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One year ago, my spasticity was so severe I took too many Baclofen tablets at the same time, that I almost died! Now I take 1 Tizanidine at bedtime. I also have a small notebook I keep next to all the muscle-relaxing pills and log in what I take to make sure I never overdose on muscle relaxing drugs
One year ago, my spasticity was so severe I took too many Baclofen tablets at the same time, that I almost died! Now I take 1 Tizanidine at bedtime. I also have a small notebook I keep next to all the muscle-relaxing pills and log in what I take to make sure I never overdose on muscle relaxing drugs
Online2020
in
My MSAA Community
8 months ago
Rheumatologist diagnosis
Hi My Rheumy says my PMR is atypical with a normal CRP . My ESR is 39 . Which she believes is normal and it’s due to my weight - 14 stone . Wants to refer me to physio, this will be excruciating . The pain already makes me feel sick and like I’m going to pass out . She did ‘query’ inflammatory arthritis
Hi My Rheumy says my PMR is atypical with a normal CRP . My ESR is 39 . Which she believes is normal and it’s due to my weight - 14 stone . Wants to refer me to physio, this will be excruciating . The pain already makes me feel sick and like I’m going to pass out . She did ‘query’ inflammatory arthritis
TedTheMaineCoon
in
PMRGCAuk
8 months ago
Adenomyosis/Endometriosis Pain Management
Hi All, Just looking for a bit of advice. I was diagnosed with Adenomyosis and Fibroids at 38. Its only been a year and a half but Im struggling hugely. I am very depressed and cant motivate myself day to day. I have constant pain in my lower abdomen, tailbone and Left bum. My pain has progressed
Hi All, Just looking for a bit of advice. I was diagnosed with Adenomyosis and Fibroids at 38. Its only been a year and a half but Im struggling hugely. I am very depressed and cant motivate myself day to day. I have constant pain in my lower abdomen, tailbone and Left bum. My pain has progressed
ABFr23
in
Endometriosis UK
8 months ago
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Rising PSA last Lutetium 177 December 2022
My husband finished his 6th treatment of Lutetium 177, December 2022 PSA 1, PSA starting to rise May 4.6 September 8.4, the Oncologist can only offer Chemo, can refer him for R223 to another hospital, what are his choices now, chemo nearly killed him in 2010 Got COVID at Easter had 7 vaccinations,
My husband finished his 6th treatment of Lutetium 177, December 2022 PSA 1, PSA starting to rise May 4.6 September 8.4, the Oncologist can only offer Chemo, can refer him for R223 to another hospital, what are his choices now, chemo nearly killed him in 2010 Got COVID at Easter had 7 vaccinations,
Janhpr
in
Advanced Prostate Cancer
8 months ago
CHANGING ROOM CHAT...NOVEMBER...WEEK 3...Come on in!
Put your back into it... yeah, right! Good morning folks... welcome to the Changing Room... Yes I know, I am late again! Please forgive me...life is a tad hectic right now... with loads of appointments for Mr OF... But...I am here, fresh as a daisy... well almost, after a short session of Yoga with
Put your back into it... yeah, right! Good morning folks... welcome to the Changing Room... Yes I know, I am late again! Please forgive me...life is a tad hectic right now... with loads of appointments for Mr OF... But...I am here, fresh as a daisy... well almost, after a short session of Yoga with
Oldfloss
Administrator
in
Strength & Flex
8 months ago
Let’s see? Bowel perforation and GCA Flare ?
I’ve been absent for a while…Reader’s Digest Version to follow. Though I haven’t been posting, I’ve been reading for a bit, and as usual….” You raise me up,” and I’m grateful. You may recall I had shoulder replacement surgery in July, and my arm is in amazing condition considering the interruptions
I’ve been absent for a while…Reader’s Digest Version to follow. Though I haven’t been posting, I’ve been reading for a bit, and as usual….” You raise me up,” and I’m grateful. You may recall I had shoulder replacement surgery in July, and my arm is in amazing condition considering the interruptions
Grammy80
in
PMRGCAuk
8 months ago
Oxygen saturation
Based on our experiences the last few days, I wondered if low oxygen saturation is a common issue in PSP?My husband was taken to A&E in an ambulance on Monday - after ECG, blood tests and chest X-ray, it turned out that his chest pains were just muscular and that his heart and lungs were perfectly fine
Based on our experiences the last few days, I wondered if low oxygen saturation is a common issue in PSP?My husband was taken to A&E in an ambulance on Monday - after ECG, blood tests and chest X-ray, it turned out that his chest pains were just muscular and that his heart and lungs were perfectly fine
Bergenser
in
PSP Association
8 months ago
Airing Pain 140: Out now!
[i]
Airing Pain
[/i] edition 140: Childhood Pain - Adverse Experiences and Parental Relationships is now available to listen to here: https://painconcern.org.uk/airing-pain-140-childhood-experiences/ Full transcript is available online and to download, as well as a captioned video on YouTube.
[i]
Airing Pain
[/i] edition 140: Childhood Pain - Adverse Experiences and Parental Relationships is now available to listen to here: https://painconcern.org.uk/airing-pain-140-childhood-experiences/ Full transcript is available online and to download, as well as a captioned video on YouTube.
PainConcernHelpline
Pain Concern
in
Pain Concern
8 months ago
Care Home response
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Wybert
in
PSP Association
8 months ago
Spinal stenosis
Hi, I am quite new here so unsure how it all works. I have been diagnosed with spinal stenosis, bulging disc, fibro, nerve damage, problems in my knees . I knew about the disc whilst working but saw a chiropractor twice a year & kept fit walking. I'm now unable to work since my back went in 2020. Sciatica
Hi, I am quite new here so unsure how it all works. I have been diagnosed with spinal stenosis, bulging disc, fibro, nerve damage, problems in my knees . I knew about the disc whilst working but saw a chiropractor twice a year & kept fit walking. I'm now unable to work since my back went in 2020. Sciatica
Milkybar
in
Pain Concern
8 months ago
After some advice
I'm 57 yo post menopausal woman with hypermobility and POTS (POTS only diagnosed in 40's after much pushing with medical profession). I take HRT and meds for POTS. I'm suffering with a number of tendonitis issues and wonder if anyone has any advice about this? At the moment it's achilles tendonitis
I'm 57 yo post menopausal woman with hypermobility and POTS (POTS only diagnosed in 40's after much pushing with medical profession). I take HRT and meds for POTS. I'm suffering with a number of tendonitis issues and wonder if anyone has any advice about this? At the moment it's achilles tendonitis
Lizzog
in
Ehlers-Danlos Support UK
8 months ago
Bronchiectasis consultation
Hi Diagnosed 3 weeks ago and saw respiratory consultant last week. Prescribed tablets carbocisteine for throat mucus and physio appointment arranged to show me how to clear lungs. rescue pack arranged at local doctors. had covid and flu jabs. given information booklet . sanitising after every visit
Hi Diagnosed 3 weeks ago and saw respiratory consultant last week. Prescribed tablets carbocisteine for throat mucus and physio appointment arranged to show me how to clear lungs. rescue pack arranged at local doctors. had covid and flu jabs. given information booklet . sanitising after every visit
johngk
in
Lung Conditions Community Forum
8 months ago
Began running at 62
I started running 2 years ago at 62 havning been told by a physio I shouldn't run due to my gait. I did Couch 25k in 6 weeks, loved it and carried on doing my first 10k race 8 months later. Have done 2 more since then.. Took time out for an injury this summer (not running related), and I'm back going
I started running 2 years ago at 62 havning been told by a physio I shouldn't run due to my gait. I did Couch 25k in 6 weeks, loved it and carried on doing my first 10k race 8 months later. Have done 2 more since then.. Took time out for an injury this summer (not running related), and I'm back going
Catspaws10
in
Couch to 5K
8 months ago
prucalopride - Tips
Hi Have been suffering with chronic constipation for that last 2 years, plus pain in the pelvic floor area & rectum. Mixture of pressure & burning pain. My NHS Gastro & physio appointments are currently 3/4mths apart so if I make any kind of improvement it is diminished by the time I get back to them
Hi Have been suffering with chronic constipation for that last 2 years, plus pain in the pelvic floor area & rectum. Mixture of pressure & burning pain. My NHS Gastro & physio appointments are currently 3/4mths apart so if I make any kind of improvement it is diminished by the time I get back to them
Hopetobewell
in
IBS Network
8 months ago
Inflamation/magnesium
Hi Everyone, I have a question for the wise ones. I will try to keep it as short as possible. In early September feeling good I took the heavy loppers to the climbing roses on the house, next day my right shoulder was very painful and my left sore and with pins and needles at certain angles. After a
Hi Everyone, I have a question for the wise ones. I will try to keep it as short as possible. In early September feeling good I took the heavy loppers to the climbing roses on the house, next day my right shoulder was very painful and my left sore and with pins and needles at certain angles. After a
Dukeyears
in
PMRGCAuk
8 months ago
hip pain
hi I’m on week 7 of couch to 5k but had to stop this week due to severe hip pain, I feel gutted, seeing a physio tomorrow and hoping I don’t have to stop running, I really love it. Anyone else had this? I am 43, never ran in the past and I am 3 stone overweight which I am working on.
hi I’m on week 7 of couch to 5k but had to stop this week due to severe hip pain, I feel gutted, seeing a physio tomorrow and hoping I don’t have to stop running, I really love it. Anyone else had this? I am 43, never ran in the past and I am 3 stone overweight which I am working on.
Labrats
in
Couch to 5K
8 months ago
Doctor won't test for celiac?
I've had stomach pains for as long as I can remember, was diagnosed with IBS 7 years ago, was tested for celiac 7 years ago and negative.Last year or so my bloating has got so much worse to the point I'm constantly bloated, very gassy, stomach aches nearly daily. Ive also had joint pain in both knees
I've had stomach pains for as long as I can remember, was diagnosed with IBS 7 years ago, was tested for celiac 7 years ago and negative.Last year or so my bloating has got so much worse to the point I'm constantly bloated, very gassy, stomach aches nearly daily. Ive also had joint pain in both knees
Elle295
in
Gluten Free Guerrillas
8 months ago
Somatic tinnitus
Hi All, I have had T for 7 months. It isn’t hearing related. However, as I have been on this journey, I have noticed that I have the T constant 24/7 that often changes with random spikes. However, I am also experiencing somatic T that I wasn’t fully aware of before. I was diagnosed with TMD and have
Hi All, I have had T for 7 months. It isn’t hearing related. However, as I have been on this journey, I have noticed that I have the T constant 24/7 that often changes with random spikes. However, I am also experiencing somatic T that I wasn’t fully aware of before. I was diagnosed with TMD and have
Sassyjax1
in
Tinnitus UK
8 months ago
Chest CT scan/Myositis bloods/MRI - right knee Quadricep Tendon Rupture Report update
MRI report - 30 weeks post surgery Right knee - sustained Quadricep Tendon Rupture injury Lateral collateral structures plus meniscus and cartilage grossly intact-meniscus is slightly discoid. https://orthoinfo.aaos.org/en/diseases--conditions/discoid-meniscus I have had intensive intervention with
physiotherapy
MRI report - 30 weeks post surgery Right knee - sustained Quadricep Tendon Rupture injury Lateral collateral structures plus meniscus and cartilage grossly intact-meniscus is slightly discoid. https://orthoinfo.aaos.org/en/diseases--conditions/discoid-meniscus I have had intensive intervention with
physiotherapy
Energy14
in
LUPUS UK
1 year ago
Exercise and PMR
I am posting an update and a question. Since discovering I have PMR in Sept 2023 and starting on Pred at 15 mg, I have had a slightly bumpy start to my PMR journey. Was getting used to being on Pred when I had a visit from the Covid fairy which took a couple of weeks to clear, but I still feel I have
I am posting an update and a question. Since discovering I have PMR in Sept 2023 and starting on Pred at 15 mg, I have had a slightly bumpy start to my PMR journey. Was getting used to being on Pred when I had a visit from the Covid fairy which took a couple of weeks to clear, but I still feel I have
Indigo2417
in
PMRGCAuk
8 months ago
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