Hey there, my name is Natalie and I have suffered with endo for about the past 6 years if not longer! I have a severely aggressive form(docs words not mine!) of endo! This year I had another laparoscopy to cut away big amounts of endo after a 2 year break, pain free!!! Since that laparoscopy everything has fallen to pieces.
On my last lap my consultant also performed a cystoscopy (camera into the bladder) to see if any endo lay on the bladder as I have always complained of pain when urinating and pain in lower back! The consultant said he found a condition called interstitial cystitis. I was then refered to a urology team. The urologist carried out their own cystoscopy and told me that I did not have IC but had an inflamed bladder which they cannot treat!! During this time I also keep going into urinary retention, so atm I'm having to self catheterise myself so that I don't go into retention again! This itself causes infection and I'm in hospital atm fighting a severe kidney infection!
Now I know this is a long post but just want some help and advise! Does anyone else suffer from extreme pain when urinating?? Urinary retention?? Or any of the symptoms I have mentioned?