My name is Omar Kadir, 62 y/o living in Malaysian Borneo. I have been recently diagnosed as suffering from cirrhosis of the liver. I am a non-drinker and non-smoker all my life. In the three months of being told that I am suffering from this serious liver condition, I have been reading a lot mostly online to know more about cirrhosis and one important fact about cirrhosis of the liver that doctors I have seen told me and also what I read online is that cirrhosis is irreversible. This is like being condemned to the Death Row and it is only a question of when your time is up to be called up to meet your Maker! Not a comforting thought at all and I am still trying to reconcile with this new episode of my life or whatever is left of it.
Maybe this is a typical reaction how most patients with cirrhosis of the liver react to when told they have the disease. If the medical profession insists that cirrhosis is reversible, are they merely following their SOP and protocols of their profession or is it a case of not wanting to think outside the box? I have read about milk thistle (silymarin or Silybum marianum Gaertn) and dandelion as supplementary or alternative medicines that are beneficial for sufferers of cirrhosis of the liver. But none of the doctors or liver experts would recommend these - "No Supplements" is their firm reaction when I raised the subject!
I have also read about a BBC report in 2006 on work done by a team of researchers at University of Newcastle UK on Sulfasalazine, a drug normally used to treat arthritis and inflammatory bowel disease, as having the potential to reverse the scarring associated with cirrhosis of the liver. The study by the Newcastle team of Professor Derek Mann, Professor Chris Day, Professor David Jones et al, concluded that sulfasalazine has the potential to provide an alternative to liver transplant especially to heavy drinkers suffering from alcoholic cirrhosis of the liver.
It would be greatly appreciated if any member or members of this group can update or share information of these alternative approaches to tackle cirrhosis of the liver - I would love to hear from someone who may have personal experience in using sulfasalazine for their cirrhosis problem or even from doctors or researchers who may have use or work on the "reversible" potential of sulfasalazine on cirrhosis patients.
Thank you & best regards from Malaysian Borneo.