Experiences with

Takayasu arteritis

May - Day 27 Vasculitis Awareness Month Takayasu Arteritis (TAK) is a rare type of vasculitis affecting mostly young females, even children. It can be very complex and it is essential to be under specialist care. Take a moment to read Kelsey - Leigh's story!

Takayasu Arteritis is a rare type of Vasculitis with the initial symptoms arising in those between 5 and 40 years of age. It affects mostly females. Take a moment to read Sarah's story!

I have come across Takayasu arteritis as a possible diagnosis. I value your thoughts and opinions. Thank you for being there.

have people on here been prescribed methotrexate for severe pain hands, wrists fingers all joints really hip( need replacement apparently) when diagnosed with osteoarthritis? And told no longer havebpmr, but still on 4 mgs pred and drs want me to continue tapering?

Good Morning All I have RA which is quite severe in my hands and wrists. I have recently purchased two blue stress balls from eBay which were really cheap. I have been squeezing the stress balls ten times, three times a day and thought that I would share my experience with you as it really is starting

With a variety of symptoms, including 'pins and needles' in my feet, leg and hip pain, general aches and pains ( on top of my existing asthma, levothyroxine treatment and Amlodopine for slightly raised blood pressure) I was diagnosed with PMR in summer 2023. Since then I've been told that the problem

hello everyone, thank you for your support over the last eight months. I saw the consultant rheumatologist yesterday and he confirmed that he thought it was PMR. All my symptoms and pet scan seem to agree with that however I’m resistant steroids so that’s a complication.. he said it is possible but

I can only assume my GP has now received the podiatry report and MRI results of my recent right foot and ankle which shows extensive osteoarthritis in my mid foot. I'm still under podiatry and they will be attempting a guided steroid injection into my foot at some point. I got a phone call yesterday

Hi, I suffer from arthritis and on Rituximab and methotrexate, so you’d think that I would be pain free all of the time 😬 but I’ve started to go for 30 minute walks but my back starts to seize up and hurt when I walk. Any tips on what to do to prevent this? (I’ve tried painkillers and things like rubs

Have posted a lot re pain moans and groans, at 4 mgs since May this year, diagnosed with osteoarthritis , severe in hip, ortho dr says need hip replacement, also in hands, and most of time pain in other joints, wrist ankles etc, but would this condition cause muscles all over body to hurt, not an ache

So today, I got the best news me and my family have had for a long time.. I'm in Remission, my CRP is 1 with no active disease. After 22 years and last year being one of the worst years I've ever experienced in my RA lifetime I can say I'm GOOD!I'm on Rituximab , which I started in August 2023, and

This is research from the Leeds Institute of Rheumatic and Musculoskeletal Medicine and others which found that MTX provided significant pain reduction after 6 months, https://pubmed.ncbi.nlm.nih.gov/39074374/ Many PMR patients with OA seem to find considerable relief with pred but then become aware

has anyone found taking tumeric capsules, for severe osteoarthris helpful, while still on prednisone , originally diagnosed woth pmr 8! Yrs ago, now 4 mgs, but chronic pain from arthritis , hip, ankles, wrists,,hands fingers

Hi everyone hope your doing ok. I applied for a blue badge with out having the mobility part of pip. I have recently been diagnosed with severe degenerative arthritis in my knee, as well as having fibromyalgia. I have an assessment next week and just wondered if anyone as had one, and what to expect

I'm starting with a new NHS rheumatologist, saw her for the first visit last week. On the same day I saw a new gerontologist, an 'Elderly Medicine' specialist. Both questioned the PMR diagnosis I was given five years ago. My recent bloods are nearly all "in range". The initially raised inflammatory

I have APS, Sjogren's, hypothyroidism, aspergillus tracheobronchitis, osteoporosis and osteoarthritis. And I'm totally sick of doctors. Whether GPs (the pits) or consultants. There has to be a better route to health. Can anyone recommend, from personal experience, a functional or integrated doctor

Hi I have had sero-positive RA for about 7yrs. I did not develop it until I was in my 60's. It came on quickly whilst loading a mule onto a trailer she pulled back and bingo a very red and painful wrist. I am now on Tocilizumab 4 weekly infusion which seems to control it beautifully. Gone are the nodules

seems i feel both with chronic pain, muscles and joint pain daily , all day

Is there anyone on here that has not taken any vaccines. I would love to hear from you and how you have kept protected etc. I have RA and currently on 2 weekly Amgevita injections and painkillers..I also suffer with osteoarthritis, and Bronchiectasis. I only had first 2 covid then decided against more

How do I know if it's PMA or Arthritis? I'm tapering nicely with my pred . I have arthritis in my hands but my knees and hips are starting to ache. My hands are worse than they were but how do I know if the rest are one or the other?