Ok here goes.
I have commented on a few blogs and questions and I hope I've helped some people.
Let me tell you my story, in the hope that I can help others, like you. I am now 34.
I had gynae problems since I was 15. I have been told its ovulation pains, stomach migraines and all in my head and I'm making it up. Tough to hear when you are so young and impressionable. By 17, things were pretty bad, heavy painful periods and struggling every month. Eventually I was diagnosed with PCOS. However, whilst I have some parts of the syndrome I don't actually have the ovary appearance, which has baffled experts.
I'd been in and out of hospital for a few years with really bad pain but again just fobbed off. one told me if I had a child it would make everything better.
I got married at 23. Tried for a baby instantly. It didn't happen. We tried for 5 years. I craved this baby more than I thought possible. I had my name on the IVF list. I was having the 3 monthly tests for levels. The second test came back and I was told "it was an ok reading". That month passed and no period. Not odd for me as I would often by now not having monthly periods. anyway when the next one was due and not here and I felt a little odd, so I did a test.............it was positive! At last! My prayers had been answered! I was gonna have a baby!!!
That baby came on 30 November 2006, after a very long labour of 8 and half days!!!! My little miracle was put in my arms and everything suddenly made sense in life. She is now 6 and I am thoroughly blessed to have her. I thank god for her every day without fail. We have tried since she was born for baby number 2. Nothing has happened. Yes, I have one and I am eternally grateful for that but you see others with 2,3,4 children and I sit and think why not me???! Having one makes you realise what a blessing a child is and how some people don't realise that.
Things continued on and I was back and forth to the doctors with no periods and again fobbed off. just had a baby etc.
November 2010, I had the worst period ever and am sure to this day that it was a miscarriage, although I didn't know I was pregnant. Anyway pain continued to grow and by Christmas I was in agony. I went to the doctors who gave me antibiotics for a pelvic infection. 3 days later I was admitted to hospital, after having a scan. I had a 4.6cm hemorraghic cyst. The most extcruciating pain I've ever had. Was given antibiotics to flush out my system. Pain continued all year, leaving me unable to leave the house most days. In June I was signed up for a lap to find out the cause of the pain. Endo was only mentioned in passing but this is what I felt I had since I was 15.
26 August 2011, a day that would change my life forever. I had the lap. Sustained damaged to my epigrastic vein on the trocar entry site. As I had a blood clotting disorder I'd had a shot of clexane before the operation. I bled. They stopped the bleed. The op carried on. I had endo removal, adhesion removal and a cystectomy. 2 hours later I was in recovery. I never regained consciousness. Blood pressure was 40/20 and I was critically ill. they'd left a drain in and 2 hours later they realised that I was bleeding. By the time I was taken back to theatre, I had lost 6.5 pints of blood and needed resuscitation and 6 litre blood transfusion. I had the second operation. I was taken down at 1.30pm I was eventually taken back to the ward at 10pm. hooked up to all the monitors and drugs possible. I found out that I had endo on the intra uterine ligament which is a painful place for it to sit apparently.
The next day I had another blood transfusion as my levels dropped. After 5 days in hospital I came home. Pretty miraculous really. Or so I thought. I was then diagnosed with a DVT. I was on warfarin for 6 months. The abdo pain was unbearable and eventually at the end of November I went back to the ward and knocked on the door. A doctor saw me and had loads of tests, scans, swabs etc and they realised I had a massive infection where I'd had the bleed in my abdominal cavity.
5 months later and 8 courses of antibiotics, I was the lowest I'd ever been. I'd lost my fight for life and really struggled. Eventually I had some kind of emotional breakdown and then had a fight on my hands with depression. Pretty bad some days. Helpless, blackness, and unable to feel anything except pain, and thoughts of why is all this happening to me??? If I could make sense of that I'd have been so much better about it all but there are no explanations. It just was.
7 months later I was on the operating table again having another lap as I was in agony. Very worried and stressed but I went private this time as I'd picked a specialist I'd heard lots about. Best thing ever for me. Found out that I had some puddles of blood remaining in the pouch of douglas and that was what was causing the pain and also another lot of adhesions had formed. 3 days later I was finally back on track. I walked 3 miles, a few twinges but it was me!
I'm now 15 months on from the first lap, I am stronger but I have to admit there have been many black moments and struggles. I am now off the anti depressants, had a course of CBT and finally getting my life back. 3 months ago I laughed and finally felt my laugh and happy. Its been a long road but one I'd do again in a shot to be where I am now - it has made me who I am. I am still having problems with my periods but I think that I am accepting of that.
I have a fantastic husband who has supported and nursed me, a beautiful daughter and a fairly good life. almost pain free most days too so it was worth it
Endo nearly took my life BUT its not gonna stop me!!! You are only here once, you need to make the most of every moment!!! life is for living!!! You gotta do what you gotta do!!!
Happy Christmas to you all! This is one that I am going to enjoy!!!