Is it a flare ?: Hi ,i was recently... - Fibromyalgia Acti...

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Is it a flare ?

Cabello profile image
7 Replies

Hi ,i was recently diagnosed with fibro after 40+ years of pain,i also have osteoarthritis and lipoedema which are also constant pain. For the last couple of weeks i have had what feels like the worst hangover without the night out! Is this a "flare"?.

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Cabello profile image
Cabello
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Delightedbyhares profile image
Delightedbyhares

Welcome to the fibro club! It’s no fun being a member though. I guess we all experience different flares as fibro does different things to us all. -charming isn’t it! My flares are an exacerbation of all my symptoms at the same time. Brain fog ramped up to where I cannot function at all . I can’t remember anything, I am confused and irritable, I can’t talk and I withdraw totally. The pain increases +++ and affects everywhere all at the same time. I am beyond exhausted but cannot sleep. I can’t leave the house- even if I want to. It lasts from a few days to a few weeks, or longer.

As I said I guess we also experience it differently but, a flare to me, means just MORE of all the symptoms ALL at the same time 😖😣😫😤😳😱. I hope your flare is short and you are able to resume being a more normal (?!) you, very soon. Best wishes.

Cabello profile image
Cabello in reply toDelightedbyhares

Thanks for your reply. Yes its been increased allover pain,brain fog,really bad headaches etc. I have managed to get through work but not left house on free days. Im still getting used to feeling rubbish on a daily basis but was relieved to finally get a diagnosis.

Delightedbyhares profile image
Delightedbyhares in reply toCabello

yes, at least you have an answer but, that doesn’t really help as there is no cure and nobody (who is fibromyalgia free) really understands or believes, that you can be in pain and exhausted ALL the time. I had to give up work last year as my job was physically hard on me and emotionally exhausting. OT input/reasonable adjustments, and changing hours/days didn’t help me but, I hope you find a way through xx

Cabello profile image
Cabello in reply toDelightedbyhares

Bless you. I know what you mean,its also hard to explain to others how it makes you feel on daily basis. There really are no words to describe your symptoms only fellow sufferers understand. Sending you good vibes.

Delightedbyhares profile image
Delightedbyhares in reply toCabello

Thank you. Wishing you the same too xx

Uellow22 profile image
Uellow22

Good morning Cabello 😘

I am sorry 😔 to hear you are suffering more than usual but yes I too suffer with daily headaches, from back of my neck up towards my head & over & behind my eyes & face/ sinus & ringing in my ears!!!!!! It's incredible the amount of symptoms all at once.....and that's just the top section!!!!!!!

However, I had an MRI last week and was diagnosed with cervical spondylosis & osteo arthritis as I am suffering with immense neck pain in vertabraes C5,6 & 7. So perhaps this has been the cause of my pain..not sure as yet to see my GP & physiotherapist.

I would be very interested in hearing from anyone suffering with the same symptoms 🙏 please.

I was told my headaches were fibro related but who knows?

I'm 55, menopausal, so joints & wear and tear is inevitable too I guess.

I am seeing an ENT specialist tomorrow so I can see what he says, about sinuses & ringing in ears?!

Perhaps you could try the same approach, as I think sometimes it's too easy to attach all our symptoms to fibro.... frustratingly it can be a process of elimination.

It's so hard with head pain & fibro fog etc to not feel like you are going mad 😡 but you are NOT alone darling or going mad.

I wish you heaps of strength and love 😘😘 xxxxxxxx

Yellow 💛💚💛

Cabello profile image
Cabello in reply toUellow22

Many thanks,you've given me food for thought 🤗

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