis and joint replacements. I'm starting a new year looking for support from others.
I have been struggling withy weight for years. I started putting on weight when I started depression medication. Now I'm over 50 still battling obesity. Growing up I was very active,but that has decreased due arthritis and joint replacements. I'm starting a new year looking for support from others.
Jerry02
2023 December
in
Weight Loss Support
8 months ago
rheumatoid arthritis
Has anyone had an operation on elbow from rheumatoid arthritis? Did it help?
Has anyone had an operation on elbow from rheumatoid arthritis? Did it help?
65_women
in
NRAS
4 months ago
unexplained chest pain and shortness of breath .
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
Susiequest
in
NRAS
4 months ago
psoriatic arthritis
Does anyone know what the next drug is if Methotrexate and Sulfasalazine do not work for psoriatic arthritis and psoriasis after three months????
Does anyone know what the next drug is if Methotrexate and Sulfasalazine do not work for psoriatic arthritis and psoriasis after three months????
Beata0102
in
NRAS
6 months ago
Low blood pressure
I have GCA with
Takayasu
Arteritis
. I am taking Clopidogrel/ Atorvastatin/ Bisoprolol/ Tocilizumab (3 monthly), yesterday my blood pressure was 92/80. It was taken at the hospital as the doctor’s surgery can’t find it, or my pulse. I emailed my Dr with the result, and she rang me today.
I have GCA with
Takayasu
Arteritis
. I am taking Clopidogrel/ Atorvastatin/ Bisoprolol/ Tocilizumab (3 monthly), yesterday my blood pressure was 92/80. It was taken at the hospital as the doctor’s surgery can’t find it, or my pulse. I emailed my Dr with the result, and she rang me today.
MrsChips
in
Vasculitis UK
1 year ago
Tapering
Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist told me to go up to 7.5mg. The flare abated. I then got an infection/virus and on the advice of the rheumatology nurses increased to 10mg for a
Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist told me to go up to 7.5mg. The flare abated. I then got an infection/virus and on the advice of the rheumatology nurses increased to 10mg for a
Noni71
in
PMRGCAuk
5 months ago
Aortitis
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
Dance62
in
PMRGCAuk
6 months ago
rheumatoid arthritis
It’s been called arthritis but it’s not in joints but it’s a pain around my chest and back. X-ray and Ct scan have not reveal anything. GP says let’s try to control the pain first
It’s been called arthritis but it’s not in joints but it’s a pain around my chest and back. X-ray and Ct scan have not reveal anything. GP says let’s try to control the pain first
Bncc
in
PMRGCAuk
8 months ago
Septic Arthritis
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Mummyto2x
in
NRAS
7 months ago
Osteoarthritis in feet ?
A quick question !!I have Osteoarthritis in my feet , worse is my right foot. This makes me limp constantly and use a walking aid all of the time. I have used a walking aid for around 4 months but realistically I could have , should used one wayyyy before that, but was embarrassed too. My Rheumatology
A quick question !!I have Osteoarthritis in my feet , worse is my right foot. This makes me limp constantly and use a walking aid all of the time. I have used a walking aid for around 4 months but realistically I could have , should used one wayyyy before that, but was embarrassed too. My Rheumatology
Frenchi88
in
Fibromyalgia Action UK
8 months ago
Pain and frustration 😟
Hello everyone, Having finally dropped from 5mg to 4.5mg I am now in my fourth week. I have no shoulder or arm pain and was beginning to feel like I’ve finally cracked the 5mg barrier(third time lucky). I’ve had PMR for 2years and 9 months. However, my legs feel in constant pain and I don’t feel
Hello everyone, Having finally dropped from 5mg to 4.5mg I am now in my fourth week. I have no shoulder or arm pain and was beginning to feel like I’ve finally cracked the 5mg barrier(third time lucky). I’ve had PMR for 2years and 9 months. However, my legs feel in constant pain and I don’t feel
Pangolin43
in
PMRGCAuk
8 months ago
Advice on back pain & pred dosing...
Morning, i joined this group a few months ago and find it so useful even though I don't have pmr. I do have tertiary adrenal insufficiency, ulcerative colitis, osteoarthritis and fibromyalgia and possibly pots. In the last 2 years after having covid twice I developed cushing symptom due to over replacement
Morning, i joined this group a few months ago and find it so useful even though I don't have pmr. I do have tertiary adrenal insufficiency, ulcerative colitis, osteoarthritis and fibromyalgia and possibly pots. In the last 2 years after having covid twice I developed cushing symptom due to over replacement
Ruthie64
in
PMRGCAuk
8 months ago
RA complicated by arthritis in knees
Morning, so I have increasing pain in knees, worse on left. Diagnosed with Degenerate Oesteo-Arthritis in both knees, treatment for which is steroid injection, for time being, but ultimately will need knee replacement surgery. My question is, does anyone have tips to reduce pain & swelling & preserve
Morning, so I have increasing pain in knees, worse on left. Diagnosed with Degenerate Oesteo-Arthritis in both knees, treatment for which is steroid injection, for time being, but ultimately will need knee replacement surgery. My question is, does anyone have tips to reduce pain & swelling & preserve
Mama-K
in
NRAS
8 months ago
Spirulina and Chlorella
Hi, i was diagnosed with Rheumatoid arthritis 5 years ago and I'm on methotrexate and hydroxycloroquine. I'm was hoping to start taking spirulina and chlorella as they have so many health benefits but I not sure of any drug interactions. I've tried Google but I'm getting conflicting advice, some say
Hi, i was diagnosed with Rheumatoid arthritis 5 years ago and I'm on methotrexate and hydroxycloroquine. I'm was hoping to start taking spirulina and chlorella as they have so many health benefits but I not sure of any drug interactions. I've tried Google but I'm getting conflicting advice, some say
Maple1981
in
NRAS
4 months ago
Even more confused?
Thank you for replies to an earlier post, very much appreciated 💗 So...been to see rheumatologist who has asked me to repeat ANA and anti DSDNA. Results first ones were AnA..1/640 homogeneous Ds Dsdna ab (Elia test) 16(high) As the anti dsdna test was just positive or low positive he wanted me to
Thank you for replies to an earlier post, very much appreciated 💗 So...been to see rheumatologist who has asked me to repeat ANA and anti DSDNA. Results first ones were AnA..1/640 homogeneous Ds Dsdna ab (Elia test) 16(high) As the anti dsdna test was just positive or low positive he wanted me to
Cushties
in
LUPUS UK
8 months ago
Have I got RA ?
Hi I have been taking Prednisolone for PMR for 18 months and now on 5mg each morning under the care of a Rhuematologist . I have had Osteoarthritis for a good few years mainly in my finger joints . My Dr is now questioning if I have RA because my middle finger on the right hand is markedly more swollen
Hi I have been taking Prednisolone for PMR for 18 months and now on 5mg each morning under the care of a Rhuematologist . I have had Osteoarthritis for a good few years mainly in my finger joints . My Dr is now questioning if I have RA because my middle finger on the right hand is markedly more swollen
5goFlotilla
in
NRAS
8 months ago
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