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Experiences with
Primary biliary cholangitis (PBC)
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Cirrhosis /FIBROSIS
Can anyone tell me what the difference is between saying I have grade 4/5 fibrosis Is there a difference between this and actual cirrhosis. .just curious as I'm not to sure if this stage is cirrhosis as I just have low platelets and slightly elevated ALT plus elevated alkaline phosphate I
Can anyone tell me what the difference is between saying I have grade 4/5 fibrosis Is there a difference between this and actual cirrhosis. .just curious as I'm not to sure if this stage is cirrhosis as I just have low platelets and slightly elevated ALT plus elevated alkaline phosphate I
ballie52
in
British Liver Trust
9 years ago
Liver cirrhosis but could be another problem?
Dad, who is 76, was diagnosed with liver cirrhosis in October 2015. He has not been eating enough for months and his weight has fallen to 63 kilos. He has been in hospital 5 times since last September. Just before Christmas he had 12 litres of fluid removed from his abdomen (ascites). I have complained
Dad, who is 76, was diagnosed with liver cirrhosis in October 2015. He has not been eating enough for months and his weight has fallen to 63 kilos. He has been in hospital 5 times since last September. Just before Christmas he had 12 litres of fluid removed from his abdomen (ascites). I have complained
joredd
in
British Liver Trust
9 years ago
Feeling on TOP OF THE WORLD!
Just had my bloods done. Was terrified about the results but had improved so much. Closer to my normal elevated but manageable. October 30 2015: January 5 2016: Alkaline Phosphate: 100
Just had my bloods done. Was terrified about the results but had improved so much. Closer to my normal elevated but manageable. October 30 2015: January 5 2016: Alkaline Phosphate: 100
Estiebargle
in
British Liver Trust
9 years ago
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Hi everyone. I am 49 years old and was diagnosed with budd chiari syndrome and polycythemia in 2014. After becoming horribly ill with sepsis in May that year, Ihave managed to stay quite stable (touching wood!!). Have been back at work for over a year and just getting on with it. My problem is that although
Hi everyone. I am 49 years old and was diagnosed with budd chiari syndrome and polycythemia in 2014. After becoming horribly ill with sepsis in May that year, Ihave managed to stay quite stable (touching wood!!). Have been back at work for over a year and just getting on with it. My problem is that although
Ticchic66
in
British Liver Trust
9 years ago
Doctors and late results
Hi everyone I have been very unwell since the begining of nov,after asking my doctor to admit me in to hospital because I had server abdominal pain,,server diarrhea and I was vomiting a black substance back.he refused..I was eventually rushed in to hospital several hours later by a locum..I was diagnosed
Hi everyone I have been very unwell since the begining of nov,after asking my doctor to admit me in to hospital because I had server abdominal pain,,server diarrhea and I was vomiting a black substance back.he refused..I was eventually rushed in to hospital several hours later by a locum..I was diagnosed
birkie
in
Thyroid UK
9 years ago
Cirrhosis and exercise. Is it advisable?
I'd like to start the new year by getting back into shape and going to the gym. However , I'm concerned about the implications it may have on my liver and blood pressure . Also would supplimenting with protein shakes be too much for my liver?
I'd like to start the new year by getting back into shape and going to the gym. However , I'm concerned about the implications it may have on my liver and blood pressure . Also would supplimenting with protein shakes be too much for my liver?
acjb007
in
British Liver Trust
9 years ago
Liver Cirrhosis
Hi All, I would like to share my awful experience with watching my Mum suffer and pass away with this horrible disease, and hopefully get some answers as it all happened so fast with no warning. I'm 26 and Mum was 60, fit and healthy (or so we thought) she had no symptoms leading up to hospital only
Hi All, I would like to share my awful experience with watching my Mum suffer and pass away with this horrible disease, and hopefully get some answers as it all happened so fast with no warning. I'm 26 and Mum was 60, fit and healthy (or so we thought) she had no symptoms leading up to hospital only
Sjade
in
British Liver Trust
9 years ago
Associated symptoms of PVCs
Does anyone with these suffer from nausea, lightheadedness and frequent bouts of pins and needles in hands and feet? Looks as though I have PVCs from my last Alivecor reading . Saw doc last week who thought some of these symptom is the excessive wax in my ears. Waiting for results of Holtor monitor
Does anyone with these suffer from nausea, lightheadedness and frequent bouts of pins and needles in hands and feet? Looks as though I have PVCs from my last Alivecor reading . Saw doc last week who thought some of these symptom is the excessive wax in my ears. Waiting for results of Holtor monitor
Stephanietee
in
AF Association
9 years ago
Ascites drain
Hi Hubby just had a visit from the district nurse and she recommended having a permanent ascites drain. He has had four drains whilst in hospital but 2 of the didn't work and caused him a great deal of pain. Has anyone had a permanent drain before? What does it entail? How do they replace the albumin
Hi Hubby just had a visit from the district nurse and she recommended having a permanent ascites drain. He has had four drains whilst in hospital but 2 of the didn't work and caused him a great deal of pain. Has anyone had a permanent drain before? What does it entail? How do they replace the albumin
Hidden
in
British Liver Trust
9 years ago
Paroxysmal Atrial Fibrillation on Eliquis
Background: Some where around 20 years ago I was told that I had benign PVC's and was given Metoprolol 25mg twice a day. Eight years ago I had a coronary angiogram done and everything looked good and was told I had good heart function. Recently I started having lightheartedness, low energy and something
Background: Some where around 20 years ago I was told that I had benign PVC's and was given Metoprolol 25mg twice a day. Eight years ago I had a coronary angiogram done and everything looked good and was told I had good heart function. Recently I started having lightheartedness, low energy and something
AAB13X2L
in
AF Association
9 years ago
Interstitial cystitis
I had a cystoscope done at the Urologist's office today and it was normal. Is that enough to rule out IC or do I need a cystoscope with hydrodistention to rule it out? I have also tried a few different meds for OAB, which only had minimal effect. Thanks in advance!
I had a cystoscope done at the Urologist's office today and it was normal. Is that enough to rule out IC or do I need a cystoscope with hydrodistention to rule it out? I have also tried a few different meds for OAB, which only had minimal effect. Thanks in advance!
Zelda5
in
Endometriosis UK
9 years ago
Alcohol cirrhosis
I have been diagnosed with alcohol cirrhosis., although I'm not convinced this is the reason as I have never been a big drinker. Yes I have been drunk in my younger days but alcohol has never been an issue. I stopped drinking altogether 6 years ago because i had ulcerative colitis . My doctor has
I have been diagnosed with alcohol cirrhosis., although I'm not convinced this is the reason as I have never been a big drinker. Yes I have been drunk in my younger days but alcohol has never been an issue. I stopped drinking altogether 6 years ago because i had ulcerative colitis . My doctor has
l13d
in
British Liver Trust
9 years ago
Trace blood in urine??
Hi I had my pre op on Friday and they done a urine test she said there was a trace of blood but no infection. For the last year or so I have had about 6 urine tests and they have all had a trace of blood. The samples were sent to be checked and came back clear with no problems. The dr said to follow
Hi I had my pre op on Friday and they done a urine test she said there was a trace of blood but no infection. For the last year or so I have had about 6 urine tests and they have all had a trace of blood. The samples were sent to be checked and came back clear with no problems. The dr said to follow
Mummycox33
in
Endometriosis UK
9 years ago
Ectopic beats and oxygen levels
Hey all, new to the forum and have read a couple of the threads so know what your all going through but I do have a couple of questions. I'm getting these ectopic beats what feels like more frequently then I blink, they are highly annoying and uncomfortable. I don't know if it's PVC or PAC and don't
Hey all, new to the forum and have read a couple of the threads so know what your all going through but I do have a couple of questions. I'm getting these ectopic beats what feels like more frequently then I blink, they are highly annoying and uncomfortable. I don't know if it's PVC or PAC and don't
Nikos1985
in
Arrhythmia Alliance
9 years ago
HCV and Ground Hog Day
Hi This is for all of those on this forum with HCV who are waiting for their treatment as we head into the winter months. If you read the most recent report from NICE, all 80+ pages you will still have no idea when you will be treated. All I can conclude from this report is that the NHS thinks
Hi This is for all of those on this forum with HCV who are waiting for their treatment as we head into the winter months. If you read the most recent report from NICE, all 80+ pages you will still have no idea when you will be treated. All I can conclude from this report is that the NHS thinks
art4949
in
British Liver Trust
9 years ago
Can any one help me?
Hello ,I will try to make this as short as posible(!?) .. I have multiple autoimune issues ,SLE,Hashi's ,Sjogrens,APS ,fibro,+++++and multiple allergies and intolerances to meds and foods .I am dairy free .gluten free ( no grains at all) yeast free and I don't cheat as I can become very ill.it's not
Hello ,I will try to make this as short as posible(!?) .. I have multiple autoimune issues ,SLE,Hashi's ,Sjogrens,APS ,fibro,+++++and multiple allergies and intolerances to meds and foods .I am dairy free .gluten free ( no grains at all) yeast free and I don't cheat as I can become very ill.it's not
Mrsoverall
in
Pernicious Anaemia Society
9 years ago
Ankylosing Spondylitis
I have Hashi's, Endometriosis/Adenomyosis, fatty liver, and I'm AMA-M2 positive which is an antibody that is usually associated with
PBC
(
primary
biliary
cirrhosis
) an autoimmune liver disease.
I have Hashi's, Endometriosis/Adenomyosis, fatty liver, and I'm AMA-M2 positive which is an antibody that is usually associated with
PBC
(
primary
biliary
cirrhosis
) an autoimmune liver disease.
Zelda5
in
Pain Concern
9 years ago
Mixed feelings
Hi today my brother had an appointment with his specialist I was unable to go due to being on hols 2 months ago the specialist told me he had decompensated cirrhosis while he was in hospital since being home I have had him at doctors nearly every week with something different he has just had a eeg scan
Hi today my brother had an appointment with his specialist I was unable to go due to being on hols 2 months ago the specialist told me he had decompensated cirrhosis while he was in hospital since being home I have had him at doctors nearly every week with something different he has just had a eeg scan
Mar15
in
British Liver Trust
9 years ago
Anyone else been diagnosed with cystitis cystica? Many years of suffering.....
I've suffered with a bladder prone to infection since I was approx 7. Symptoms have varied as has intensity of the years of the pain in my bladder. Many cystoscopies, urethral dilatations later, I am still looking for ways to help me to manage symptoms. I am now post menopausal. Menopause was not a walk
I've suffered with a bladder prone to infection since I was approx 7. Symptoms have varied as has intensity of the years of the pain in my bladder. Many cystoscopies, urethral dilatations later, I am still looking for ways to help me to manage symptoms. I am now post menopausal. Menopause was not a walk
25clai
in
Pelvic Pain Support Network
9 years ago
Never ending
Dont even know where to start. Ive had 2 laps the last one in March this year under a fab endo specialist. He removed most my endo apart from a small amount on my bowel. He did remove lots from my bowel, bladder, pelvic wall, basically everywhere apart from my ovaries and fallopian tubes and with that
Dont even know where to start. Ive had 2 laps the last one in March this year under a fab endo specialist. He removed most my endo apart from a small amount on my bowel. He did remove lots from my bowel, bladder, pelvic wall, basically everywhere apart from my ovaries and fallopian tubes and with that
emmaibiza
in
Endometriosis UK
9 years ago
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