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Experiences with
Takayasu arteritis
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Mobility issues
I have scleroderma, lupus, osteoarthritis, sero negative arthritis, myelopathy, antiphosphilipid syndrome and a bunch of horrible other stuff. For the last 18 months I have struggled around on painful joints and spent days sitting on benches whilst my family go off and enjoy themselves without me and
I have scleroderma, lupus, osteoarthritis, sero negative arthritis, myelopathy, antiphosphilipid syndrome and a bunch of horrible other stuff. For the last 18 months I have struggled around on painful joints and spent days sitting on benches whilst my family go off and enjoy themselves without me and
PickledGinger
in
LUPUS UK
5 years ago
Mobility issues
I have scleroderma, lupus, osteoarthritis, sero negative arthritis, myelopathy, antiphosphilipid syndrome and a bunch of horrible other stuff. For the last 18 months I have struggled around on painful joints and spent days sitting on benches whilst my family go off and enjoy themselves without me and
I have scleroderma, lupus, osteoarthritis, sero negative arthritis, myelopathy, antiphosphilipid syndrome and a bunch of horrible other stuff. For the last 18 months I have struggled around on painful joints and spent days sitting on benches whilst my family go off and enjoy themselves without me and
PickledGinger
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Adalimumab injection for RA
Hi all, I've got rheumatoid arthritis, I've had it for years. After a major OP last year (which I talked on here and had lovely support) the trauma to my body set of RA more and I was diagnosed with fibromyalgia. Methotrexate didn't work, just got horrible side effects and I'm not on sulfasalazine and
Hi all, I've got rheumatoid arthritis, I've had it for years. After a major OP last year (which I talked on here and had lovely support) the trauma to my body set of RA more and I was diagnosed with fibromyalgia. Methotrexate didn't work, just got horrible side effects and I'm not on sulfasalazine and
Caz-1
in
NRAS
5 years ago
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B..... weather!!
Today it has been 96% humidity - great for arthritis!! Just wanted to let you all know I'm in agony!🥴😂
Today it has been 96% humidity - great for arthritis!! Just wanted to let you all know I'm in agony!🥴😂
Constance13
in
PMRGCAuk
5 years ago
RA and amgevita/humira Injection 😑
Hi all, I've got rheumatoid arthritis, I've had it for years. After a major OP last year (which I talked on here and had lovely support) the trauma to my body set of RA more and I was diagnosed with fibromyalgia. Methotrexate didn't work, just got horrible side effects and I'm not on sulfasalazine and
Hi all, I've got rheumatoid arthritis, I've had it for years. After a major OP last year (which I talked on here and had lovely support) the trauma to my body set of RA more and I was diagnosed with fibromyalgia. Methotrexate didn't work, just got horrible side effects and I'm not on sulfasalazine and
Caz-1
in
NRAS
5 years ago
How to get my rheumatolgist to listen to me.
I started going to see a rheumatologist eight years ago and she was lovely and really tried to help me by trying various medications etc. She said that she wanted to work out which kind of arthritis I had and that it was definitely a form of inflammatory arthritis. Sadly she left the hospital to work
I started going to see a rheumatologist eight years ago and she was lovely and really tried to help me by trying various medications etc. She said that she wanted to work out which kind of arthritis I had and that it was definitely a form of inflammatory arthritis. Sadly she left the hospital to work
Hidden
in
NRAS
5 years ago
What happens prior to Fybro flare
I wonder if anyone has the same experiences as I do, prior to Fybro flare my urine output slows and I start to become swollen (I also have psoriatic arthritis) in my joints, then my thighs, ankles and wrists. Then the pains. I am really lucky as I have injections of 120mg Depomedrone twice a year, they
I wonder if anyone has the same experiences as I do, prior to Fybro flare my urine output slows and I start to become swollen (I also have psoriatic arthritis) in my joints, then my thighs, ankles and wrists. Then the pains. I am really lucky as I have injections of 120mg Depomedrone twice a year, they
Tikaneko
in
Fibromyalgia Action UK
5 years ago
Rash on face
Morning lovely Lupies. Hope you are all ok on this cold morning? I was diagnosed with Lupus 31 years ago. I have also recently in July been diagnosed with Rheumatoid arthritis and osteoarthritis. For the last few days my face has been painful with a sense of a burning rash across my cheeks and nose mostly
Morning lovely Lupies. Hope you are all ok on this cold morning? I was diagnosed with Lupus 31 years ago. I have also recently in July been diagnosed with Rheumatoid arthritis and osteoarthritis. For the last few days my face has been painful with a sense of a burning rash across my cheeks and nose mostly
Summerrain14
in
LUPUS UK
5 years ago
Update on previous post but cannot find it 🙄
Update MRI shows no new stroke so going with a flare up of gca. Back up to 20 mg pred daily and feeling loads better. My consultant is going to start me on tocilizumab soon just waiting for appointment. Weird symptoms for a flare and she's still suspicious of tia but hey as she keeps telling me I'm
Update MRI shows no new stroke so going with a flare up of gca. Back up to 20 mg pred daily and feeling loads better. My consultant is going to start me on tocilizumab soon just waiting for appointment. Weird symptoms for a flare and she's still suspicious of tia but hey as she keeps telling me I'm
Pamela60
in
PMRGCAuk
5 years ago
New diagnosis
Hello again. I had a meeting with my Rheumatologist yesterday. It's now six weeks since I stopped taking prednisolone. My latest esr and crp were both normal, and based on this, the diagnosis had now switched to fibromyalgia with a bit of osteoarthritis thrown in. The consultant says that there's nothing
Hello again. I had a meeting with my Rheumatologist yesterday. It's now six weeks since I stopped taking prednisolone. My latest esr and crp were both normal, and based on this, the diagnosis had now switched to fibromyalgia with a bit of osteoarthritis thrown in. The consultant says that there's nothing
Linda3009
in
PMRGCAuk
5 years ago
Apremilast/Ortezia
Hi everyone, My RA diagnosis is gradually changing to possible Psioritic Arthritis due to a scabby dry bit on my scalp that has developed. Having tried a wide range of DMARDS and Biologics and had bad reactions to them all regarding nausea and vomiting and not a great deal of benefit, I have had a
Hi everyone, My RA diagnosis is gradually changing to possible Psioritic Arthritis due to a scabby dry bit on my scalp that has developed. Having tried a wide range of DMARDS and Biologics and had bad reactions to them all regarding nausea and vomiting and not a great deal of benefit, I have had a
gillianf
in
NRAS
5 years ago
Help with advice on PIP assessment
I need help and advice. I am having my PIP assessment on Friday. I have Fibro, Rheumatoid and oesto arthritis and recovering from thyroid cancer. I have no idea what to expect or what they are looking for. I also have a bad back and have nerve ablation nearly every year I am so scared
I need help and advice. I am having my PIP assessment on Friday. I have Fibro, Rheumatoid and oesto arthritis and recovering from thyroid cancer. I have no idea what to expect or what they are looking for. I also have a bad back and have nerve ablation nearly every year I am so scared
Ardea
in
Fibromyalgia Action UK
5 years ago
Flare
PMR, FIBRO, GCA I went down from 2mg Rayos (Prednisone) to 1mg Rayos. Wow...burning pain in buttocks, painful stiff hips, mood swings, extreme fatigue. I went back up to 2mg Rayos. Everything has gotten better except for extreme fatigue. So frustrating...now I am back to chair yoga trying to improve
PMR, FIBRO, GCA I went down from 2mg Rayos (Prednisone) to 1mg Rayos. Wow...burning pain in buttocks, painful stiff hips, mood swings, extreme fatigue. I went back up to 2mg Rayos. Everything has gotten better except for extreme fatigue. So frustrating...now I am back to chair yoga trying to improve
Dream21
in
PMRGCAuk
5 years ago
Psoriatic arthritis /osteoarthritis .. wondering if anyone can help me, I've been on methotrexate 15mg for 11 weeks
I'm feeling no benefits from taking them at the moment, feeling sick for 2 /3 days of and on after taking them but no signs of improvment in my joints (feet hands ) in fact my shoulders now hurt as well more than before starting MTX , should I keep going on the medication, hospital not until November
I'm feeling no benefits from taking them at the moment, feeling sick for 2 /3 days of and on after taking them but no signs of improvment in my joints (feet hands ) in fact my shoulders now hurt as well more than before starting MTX , should I keep going on the medication, hospital not until November
Kaz13A
in
NRAS
5 years ago
PET-CT Scan for LVV
Hi all, I am suspected of having LVV, specifically
Takayasu
Arteritis
. My rheumatologist is letting me choose between a PET-CT Scan or an MRA. I don’t know which to do. I think the PET-CT would be more extensive, but one thing that worries me is that the radiation could make my flare worse.
Hi all, I am suspected of having LVV, specifically
Takayasu
Arteritis
. My rheumatologist is letting me choose between a PET-CT Scan or an MRA. I don’t know which to do. I think the PET-CT would be more extensive, but one thing that worries me is that the radiation could make my flare worse.
miacloud
in
Vasculitis UK
5 years ago
rheumatoid arthritis
Hi All, I have been recently diagnosed with rheumatoid arthritis. I have been prescribed Prednisolone. I have read about it. The side effects dounds crazy. I feeling very anxious about taking the mediation. I am on 20mg Prednisolone. Any advice please. Thank you
Hi All, I have been recently diagnosed with rheumatoid arthritis. I have been prescribed Prednisolone. I have read about it. The side effects dounds crazy. I feeling very anxious about taking the mediation. I am on 20mg Prednisolone. Any advice please. Thank you
Rose75
in
NRAS
5 years ago
rheumatoid arthritis
Hi All, I was wondering if anyone is on Prednisolone for rheumatoid arthritis. I have been recently diagnosed with Rheumatoid arthritis. I have read about the side effects . I am feeling very a anxious taking the mediation. I would like to if anyone has had a positive experience. Thank you
Hi All, I was wondering if anyone is on Prednisolone for rheumatoid arthritis. I have been recently diagnosed with Rheumatoid arthritis. I have read about the side effects . I am feeling very a anxious taking the mediation. I would like to if anyone has had a positive experience. Thank you
Rose75
in
Arthritis Action
5 years ago
Hiya lm a women of 66 , I have arthritis, siatica and I have hot sweats. I’m on a lot of pain killers
I’m a woman of 66,I have siatica, and arthritis,and have hot sweats lm on a lot of pain killers
I’m a woman of 66,I have siatica, and arthritis,and have hot sweats lm on a lot of pain killers
Hidden
in
Pain Concern
5 years ago
Weight gain
Thanks t Tuesday Trimmerd for support with weight increase Not too worried as it was the OH birthday and I think joint a bit swollen with arthritis. Still this is another week to carry on the battle
Thanks t Tuesday Trimmerd for support with weight increase Not too worried as it was the OH birthday and I think joint a bit swollen with arthritis. Still this is another week to carry on the battle
Hidden
1kg
in
Weight Loss Support
5 years ago
Lupus and Arthritis
Hi everyone, I'm having a lot of pain in my hips and quite severe I left one,usually at night, especially if I lay on it. Also sharp very bad pain in groin which happens if I move in a certain way. My left hip has limited movement I notice. I went to rheumy last week and he said it doesn't sound like
Hi everyone, I'm having a lot of pain in my hips and quite severe I left one,usually at night, especially if I lay on it. Also sharp very bad pain in groin which happens if I move in a certain way. My left hip has limited movement I notice. I went to rheumy last week and he said it doesn't sound like
smellie
in
LUPUS UK
5 years ago
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