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Scleroderma & Raynaud's UK (SRUK)

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polymyalgia rheumaticia and connective tissue disorder

UCTD profile image
UCTD
5 Replies

Dear friends, just wondering if anyone else has developed PMR as well as CTD/ fibro,inflammatory arthritis?

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UCTD
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AMDP profile image
AMDP

isn’t it part of CTD

UCTD profile image
UCTD in reply to AMDP

Thanks for your reply yes it is autoimmune/CTD but in addition to inflammatory arthritis, fibromyalgia? Just wondering, i am on Rituximab, long term maintenance steroids, Plaquenil and a lot of other medications, and I am miserable with these new symptoms.

AMDP profile image
AMDP in reply to UCTD

I’m so sorry for you. This disease is just horrible. I have had UMCTD for 15 years and it can be very depressing. When I get down I try to focus on what I can do not what I can’t. Xx

Pixix profile image
Pixix

I have fibromyalgia, polymyalgia, osteoarthritis, Raynauds, hypermobility, vertigo, sciatica, trochanteric bursitis all diagnosed. Fibromyalgia was the first, about 12-15 years ago. Suspected hypermobility Ehlers Danlos syndrome & sero negative arthritis. Not quite the same, but some the same!!

UCTD profile image
UCTD

thank you for your reply, gosh you are unfortunate, I hope the treatment is working for you.

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