Experiences with

Primary biliary cholangitis (PBC)

Hi All, I was recently taking Dexamethasone and have started a new medication called Belzutifan. I have stopped from Tuesday 19th November 2024. I had a Liver blood test done on Tuesday 19th November 2024 and normally I am in normal range for everything please see below my blood test results is

Hi everyone 👋 I’m a new member and hoping to understand more about cirrhosis, my diagnosis and what it means going forward. Long story short - I was admitted to hospital in May 2022 with a decompensated liver and highest rating of 75 kPa and cirrhosis. I was discharged after a week (and after the shock

Hi, My dad ended up in A&E fighting for his life August bank holiday this year and turns out he has cirrhosis with that episode being the first time presenting which was a surprise to everyone (apparently usually there’s signs before the point he got to but he was putting symptoms down to side effects

Hello - I am wondering if anyone had tips for a healthy diet to maintain compensated cirrhosis - I’m overweight and have to loose weight as quickly and safely as possible. Is it just the same principles as recommended for NAFLD do you know? Anyone know is sweeteners are an issue for the liver to process

hi everyone, I have cirrhosis but since quitting alcolohol 19 month ago my alt levels have been around 40 I have not had bloods taken for few month until last week and now my alt is 90, nurse said normally due to painkillers which I never take, got to get bloods repeated 6 weeks, any idea why they are

…..initially a great struggle….lack of diagnosis, incorrect diagnosis, incomplete diagnosis…..wrong type of medication, multiple times as they did not work. 2015 - diagnosed with hemochromatosis and NAFLD. Treatment was phlebotomy until ferritin dropped from 1300 down to 50. Which took about 12 months

Hi I was seen today at Edinburgh Royal Infirmary regarding my 'probable cirrhosis' diagnosis and it was encouraging news which I wanted to share. They were very kind, as I went in quite teary and upset. They did a Fibroscan and it's gone from 29.7 (very high) in February down to 11. The consultant

Urine albumin:creatinine ratio: View test result 2.1 mg/mmol I’m hoping this is good news and my consultant is happy with this urine creatinine result as my cretanine levels were slightly raised at 95 and eGFR 59 (lower). can anyone confirm to me this that hopefully this shows I don’t have kidney

Hi folks, I read online that an AST/ALT ratio greater than 1.2 can mean advanced liver disease. On August 9 I had a liver enzyme blood test done and all the results were well within normal; however, when I used an AST/ALT calculator tool online, it said I had a ratio score of 1.4 and that this could

Hi there all, Quick question - I've just discovered - been delving into my husband's medical notes and letters that he had a hyaluronic serum test just back in June. This was because the liver doctor was bemused at his fibroscan result which she says showed no cirrhosis. Now, I know for a fact that

my partner was diagnosed with ARLD cirrhosis of the liver Following a long stint in hospital he’s been home 7 weeks He keeps getting ascites which is drained every 3-4 weeks, he’s following diet advice, has stopped drinking too. He’s also been given albumin following the drainage he was drained

I'm 51 and just started my journey, although no official diagnosis yet. I'm waiting for an appointment with hepatologist due to FIB4 fibrosis score 12. Low platelets, raised ferritin, deranged LFT. Alcohol related liver disease suspected.

I have been a heavy drinker for a while. 10 Years ago I was diagnosed with Alcoholic Hepatitis. I quite drinking for 2 years cold turkey. Subsequent scans revealed my liver had healed. I then had a relapse and rutrned to regular drinking. From January to June of this year it got particularly heavy. I

Good afternoon. I was wondering if anybody would know what kind of socks I could use for my husband? He had cirrhosis of the liver and his legs swell really bad, all socks we have tries leave really bad indents and make his legs very sore, if anybody has any they could suggest I would really appreciate

Hi allCan anyone shed light on the following please? I had a fibroscan in early May, following a series of irregular blood results. My GP described them as elevated but unremarkable. In mid July, having chased the result for weeks, a doctor rang me to say that I would need to be treated as a patient

First, I should be upfront and say I have not yet, if ever, been diagnosed with cirrhosis. My most recent ultrasoubd if my liver, in December 2023, only said "The liver is normal in size and homogeneous. There is a mild increase in echogenicity consistent with stage 1 steatosis. There has been no

Hi Everyone. I have a quick question. I realise eggs are a very good protein source, and that we're supposed to eat a lot of protein with cirrhosis [I'm not sure why though - I'm still relatively new to this]. I've read some sites that say to limit eggs to 3 to 4 a week as they put a lot of stress on

I have Cirrhosis, end of November 2023 bloods taken, GP sent me to hospital to confirm what was suspected, not had a drink since the start December 2023. I was told I had Cirrhosis and nothing else, told to eat more protein and 4 smaller meals per day, no information about salt or sugar / diet in general

Hi Folks, I just joined this forum today and this is my first time posting. I had a gastroscopy and colonoscopy performed on Friday. The main reason was that I have been having some difficulty swallowing for a few months, and since I had been diagnosed with Barrett's Esophagus a number of tears ago,

my partner was admitted to hospital via A&E after being ill for weeks with a swollen abdomen He was diagnosed with cirrhosis and ascites and remained in hospital for 4 weeks, treatment was albumin and terrepressin, some issues with kidney failure too he’s been home over a week and he doesn’t seem