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Takayasu arteritis
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RF, RA, Rayos & Pain
I had a great first visit with my rheumatologist this week. She was validating and knowledgeable and respectful. She is also pretty confident I have RA (tons of tests ordered and I go back in a couple of weeks). Two things: (1) my original labs that got me referred to a rheumatologist showed a rheumatoid
I had a great first visit with my rheumatologist this week. She was validating and knowledgeable and respectful. She is also pretty confident I have RA (tons of tests ordered and I go back in a couple of weeks). Two things: (1) my original labs that got me referred to a rheumatologist showed a rheumatoid
Jojosteeler
in
NRAS
1 year ago
Steroid sparing agents
Could anyone tell me more about Steroid sparing agents please? I have read about Methotrexate and Tocilizumab (?) but not really sure when or if I would go on them ( I was only diagnosed with GCA at the end of January) - also, side effects etc? I see my Rheumatologist next Monday and want to armed with
Could anyone tell me more about Steroid sparing agents please? I have read about Methotrexate and Tocilizumab (?) but not really sure when or if I would go on them ( I was only diagnosed with GCA at the end of January) - also, side effects etc? I see my Rheumatologist next Monday and want to armed with
Janeval
in
PMRGCAuk
1 year ago
Facet Joint Arthritis - I need Help!
I had an L4/5 lumbar fusion in 2016 and in the last 2 years I have developed arthritis in the facet joint above the fusion. Pain levels are high and my back is in constant spasm. Medical interventions have included cortisoid injections, denervation and botox injections to reduce pain. The pain and
I had an L4/5 lumbar fusion in 2016 and in the last 2 years I have developed arthritis in the facet joint above the fusion. Pain levels are high and my back is in constant spasm. Medical interventions have included cortisoid injections, denervation and botox injections to reduce pain. The pain and
Abdn2502
in
Pain Concern
1 year ago
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Severe Spinal Stenosis Surgery and RA/PsA
Hi everyone, haven’t posted or respond to people for a while as I’ve been in quite a lot of discomfort. As I’ve previously posted about I was initially diagnosed with rheumatoid arthritis and then psoriatic arthritis . I have a history of 30+ years. Following a recent MRI scan, my spine has deteriorated
Hi everyone, haven’t posted or respond to people for a while as I’ve been in quite a lot of discomfort. As I’ve previously posted about I was initially diagnosed with rheumatoid arthritis and then psoriatic arthritis . I have a history of 30+ years. Following a recent MRI scan, my spine has deteriorated
MadamePetitPois
in
NRAS
1 year ago
Pain below buttocks both sides. Rheumatologist says could be from PMR but who knows.
PMR diagnosed 2017. My CRP — which always aligned with my PMR pain— has been normal for over a year now. I’m on 2mg prednisone. — To see whether I may be in actual PMR remission, I started a slow 7-week reduction to 1.5 mg pred (from 2mg) three weeks ago. I see my endocrinologist soon and will ask
PMR diagnosed 2017. My CRP — which always aligned with my PMR pain— has been normal for over a year now. I’m on 2mg prednisone. — To see whether I may be in actual PMR remission, I started a slow 7-week reduction to 1.5 mg pred (from 2mg) three weeks ago. I see my endocrinologist soon and will ask
SusanEleven
in
PMRGCAuk
1 year ago
Have you heard of '#gamification'? 🎮
Whether you have rheumatoid arthritis or not - if you are in need of a little helping hand to hit your new year resolutions, take a read of our NEW blog. Find out about this modern trend and discover 5 of our favourite smartphone apps that gamify your wellbeing! 👉 https://nras.org.uk/resource/gamify-apps-wellbeing
Whether you have rheumatoid arthritis or not - if you are in need of a little helping hand to hit your new year resolutions, take a read of our NEW blog. Find out about this modern trend and discover 5 of our favourite smartphone apps that gamify your wellbeing! 👉 https://nras.org.uk/resource/gamify-apps-wellbeing
Aribah-NRAS
NRAS
in
NRAS
1 year ago
my poor feet!!
thanks so much for your reply’s I have orthotic insoles to, water tablets, naproxen, Pregablin co-codamol & pain patch, & my happy pill sertraline. I’ve endured injections in my spine neck & ribs for 5-6 yrs never again!! I think it’s osteoarthritis/ or polymyalgia or just about everything thing…. Been
thanks so much for your reply’s I have orthotic insoles to, water tablets, naproxen, Pregablin co-codamol & pain patch, & my happy pill sertraline. I’ve endured injections in my spine neck & ribs for 5-6 yrs never again!! I think it’s osteoarthritis/ or polymyalgia or just about everything thing…. Been
Spongebob1
in
Fibromyalgia Action UK
1 year ago
Lupus/Rheumatoid arthritis & subcutaneous nodules.
Hello. I hope you’re all doing well. 5 years ago, whilst living in the midlands, I was diagnosed with negative ana lupus and rheumatoid arthritis. I was looked after by a wonderful team and felt very grateful. Unfortunately, 3 years ago we had to relocate due to my partner’s career and the rheumatology
Hello. I hope you’re all doing well. 5 years ago, whilst living in the midlands, I was diagnosed with negative ana lupus and rheumatoid arthritis. I was looked after by a wonderful team and felt very grateful. Unfortunately, 3 years ago we had to relocate due to my partner’s career and the rheumatology
Jasmine22
in
LUPUS UK
1 year ago
Fed up
Hi guys me again after seeing the rheumatologist nurse last week and stopping the methotrexate I got my follow up letter. I was saying about my lower back pain getting worse and it going round to my hips. So she has booked me in next week for xrays on my lumbar spine and si joints. Anyway it says she
Hi guys me again after seeing the rheumatologist nurse last week and stopping the methotrexate I got my follow up letter. I was saying about my lower back pain getting worse and it going round to my hips. So she has booked me in next week for xrays on my lumbar spine and si joints. Anyway it says she
Brian1977
in
NRAS
1 year ago
RA LAST STEP
Hello My name is Niyoz from Russia. I am writing this because a month ago my mother passed away due to the rheumatoid arthritis. Actually, she had ulcers in her mouth and stomach which caused by rheumatoid arthritis but whatever doctors did were useless. She suffered a lot and died because my mom’s
Hello My name is Niyoz from Russia. I am writing this because a month ago my mother passed away due to the rheumatoid arthritis. Actually, she had ulcers in her mouth and stomach which caused by rheumatoid arthritis but whatever doctors did were useless. She suffered a lot and died because my mom’s
niyoz
in
NRAS
1 year ago
Moderate osteoarthritic sacroiliac?
I had back fusion surgery a year ago and just had an xray for a follow up before I see the surgeon. It stated the S1 joint arthritis ?
I had back fusion surgery a year ago and just had an xray for a follow up before I see the surgeon. It stated the S1 joint arthritis ?
Jeaniem130
in
Arthritis Action
1 year ago
Very low iron at same time as previously controlled rheumatoid arthritis is now very much out of control.
I've been diagnosed with RA and Lupus for over 35 years. I went through most of the known drugs over many years before being accepted on Enbrel which was amazing and gave me back a quality of life I never thought I regain. However I was switched to Benopali under the assumption it was the same generic
I've been diagnosed with RA and Lupus for over 35 years. I went through most of the known drugs over many years before being accepted on Enbrel which was amazing and gave me back a quality of life I never thought I regain. However I was switched to Benopali under the assumption it was the same generic
Alberta69
in
NRAS
1 year ago
I'm realy stuck on this one
all started 3 months ago with some right side groin pain then something jumped out my back pounding my left foot. at moment i got a knee that wont track proper on that leg and its affecting the other. and the opposite hip to the bad leg is hurting cos I'm compensating which is also causing and ankle
all started 3 months ago with some right side groin pain then something jumped out my back pounding my left foot. at moment i got a knee that wont track proper on that leg and its affecting the other. and the opposite hip to the bad leg is hurting cos I'm compensating which is also causing and ankle
minka
in
Cure Arthritis Community
1 year ago
Treat-to-target recommendations in giant cell arteritis and polymyalgia rheumatica - a very useful reference to show your doctor
https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can read it. It is something I think we should all have a read of, some will be beyond most of us and some is just plain boring but there are points in it everyone will understand and can bring to the notice
https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can read it. It is something I think we should all have a read of, some will be beyond most of us and some is just plain boring but there are points in it everyone will understand and can bring to the notice
PMRpro
Ambassador
in
PMRGCAuk
1 year ago
Toe pain
I am currently down to almost 2.5mg daily. I take 3.75 about 3 days a week (cutting a 2.5 in half). For a few weeks I have had a bit of pain in my right big toe joint and now all the toes on my left foot are tingly/achy too! Do you think this is PMR related or the start of arthritis?
I am currently down to almost 2.5mg daily. I take 3.75 about 3 days a week (cutting a 2.5 in half). For a few weeks I have had a bit of pain in my right big toe joint and now all the toes on my left foot are tingly/achy too! Do you think this is PMR related or the start of arthritis?
Sandyowl
in
PMRGCAuk
1 year ago
vastly different perspective of different rheumatologist: so am I terribly controlled after all?
hello all. I don’t know what to make of my face to face appointment yesterday and I feel rather emotional. It’s been well over two years since I saw a rheumatologist face to face - or indeed any kind of hospital medic. All that time my lovely learned consultant told me that although the arthritis was
hello all. I don’t know what to make of my face to face appointment yesterday and I feel rather emotional. It’s been well over two years since I saw a rheumatologist face to face - or indeed any kind of hospital medic. All that time my lovely learned consultant told me that although the arthritis was
Bon1
in
NRAS
1 year ago
what to take for inflammation when we have afib.
Hello to everyone, I am reaching out to you again. I have inflammation in my leg. I have arthritis in my knee and hip but it doesnt bother me, but the inflammation I have could be from this. I used to take an advil a couple of times a year. I know you cant take anti inflammatory medication when
Hello to everyone, I am reaching out to you again. I have inflammation in my leg. I have arthritis in my knee and hip but it doesnt bother me, but the inflammation I have could be from this. I used to take an advil a couple of times a year. I know you cant take anti inflammatory medication when
kitttycat
in
AF Association
1 year ago
Wondering if this is worth going back to my GP for
Hello everyone, I'm Zo I'm 27 and last year I was not diagnosed per say, but my GP 'suspected' or said it 'may be' early osteoarthritis as tests for rheumatoid arthritis came back negative (my mother has it). I've had joint pain since I was 18, started in my left knee and has since progressed to my
Hello everyone, I'm Zo I'm 27 and last year I was not diagnosed per say, but my GP 'suspected' or said it 'may be' early osteoarthritis as tests for rheumatoid arthritis came back negative (my mother has it). I've had joint pain since I was 18, started in my left knee and has since progressed to my
BonnieLass13
in
Arthritis Action
1 year ago
FREE Joint Pain Programme for people with chronic pain provided by Nuffield Health
Nuffield Health, the UK's largest healthcare charity, has launched a new Joint Pain Programme designed to help people better self-manage their chronic joint pain. The programme is available at all Nuffield Health gyms across the UK and is a FREE 12-week programme.
[u]
What is the Join Pain
Nuffield Health, the UK's largest healthcare charity, has launched a new Joint Pain Programme designed to help people better self-manage their chronic joint pain. The programme is available at all Nuffield Health gyms across the UK and is a FREE 12-week programme.
[u]
What is the Join Pain
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
1 year ago
MRI Scan result
Well I guess this could have been better and I have to admit it's probably worse than I anticipated. I'll sort out a chat with the doc to see where/if we go from here. Hopefully my DEXA scan in a couple of weeks will be more cheerful. [i]The scan shows he has sciatica with neuropathic pain and if the
Well I guess this could have been better and I have to admit it's probably worse than I anticipated. I'll sort out a chat with the doc to see where/if we go from here. Hopefully my DEXA scan in a couple of weeks will be more cheerful. [i]The scan shows he has sciatica with neuropathic pain and if the
Bcol
in
PMRGCAuk
1 year ago
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