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Experiences with
Takayasu arteritis
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12 public communities
Foggy's "Invisible Illness" Support
5,569 members
With charitable donations, we are able to provide 2 Hydrotherapy sessions per week, for our paid members. We are dedicated to providing support, raising awareness and promoting positivity, for invisible conditions primarily for: Arthritic Condition's Chronic Fatigue Syndrome Chronic Widespread Pain Fibromyalgia Giant Cell Arteritis Long Covid M. E. Myalgic Encephalopathy Myofascial Pain Polymyalgia Rheumatic Condition's
PMRGCAuk
20,737 members
Polymyalgia Rheumatica and Giant Cell Arteritis UK (PMRGCAuk) is a UK-wide charity set up to provide information and support, raise awareness, and foster research into PMR and GCA. On this forum you can share your own experiences of dealing with these little-known and frightening conditions with others who know what you are talking about; and also gain ideas about ways to take care of yourself and help yourself on the road to recovery. Do discuss ideas you find on the forum with your doctor, especially if you are considering changing your level of medication Our website is http://www.pmrgca.org.uk.
Arthritis New Zealand
86 members
FieryBones - RA Community
696 members
Rheumatoid Arthritis, or RA, is a type of auto-immune disease where the body's immune system starts attacking its own tissues and joints. It can happen at any age and is one of the most common form of arthritis. Some of the common symptoms are painful and swollen joints, fatigue and weakness. For people living with RA, it is a daily struggle to balance their personal and professional lives with the unpredictability of this painful disease. FieryBones has been created to connect all the RA warriors and caregivers throughout the world on a single platform. Nothing makes us feel better than reading inspirational blogs of how our RA peers are coping with this illness and sharing our story with the community that truly understands!
Vasculitis UK
7,820 members
Vasculitis UK is the UK's number one Vasculitis charity, run by people with Vasculitis for people with Vasculitis. We promote a national network of support groups, have a website, social media resources and a near 24 hour helpline that all help the trust to achieve its aims; offering support to sufferers, their families and friends both at home and abroad by providing information, advice and the means to contact each other. We work with other organisations and medical professionals to improve the recognition, diagnosis and treatment of Vasculitis. We raise awareness of Vasculitis among medical professions and the general population. We encourage and support the formation and development of local independant Vasculitis support groups. We raise funds in order to support research into the causes and effects of vasculitis, into improvements in the diagnosis of vasculitis and into the treatment of people suffering from all the different types of vasculitis.
JIA-at-NRAS
390 members
This community is for anyone affected by the condition, Juvenile Idiopathic Arthritis (JIA). It is run by the National Rheumatoid Arthritis Society (NRAS) and HealthUnlocked and exists to help you find support and information from other people living with or affected by JIA. This is an independent, patient led, forum so please take time to read our community guidelines which you can read under ‘Pinned Posts’. NRAS are a UK based charity providing support, information, and advocacy for people with juvenile idiopathic arthritis and rheumatoid arthritis, their families, friends, and carers. Our vision is for everyone with JIA (Juvenile Idiopathic Arthritis) and RA (Rheumatoid Arthritis) to be able to live their life to the full. We have a helpline which is open Mon-Fri, 9.30am - 4.30pm and is free for landlines: 0800 298 7650 or email helpline@nras.org.uk Free information booklets are available for download or to order as hardcopy from our online shop, visit www.jia.org.uk/shop to get your copies of JIA Explained, Managing JIA in schools, Medicines in Juvenile Idiopathic Arthritis.
Cure Arthritis Community
2,810 members
We’re a US-based non-profit searching for a cure to help an estimated 50 million Americans and 300,000 children afflicted with various forms of arthritis. This arthritis foundation is focused entirely on research. The Arthritis National Research Foundation is committed to funding cutting-edge research and pushing the field of arthritis research forward!
Arthritis Ireland
459 members
Arthritis Ireland works to reduce the pain and improve the lives of almost one million children and adults in Ireland with arthritis.
Arthritis Action
7,596 members
Arthritis Action is a UK charity that promotes a self-management approach to managing all types of arthritis which encompasses diet, nutrition, weight management and exercise for physical and mental well-being. We aim to give people the tools and knowledge through evidence-based research to minimise pain and live happy and fulfilling lives. For more information, visit arthritisaction.org.uk As well as a wealth of information we share with all, we also offer membership with additional benefits including two subsidised physical therapy sessions, exercise classes, priority booking on our self-management events, twice-yearly digital magazine, access our personalised pathway programme, and one-to-one healthy eating and weight management advice from our Dietitian. Visit arthritisaction.org.uk or email info@arthritisaction.org.uk for more info.
Cloudy with a Chance of Pain
1,514 members
A community for people with chronic pain or arthritis. Cloudy with a Chance of Pain is a UK smartphone study and citizen science experiment studying the association between weather and pain.
NRAS
36,886 members
Welcome to the community for people with rheumatoid arthritis (RA). This is run by the National Rheumatoid Arthritis Society (NRAS) and exists to help you find support and information from other people living with RA. You may be newly diagnosed or have had RA for some time or you might not have a diagnosis yet - everyone is welcome! NRAS also support people with juvenile idiopathic arthritis (JIA) and other forms of inflammatory arthritis. NRAS is a UK based charity providing support, information and advocacy for people with rheumatoid arthritis and juvenile idiopathic arthritis, their families, friends and carers. Our vision is for everyone with RA to be able to live the life they want to. We have a helpline which is open Mon-Fri, 9.30am - 4.30pm and is free for landlines. We also have a huge range of free information booklets available to order or download from our website.
Beyond Psoriasis
2,739 members
We’re a community of people affected by psoriasis and psoriatic arthritis but looking beyond our diagnosis. Join the movement! Work, play, family and the daily grind are as important to us as our symptoms, treatment and research. Beyond Psoriasis is supported by funding from LEO Innovation Lab.