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Experiences with
Primary biliary cholangitis (PBC)
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Decompensated cirrhosis with ascites and varices prognosis
Hi, my brother is an alcoholic and recently came to stay with us as he had been asked to leave his rented accommodation. We were shocked by how much weight he had lost and then his belly started swelling and then his feet and legs. My mum got him to agree to make a doctors appointment. He got one for
Hi, my brother is an alcoholic and recently came to stay with us as he had been asked to leave his rented accommodation. We were shocked by how much weight he had lost and then his belly started swelling and then his feet and legs. My mum got him to agree to make a doctors appointment. He got one for
SarahMar
in
British Liver Trust
6 years ago
Butec morphine patches
Is it safe to use Butec low dose morphine patches with pvc?
Is it safe to use Butec low dose morphine patches with pvc?
Rap-17
in
PBC Foundation
6 years ago
MRI, MRCP, due next week
In for another MRI this time MRCP too, I suppose it must be about PSC, but I just turn up and enjoy the rest. I have an appointment with the consultant in mid June, do you think I should ask for the MRI results before that, so I might know what questions to ask? Just to keep you all amused this is my
In for another MRI this time MRCP too, I suppose it must be about PSC, but I just turn up and enjoy the rest. I have an appointment with the consultant in mid June, do you think I should ask for the MRI results before that, so I might know what questions to ask? Just to keep you all amused this is my
scampi2122
in
British Liver Trust
6 years ago
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UTI/endo on bladder?
The beginning of me finally realising there was something wrong with my body started with having a UTI that didn’t clear with two lots of antibiotics. I insisted it wasn’t a UTI because it didn’t sting when I wee’d or any of the usual symptoms. Anyway, they then suspected appendicitis and whilst in hospital
The beginning of me finally realising there was something wrong with my body started with having a UTI that didn’t clear with two lots of antibiotics. I insisted it wasn’t a UTI because it didn’t sting when I wee’d or any of the usual symptoms. Anyway, they then suspected appendicitis and whilst in hospital
CJessicaD
in
Endometriosis UK
6 years ago
Brutal Stomach Pain
I have severe PVCs so my cardiologist put me on brutal drug. It caused constipation and severe stomach pain. My shortness of breath is scary at times. I have read about not stopping it but I'm desperate and can take no more. I have ablation July 3rd and the dr told me to stop it a week before but said
I have severe PVCs so my cardiologist put me on brutal drug. It caused constipation and severe stomach pain. My shortness of breath is scary at times. I have read about not stopping it but I'm desperate and can take no more. I have ablation July 3rd and the dr told me to stop it a week before but said
Larry0304
in
AF Association
6 years ago
Yellow eyes and rude strangers?
Hi, Hope you are all as well as you can be. Just a really quick one from me about Bilirubin ( I say quick, a rant more like 😂) It’s been a year and my levels are not dropping as quickly and still higher then doctors have expected, I do have portal hypertension but if anything that has calmed down firstly
Hi, Hope you are all as well as you can be. Just a really quick one from me about Bilirubin ( I say quick, a rant more like 😂) It’s been a year and my levels are not dropping as quickly and still higher then doctors have expected, I do have portal hypertension but if anything that has calmed down firstly
Jjp80
in
British Liver Trust
6 years ago
Ablation & PVCs
Hi I’ve been diagnosed with DCM with a very low EF of 35%. Since leaving hospital with an ICD I’ve had numerous shocks due to extended runs of VT. After my last hospital visit I started on amiodarone 200mg and felt fantastic, due to this my ablation was put on hold. For the past few weeks my PVCs
Hi I’ve been diagnosed with DCM with a very low EF of 35%. Since leaving hospital with an ICD I’ve had numerous shocks due to extended runs of VT. After my last hospital visit I started on amiodarone 200mg and felt fantastic, due to this my ablation was put on hold. For the past few weeks my PVCs
Paul_heywood
in
British Heart Foundation
6 years ago
Does anyone have episodes of constant burping allied to premature ventricular contractions
My GP thought I had a couple of episodes of paroxysmal AF but undiagnosed, the consultant says that I have prem ventricular contractions. I have no medication but sometimes feel unwell and my own monitor does register irregular heartbeats sometimes. I get periods of burping during these times and wondered
My GP thought I had a couple of episodes of paroxysmal AF but undiagnosed, the consultant says that I have prem ventricular contractions. I have no medication but sometimes feel unwell and my own monitor does register irregular heartbeats sometimes. I get periods of burping during these times and wondered
JoyV
in
Arrhythmia Alliance
6 years ago
PVCs/pacs ruining my life..what do I do?
They started in 2012 and I’m now 32. They go through bad spells ..I’ve bern fine,a few a day here and there for months,then Thursday night as soon as I walked /moved around they were every few beats. I’m ok if I’m lying down or sitting down but a few mins after walking around they start every couple
They started in 2012 and I’m now 32. They go through bad spells ..I’ve bern fine,a few a day here and there for months,then Thursday night as soon as I walked /moved around they were every few beats. I’m ok if I’m lying down or sitting down but a few mins after walking around they start every couple
Sarahlou23xx
in
British Heart Foundation
6 years ago
Interesting Read.....I'm going to give Raw eating a try. What can it hurt?
It wasn't until May of 2006 that a liver specialist diagnosed me with
Primary
Biliary
Cirrhosis
(
PBC
). He did a liver biopsy to confirm this. I not only had PBC, but I was in the last stages. PBC is a liver disease that there is no cure for at this time.
It wasn't until May of 2006 that a liver specialist diagnosed me with
Primary
Biliary
Cirrhosis
(
PBC
). He did a liver biopsy to confirm this. I not only had PBC, but I was in the last stages. PBC is a liver disease that there is no cure for at this time.
Ktltel
in
PBC Foundation
6 years ago
Help needed possible hashimotos or is it fibromyalgia
Just got blood results from GP after difficulty in obtaining a copy. I thought TSH tested but no test done! I was diagnosed initially by myself and confirmed by GP with fibromyalgia in 2016. I believe (although now don't know) that thyroid tested in April 2015 when I went to gp with pain, stiffness,
Just got blood results from GP after difficulty in obtaining a copy. I thought TSH tested but no test done! I was diagnosed initially by myself and confirmed by GP with fibromyalgia in 2016. I believe (although now don't know) that thyroid tested in April 2015 when I went to gp with pain, stiffness,
Ali1972
in
Thyroid UK
6 years ago
Is my loop recorder working it’s way out?
Hi all, I’m new here, I have a question I’m hoping you can help me with. Got my St Jude implant just over a month ago. It’s a neat piece of technology that works with a smartphone they gave me (it communicates via Bluetooth with the smartphone and the phone sends data to the cardiologist). Really glad
Hi all, I’m new here, I have a question I’m hoping you can help me with. Got my St Jude implant just over a month ago. It’s a neat piece of technology that works with a smartphone they gave me (it communicates via Bluetooth with the smartphone and the phone sends data to the cardiologist). Really glad
Evod
in
AF Association
6 years ago
Premature Ventricular Contracture
After a sleepless night and erratic heartbeat from 7pm til 2am, I called 999 this morning. The paramedics discovered I have Premature Ventricular Contracture. I’ve had VTach twice and take Flecainide and Verapamil daily, I also have some regurgitation from th3 Mitral and Tricuspid valves. I’ve had
After a sleepless night and erratic heartbeat from 7pm til 2am, I called 999 this morning. The paramedics discovered I have Premature Ventricular Contracture. I’ve had VTach twice and take Flecainide and Verapamil daily, I also have some regurgitation from th3 Mitral and Tricuspid valves. I’ve had
Bedlington14
in
Arrhythmia Alliance
6 years ago
Pvc bigimyi ablition
Hi just a follow up my son i posted a while back well he has finally got an apt for an ablition next month he is 16 with pvc bigmiyi current 18,000 per day and is now affecting his breathing during any sport" he is also taking noten at night as he said this is the worse time for him question
Hi just a follow up my son i posted a while back well he has finally got an apt for an ablition next month he is 16 with pvc bigmiyi current 18,000 per day and is now affecting his breathing during any sport" he is also taking noten at night as he said this is the worse time for him question
Grillsy
in
Arrhythmia Alliance
6 years ago
Split-Liver Leak
Hi everyone! I had a split liver transplant 5 weeks ago today and up until a week ago, I had a drain inserted just underneath my liver as bile was leaking out from the split edge. This can happen with split liver transplants, but not always. I was wondering if anyone here has had any experience with
Hi everyone! I had a split liver transplant 5 weeks ago today and up until a week ago, I had a drain inserted just underneath my liver as bile was leaking out from the split edge. This can happen with split liver transplants, but not always. I was wondering if anyone here has had any experience with
Oliviaamyprice
in
British Liver Trust
6 years ago
How long can someone live with stage 4 cirrhosis?
I am new to this here and I have stage 4 cirrhosis I live in the u.s. and the doctors here are very judgemental. I have Cushing's disease which caused Nash. And by the time they figured anything out I was stage four. They won't tell me much I'm not sure why. I'm itching quite a bit and I get really minor
I am new to this here and I have stage 4 cirrhosis I live in the u.s. and the doctors here are very judgemental. I have Cushing's disease which caused Nash. And by the time they figured anything out I was stage four. They won't tell me much I'm not sure why. I'm itching quite a bit and I get really minor
Memoore686
in
British Liver Trust
6 years ago
PVCs and help of CBD cream
CBD cream. Has anyone tried cbd cream and does it help. Also do any of you have pvc’s. Thank you. This is no fun.
CBD cream. Has anyone tried cbd cream and does it help. Also do any of you have pvc’s. Thank you. This is no fun.
Carly448
in
Fibromyalgia Action UK
6 years ago
New Health Concerns Alcoholic Cirrhosis
Hi everyone. I just have a question. My husband who was diagnosed 18 months ago with Cirrhosis has recently voiced a couple of health complaints. He has said that it feels like his esophagus has been burnt? Hurts like it is on fire. He has also stated that he has been up during the night with horrible
Hi everyone. I just have a question. My husband who was diagnosed 18 months ago with Cirrhosis has recently voiced a couple of health complaints. He has said that it feels like his esophagus has been burnt? Hurts like it is on fire. He has also stated that he has been up during the night with horrible
robynaspden
in
British Liver Trust
6 years ago
cant get help
hi, I was diagnosed with cirrhosis in 2015, ive had a few hospital visits, with the usual things, stomach drains, high ammonia levels, etc. Last w/end I was taken in for high ammonia, and discharged on m/day. It seems to me that my gp thinks the hospital will take care of me, so he sends me there. At
hi, I was diagnosed with cirrhosis in 2015, ive had a few hospital visits, with the usual things, stomach drains, high ammonia levels, etc. Last w/end I was taken in for high ammonia, and discharged on m/day. It seems to me that my gp thinks the hospital will take care of me, so he sends me there. At
Mercsclass320
in
British Liver Trust
6 years ago
Weaning off Flecainide
Hi all, I am new to this group and looking for any support to help me understand what to expect while weaning off of flecainide. I have been reading some of the posts, and I wonder why my EP ever put me on flec to start with. Anyway, I have been taking 50mg flecainide 2x a day along with 2.5mg Bystolic
Hi all, I am new to this group and looking for any support to help me understand what to expect while weaning off of flecainide. I have been reading some of the posts, and I wonder why my EP ever put me on flec to start with. Anyway, I have been taking 50mg flecainide 2x a day along with 2.5mg Bystolic
TerriMo
in
AF Association
6 years ago
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