Gaining weight which I thought was due to menopause , alarmed when bilateral ankle oedema ( could not see ankles ) . Gp appointment that day bloods etc 2 days later was called at home ca125 sky high , they thought it was ovarian cancer .
Luckily having private health I was able to see a gynaecologist that day where it was 95% ruled out , have to admit the relief was immense .
Now this diagnosis !! Complete shock . Feel like I am in a very dark tunnel.Emotional all the time , insomnia - I know it can be due to condition and /or medication but from being a normally positive person to one who has gone totally the other way I find this so very distressing .It feels like you have lost control over your own body.
Haven't drank for over 25 years ,did in the 80s (weekends , partying like most people but not over excessively),but this is what the specialist is putting my cirrhosis down too as all others ruled out.
I have a question which I am unable to get a straight answer to , if you are told today you have cirrhosis and you stop drinking today there is a chance that the liver can regenerate , why in 25 years didn't mine ?
I am also struggling with conflicting information re nutrition , want to have liver specialist nutritionist which is not easy to find , has anybody got a name of such one or a diet that they can share ?
If you are reading this then you / family members maybe going through this terrible condition and I thank you for taking time to read this.