carbimazole & antithyroid arthritis

[Abimilne]

Hello, I’m a 33 year old woman, I was diagnosed with an overactive thyroid around 2months ago, was put on 15mg carbimazole a day. Started with a painful mouth ulcer so stopped medication & waited to see my consultant for advice as I didn’t know how bad the mouth ulcer had to be, he advised me to go back on to the medication & if I had another mouth ulcer it could be the medication, did so & got three mouth ulcers, missed two days worth of medication and then woke up with a really sore & bruised hand, which progressively got worse to to point where I couldn’t move my hand, several trips to the doctors I was given steroids and codeine to deal with pain and refereed to a rheumatologist. During the last 6 days the pain has moved around my joints (hands, feet, knees, hips, groin) and has been so painful I haven’t been able to carry out usual tasks or work, with night time being the worst. I contacted my consultants secutary to express my concern that it was the Carbimazole for her to reply and say he said it wasn’t thyroid or medication related. I have done my own research and a rare side effect of Carbimazole Is something called anyithyroid arthritis which i believe this is as it’s come on so suddenly & I already had my doubts about my body reacting with the medication because of ulcers. My endocrinologist is on holiday and I’m awaiting an appointment with the rheumatologist but getting very frustrated as my GP can only treat the symptoms and it’s specialists that I need to see. Writing this post in the hope someone has had similar experience. I stopped taking Carbimazole 6 days ago and still dealing with the anti arthritis. Thanks in advance.

[Neonkittie17]

My hyperthyroidism/Graves came on 10 years after my RA was diagnosed so thyroid medication Carbimazole wasn’t the cause for me having RA. I hope the rheumatology appointment comes through soon as they can examine you and do RA blood tests too. Also that the endocrinologist can find a way to suit you to keep your thyroid stable. Sorry not to be of much help but I do understand the problems of both conditions and hope you’re soon feeling improvement. 🙏🏻

[Abimilne in reply to Neonkittie17]

Thank you so much, I really feel for you having RA, it’s not nice at all!

[Neonkittie17 in reply to Abimilne]

Thank you. My RA is steady at the mo, touchwood, but you’re always conscious of the fact it can change that way. Thinking of you and hoping things improve.

[JenniferW]

Hi Abi

Can I suggest you also post this on the Thyroid UK section of this site, there are some very helpful and knowledgeable people on that forum and they may be familiar with this reaction,

Best Wishes

Jennifer

[Abimilne in reply to JenniferW]

Posted, thank you for the tip, I’ve only just joined this site so wasn’t sure how to use it.