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Takayasu arteritis
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Very high anti-CCP results
Hello, I hope you are all well. I want to ask for my Father. He was diagnosed with RA in Dec 2020. At that point his anti-CCP was 256. His ESR and rheumatoid factor were also very high. He has been injecting Metoject for 3 months now, first 12.5mg, now 10mg. His ESR and rheumatoid factor have now
Hello, I hope you are all well. I want to ask for my Father. He was diagnosed with RA in Dec 2020. At that point his anti-CCP was 256. His ESR and rheumatoid factor were also very high. He has been injecting Metoject for 3 months now, first 12.5mg, now 10mg. His ESR and rheumatoid factor have now
temirzhan
in
NRAS
3 years ago
Beginning of a flare or arthritis?
Seeking some input...have been very slowly tapering (0.5mg every 4-6 weeks), now on 6mg. Over the past 2 weeks I've had increasing stiffness and pain in my hands and loss of strength, and also in my left knee. I normally walk every day but I'm experiencing a lot of fatigue. Could this be arthritis
Seeking some input...have been very slowly tapering (0.5mg every 4-6 weeks), now on 6mg. Over the past 2 weeks I've had increasing stiffness and pain in my hands and loss of strength, and also in my left knee. I normally walk every day but I'm experiencing a lot of fatigue. Could this be arthritis
AussieMel
in
PMRGCAuk
3 years ago
Any reviews on rheumatologist in Surrey
I have osteoarthritis in shoulders hands & wrists & been referred to a Rheumatologist. Does anyone have any recommendations in the Surrey area please
I have osteoarthritis in shoulders hands & wrists & been referred to a Rheumatologist. Does anyone have any recommendations in the Surrey area please
221055
in
NRAS
3 years ago
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hands become stiffer with activity
Hello. I have some sort of inflammatory arthritis and I have hand stiffness but if I am active my hands get way stiffer. They don't get swollen they just feel super stiff when I close them. Is this common?
Hello. I have some sort of inflammatory arthritis and I have hand stiffness but if I am active my hands get way stiffer. They don't get swollen they just feel super stiff when I close them. Is this common?
smilelines
in
NRAS
3 years ago
Odd breathlessness
I cycled 27 kilometres yesterday in hilly Sheffield without any breathing problems. But I get breathless after walking 50 yards. I am disabled by back problems and arthritis could this explain the the difference.
I cycled 27 kilometres yesterday in hilly Sheffield without any breathing problems. But I get breathless after walking 50 yards. I am disabled by back problems and arthritis could this explain the the difference.
Ebikester
in
Lung Conditions Community Forum
3 years ago
Do symptoms go if the dosage is right?
Hi, I am new on this very interesting forum. I am 78 and have been on levothyroxine for years. Just now it is hard to see doctors so I have turned more towards the internet to try and sort myself out. As well as hypothyroidism I have intermittent seronegative arthritis and GERD and it is hard to sort
Hi, I am new on this very interesting forum. I am 78 and have been on levothyroxine for years. Just now it is hard to see doctors so I have turned more towards the internet to try and sort myself out. As well as hypothyroidism I have intermittent seronegative arthritis and GERD and it is hard to sort
Annib1
in
Thyroid UK
3 years ago
4 years on. Still nobody in Arthritis Action group
I first asked about 4 years back why nobody is listed in the Arthritis Action group. The 'Find people near me' section only brings up people in 'All Communities'. So I'd like to ask again..... Does no one register in Arthritis Action because the search still finds nobody in this group. Thanks All.
I first asked about 4 years back why nobody is listed in the Arthritis Action group. The 'Find people near me' section only brings up people in 'All Communities'. So I'd like to ask again..... Does no one register in Arthritis Action because the search still finds nobody in this group. Thanks All.
Reg1
in
Arthritis Action
3 years ago
Pip review stress
Hi Iv got my pip review stressed as got fill form in again Nothing changed only got worse the stress going through this causes anxiety Iv got borderline personality disorder and depression and degerated back disorder on tip fibromyalgia secondary
Hi Iv got my pip review stressed as got fill form in again Nothing changed only got worse the stress going through this causes anxiety Iv got borderline personality disorder and depression and degerated back disorder on tip fibromyalgia secondary
Blacki
in
Fibromyalgia Action UK
3 years ago
Journey update: LVV/GCA, tocilizumab and exercise
I have been diagnosed with LVV/GCA beginning of February (though MRI/MRA and PET/CT were not fully conclusive). With the help of Tocilizumab I now arrived at 12.5 mg prednisolone per day. I know that this is a very fast taper but it worked well until now and from now on the steps will become much smaller
I have been diagnosed with LVV/GCA beginning of February (though MRI/MRA and PET/CT were not fully conclusive). With the help of Tocilizumab I now arrived at 12.5 mg prednisolone per day. I know that this is a very fast taper but it worked well until now and from now on the steps will become much smaller
DeepThought2
in
PMRGCAuk
3 years ago
Covid vaccine & PMR
Having had my vaccine today, I asked the nurse if my antibodies would produce equally as well as someone who didn’t have autoimmune issues. She said probably not but the only way to find out that would be to have an antibody test after the 2nd vaccine. I have thyroid issues, hashimotos, and PMR, has
Having had my vaccine today, I asked the nurse if my antibodies would produce equally as well as someone who didn’t have autoimmune issues. She said probably not but the only way to find out that would be to have an antibody test after the 2nd vaccine. I have thyroid issues, hashimotos, and PMR, has
Daisy1624
in
PMRGCAuk
3 years ago
Fibromyalgia and Osteoarthritis now rheumatologist thinks something else as well
Hi everyone, I hope you are all as well as can be. I have fibromyalgia and osteoarthritis and finally got to see my rheumatologist face to face last week after many telephone consultations (He had requested full blood tests to be done by my GP before our face to face which had been done). During my appointment
Hi everyone, I hope you are all as well as can be. I have fibromyalgia and osteoarthritis and finally got to see my rheumatologist face to face last week after many telephone consultations (He had requested full blood tests to be done by my GP before our face to face which had been done). During my appointment
Cn657
in
Fibromyalgia Action UK
3 years ago
Negopam
I started today on 30 mg 3 times a day nefopam my gp gave me ,but i normally take codien or tramadol as the pain is bad at times but nefopam is not helping will it start to work as im in pain with my ibs
I started today on 30 mg 3 times a day nefopam my gp gave me ,but i normally take codien or tramadol as the pain is bad at times but nefopam is not helping will it start to work as im in pain with my ibs
Supermammy
in
Pain Concern
3 years ago
Please help! Is it psoriatic arthritis?!
I would love some advice about whatever I am suffering from especially lately. Everyday I feel lost and scared because I don’t know what’s wrong with me or what I can take for it to help the pain to go away. After experiencing a sudden headache, I was diagnosed with multilevel cervical spondylosis back
I would love some advice about whatever I am suffering from especially lately. Everyday I feel lost and scared because I don’t know what’s wrong with me or what I can take for it to help the pain to go away. After experiencing a sudden headache, I was diagnosed with multilevel cervical spondylosis back
Minette53
in
NRAS
3 years ago
Please help! Is psoriatic arthritis?
I would love some advice about whatever I am suffering from especially lately. Everyday I feel lost and scared because I don’t know what’s wrong with me or what I can take for it to help the pain to go away. After experiencing a sudden headache, I was diagnosed with multilevel cervical spondylosis
I would love some advice about whatever I am suffering from especially lately. Everyday I feel lost and scared because I don’t know what’s wrong with me or what I can take for it to help the pain to go away. After experiencing a sudden headache, I was diagnosed with multilevel cervical spondylosis
Minette53
in
Pain Concern
3 years ago
Arthritis symptoms?? Advice please 🙏🏼
Hello there, would love some advice...basically, I have some symptoms of RA, however, my bloods came back negative, so the GP is wanting to diagnose me with Fibromyalgia, but I’m not convinced, mainly because of the swollen knuckles, my symptoms are.... Painful swollen knuckles (can’t get my rings over
Hello there, would love some advice...basically, I have some symptoms of RA, however, my bloods came back negative, so the GP is wanting to diagnose me with Fibromyalgia, but I’m not convinced, mainly because of the swollen knuckles, my symptoms are.... Painful swollen knuckles (can’t get my rings over
CandiR
in
NRAS
3 years ago
Prednisolone for reactive arthritis
Hi, all. My husband was diagnosed with reactive arthritis a couple of weeks ago and after no improvement with painkillers and anti-inflammatories and antibiotics, he’s been put on prednisolone. He’s pretty much bed-bound because of the pain in his ankles, knees and shoulders. He’s 44 and not had any
Hi, all. My husband was diagnosed with reactive arthritis a couple of weeks ago and after no improvement with painkillers and anti-inflammatories and antibiotics, he’s been put on prednisolone. He’s pretty much bed-bound because of the pain in his ankles, knees and shoulders. He’s 44 and not had any
Viridian
in
Arthritis Action
3 years ago
Octave Trial Glasgow - immune suppressed response to Covid Vaccine
There are a few news articles about this today. The study is looking into the efficacy of the Covid vaccine’s in patients who have suppressed immune systems, including those with inflammatory arthritis. Interesting one to follow. Meantime, take care out there
There are a few news articles about this today. The study is looking into the efficacy of the Covid vaccine’s in patients who have suppressed immune systems, including those with inflammatory arthritis. Interesting one to follow. Meantime, take care out there
Brushwork
in
NRAS
3 years ago
Dis-appointment
Update Hello all. Well today I had my first f2f with the consultant since diagnosis and you can probably tell from my title that I am not happy. In fact I am really, really, really p'd off. She was very pleasant and not at all dismissive but she didn't examine, said she agreed that if I have seen
Update Hello all. Well today I had my first f2f with the consultant since diagnosis and you can probably tell from my title that I am not happy. In fact I am really, really, really p'd off. She was very pleasant and not at all dismissive but she didn't examine, said she agreed that if I have seen
Brychni
in
NRAS
3 years ago
Diet and autoimmune - What do you think?
I have been sent two websites that suggest a change in diet could help. I would be interested if you had seen these and to hear what you all think... https://www.amymyersmd.com/article/eat-organic-autoimmune/ https://www.everydayhealth.com/rheumatoid-arthritis/diet/insecticides-autoimmune-disease-what-women-should-know
I have been sent two websites that suggest a change in diet could help. I would be interested if you had seen these and to hear what you all think... https://www.amymyersmd.com/article/eat-organic-autoimmune/ https://www.everydayhealth.com/rheumatoid-arthritis/diet/insecticides-autoimmune-disease-what-women-should-know
Mamamia21
in
PMRGCAuk
3 years ago
The virus and injection medication for Rheumatoid Arthritis
Hi everyone, I have had RA for about 10 years. I am currently on Abatacept pre filled pens. I have heard that the injection medication for RA can provide some protection against Covid 19. Can anyone tell me if this is true ? June xxx
Hi everyone, I have had RA for about 10 years. I am currently on Abatacept pre filled pens. I have heard that the injection medication for RA can provide some protection against Covid 19. Can anyone tell me if this is true ? June xxx
petalnumber2
in
NRAS
3 years ago
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