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Takayasu arteritis
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May is vasculitis awareness month
Takayasu
Arteritis
is a rare type of Vasculitis with the initial symptoms arising in those between 5 and 40 years of age. It affects mostly females. Take a moment to read Sarah's story!
Takayasu
Arteritis
is a rare type of Vasculitis with the initial symptoms arising in those between 5 and 40 years of age. It affects mostly females. Take a moment to read Sarah's story!
zoe69
Vasculitis UK
in
Vasculitis UK
2 months ago
May - Vasculitis Awareness Month
May - Day 27 Vasculitis Awareness Month
Takayasu
Arteritis
(TAK) is a rare type of vasculitis affecting mostly young females, even children. It can be very complex and it is essential to be under specialist care. Take a moment to read Kelsey - Leigh's story!
May - Day 27 Vasculitis Awareness Month
Takayasu
Arteritis
(TAK) is a rare type of vasculitis affecting mostly young females, even children. It can be very complex and it is essential to be under specialist care. Take a moment to read Kelsey - Leigh's story!
zoe69
Vasculitis UK
in
Vasculitis UK
2 months ago
Increasing Prednisone to 40 mg?
I have come across
Takayasu
arteritis
as a possible diagnosis. I value your thoughts and opinions. Thank you for being there.
I have come across
Takayasu
arteritis
as a possible diagnosis. I value your thoughts and opinions. Thank you for being there.
Moaningxcat
in
PMRGCAuk
2 months ago
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Arthritic hands
l have had Arthritis for many many years, but recently it has got worse. Hands being the most difficult to deal with. Over the years I have bought gloves purporting to be a great help, but I have not found any that are a help at all. Can any members give me a guide on gloves , that they have found to
l have had Arthritis for many many years, but recently it has got worse. Hands being the most difficult to deal with. Over the years I have bought gloves purporting to be a great help, but I have not found any that are a help at all. Can any members give me a guide on gloves , that they have found to
Lybra
in
Arthritis Action
2 days ago
Positive rheumatoid factor and CCP
Hi ,Will try to make a long story short. In 2018 I had a RF of 381 at the time was told its not RA but osteoarthritis and my raised RF was due to my dad having severe RA so no treatment. Just over 6 weeks ago I had pain in hands so went to GP who did blood tests my RF is now 945.4 a ccp blood test has
Hi ,Will try to make a long story short. In 2018 I had a RF of 381 at the time was told its not RA but osteoarthritis and my raised RF was due to my dad having severe RA so no treatment. Just over 6 weeks ago I had pain in hands so went to GP who did blood tests my RF is now 945.4 a ccp blood test has
nomoney
in
NRAS
4 days ago
PMR flare or not…
morning all I really don’t know what to do atm. I did a slow taper down to 2.5mg Pred and at the same time I thought I’d pulled my knee doing an exercise class as my knee swelled up & felt very sore (about 6 weeks ago this started) The GP thought it was arthritis but the physio she referred me
morning all I really don’t know what to do atm. I did a slow taper down to 2.5mg Pred and at the same time I thought I’d pulled my knee doing an exercise class as my knee swelled up & felt very sore (about 6 weeks ago this started) The GP thought it was arthritis but the physio she referred me
Doraflora
in
PMRGCAuk
5 days ago
The age thing...
I just read someone's issue with their rheumatologist denying PMR due to her age and that brings up something I've been wondering about. When I was going through a divorce at age 27, in an extreme amount of stress, I developed pain in neck, lower back and both hips. Over the years knee & shoulder pain
I just read someone's issue with their rheumatologist denying PMR due to her age and that brings up something I've been wondering about. When I was going through a divorce at age 27, in an extreme amount of stress, I developed pain in neck, lower back and both hips. Over the years knee & shoulder pain
79andCounting
in
PMRGCAuk
6 days ago
does physio help
I’m a 73yr old woman who has had PMR for nearly three years. I started at 15mg of Pred reducing slowly so that I’m now on 1.5mg. My doctor tells me this is a marathon not a sprint! However I now have very stiff shoulders and neck not to mention heavy legs and stiff hand particularly when I awake. I went
I’m a 73yr old woman who has had PMR for nearly three years. I started at 15mg of Pred reducing slowly so that I’m now on 1.5mg. My doctor tells me this is a marathon not a sprint! However I now have very stiff shoulders and neck not to mention heavy legs and stiff hand particularly when I awake. I went
Gacaro
in
PMRGCAuk
6 days ago
New food intolerance
Ok, this is a bit odd, but since I got seronegative arthritis I have also developed more food sensitivity/intolerance, the most extreme being rocket leaves, which I've had twice since my diagnosis and on both occasions had severe stomach pain and vomiting. Never had that problem before I got arthritis
Ok, this is a bit odd, but since I got seronegative arthritis I have also developed more food sensitivity/intolerance, the most extreme being rocket leaves, which I've had twice since my diagnosis and on both occasions had severe stomach pain and vomiting. Never had that problem before I got arthritis
Fluffontoast
in
NRAS
6 days ago
Confused about PMR, arthritis and effects of pred.
I'll try to keep this brief but may have to add more details later. We had to cancel our holiday on the day of departure (5th July) due to a sudden severe pain in my left hip, only on movement. I could hardly walk and hubby had to help me down the stairs. I am on half mg of pred and recently was discharged
I'll try to keep this brief but may have to add more details later. We had to cancel our holiday on the day of departure (5th July) due to a sudden severe pain in my left hip, only on movement. I could hardly walk and hubby had to help me down the stairs. I am on half mg of pred and recently was discharged
Broseley
in
PMRGCAuk
9 days ago
Inflammatory Arthritis
Hello everyone, I was diagnosed with inflammatory arthritis this past October and the rheumatologist tried to put me on Methotroxate and I kindly declined after seeing all the negative reviews about it. I’m only 31 years old and have to get fluid drained off of my knee at least 1-2 times a year. Has
Hello everyone, I was diagnosed with inflammatory arthritis this past October and the rheumatologist tried to put me on Methotroxate and I kindly declined after seeing all the negative reviews about it. I’m only 31 years old and have to get fluid drained off of my knee at least 1-2 times a year. Has
rms3377
in
NRAS
10 days ago
Pain worse - but is it inflammatory arthritis, the osteoarthritis or fibromyalgia - or all 3?
Hi,I was diagnosed with OA about a year ago, hips, knees and hands. Also fibromyalgia in December and Inflammatory arthritis in April. Am on methotrexate metoject, and nothing else but one cocodamol and naproxen. My symptoms, especially pain, stiffness and fatigue seem to be worsening. But I can't figure
Hi,I was diagnosed with OA about a year ago, hips, knees and hands. Also fibromyalgia in December and Inflammatory arthritis in April. Am on methotrexate metoject, and nothing else but one cocodamol and naproxen. My symptoms, especially pain, stiffness and fatigue seem to be worsening. But I can't figure
hazelcats
in
NRAS
10 days ago
Anca vasculitis
I have had this illness about seven years now and am not having infusions now though I do have an injection of methotrexate every week. I live a quite busy life but am always tired as vasculitis gives me chronic fatigue and bad pains in joints. Now apparently a lot of the pain is I'm told arthritis
I have had this illness about seven years now and am not having infusions now though I do have an injection of methotrexate every week. I live a quite busy life but am always tired as vasculitis gives me chronic fatigue and bad pains in joints. Now apparently a lot of the pain is I'm told arthritis
Westley
in
Vasculitis UK
10 days ago
degenerate spine pain and steroids
a simple question that’s in my mind, but hubby with chronic pain (either arthritis in the hip and/or pain from his degenerative spine) I just wonder why Prednisolone isn’t offered as a pain relief med?
a simple question that’s in my mind, but hubby with chronic pain (either arthritis in the hip and/or pain from his degenerative spine) I just wonder why Prednisolone isn’t offered as a pain relief med?
Doraflora
in
PMRGCAuk
11 days ago
Testing for other rheumatic conditions besides PMR?
My one diagnosis, September 2019, was PMR. At no time has any rheumatologist suggested I be examined to see if I have Rheumatic arthritis as well, and if so what that may mean for treatments, if any. Until this spring I've had few symptoms of what I think may be classified as arthritis - my fingers
My one diagnosis, September 2019, was PMR. At no time has any rheumatologist suggested I be examined to see if I have Rheumatic arthritis as well, and if so what that may mean for treatments, if any. Until this spring I've had few symptoms of what I think may be classified as arthritis - my fingers
Bennijax
in
PMRGCAuk
15 days ago
Shoes wider ?
Like my hands, my toes are now badly deformed and I'm struggling to get even wide shoes on. Can anyone advise where to get nice looking shoes for arthritis feet ? I really don't want surgery if I can avoid it.
Like my hands, my toes are now badly deformed and I'm struggling to get even wide shoes on. Can anyone advise where to get nice looking shoes for arthritis feet ? I really don't want surgery if I can avoid it.
RootsToots
in
NRAS
15 days ago
steroid (Depo
hi all! I have really active Rheumatoid Arthritis and I’ve just had a steroid injection 120ml feeling a little tired after it and a bit of headache is it normal? And do these injections actually work your own story’s will be hugely appreciated Thanks 😊
hi all! I have really active Rheumatoid Arthritis and I’ve just had a steroid injection 120ml feeling a little tired after it and a bit of headache is it normal? And do these injections actually work your own story’s will be hugely appreciated Thanks 😊
Mybirthday1975
in
NRAS
16 days ago
Are you a parent with Inflammatory Arthritis?
Having inflammatory arthritis can be hard, add to this the ‘joys’ of raising children and the challenges can begin to pile up. As a parent with IA, it can get frustrating, and you aren’t alone if you feel this way. We’d love to have you join our Parenting with IA meeting, a safe space for you to laugh
Having inflammatory arthritis can be hard, add to this the ‘joys’ of raising children and the challenges can begin to pile up. As a parent with IA, it can get frustrating, and you aren’t alone if you feel this way. We’d love to have you join our Parenting with IA meeting, a safe space for you to laugh
karenf-NRAS
Administrator
in
NRAS
16 days ago
Working with inflammatory arthritis
Hi, I missed the Working with Inflammatory Arthritis online meeting on 17th June 2024, Does anyone know if this was recorded & if so where I could listen. Thank you very much
Hi, I missed the Working with Inflammatory Arthritis online meeting on 17th June 2024, Does anyone know if this was recorded & if so where I could listen. Thank you very much
cosmos55
in
NRAS
16 days ago
P I P decision
Hi, any advice please , to help my decision for PIP. Its just been turned down. I have osteoarthritis and fibromyalgia now for over 20 years, I applied as a friend said I should try. I feel because I still work as a cleaner 15 hours a week , that was the reason it was turned down. Each day can be different
Hi, any advice please , to help my decision for PIP. Its just been turned down. I have osteoarthritis and fibromyalgia now for over 20 years, I applied as a friend said I should try. I feel because I still work as a cleaner 15 hours a week , that was the reason it was turned down. Each day can be different
Taylor68
in
Fibromyalgia Action UK
17 days ago
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