Ehlers-Danlos Support UK (EDS) assists those with Ehlers-Danlos. It is a genetic connective tissue...Read more
Should I go to the doctors with these symptoms
Emilyeagleowl18 days ago
17 Replies1 Like
I need your views on pain and fatigue for the NHS.
DISC2 days ago
Hi all. My senior pain consultant is interested in changing attitudes in the medical world when it comes to fatigue when ilinked to pain, an...
Weight gain. How do I shift the extra pounds?
Pennyguin146 days ago
I have many problems one being hEDS. I am 5ft5 at 13st4 and I feel so unhappy. I do Physio exercises when I remember. I've been told not to ...
Understanding Needed Please
Jk28336 days ago
Hi I've been diagnosed with being on the hypermobility joint spectrum, apparently all types of hypermobility come under this name now accord...
4 Replies1 Like
Granddaughter has heds confirmed
Elth8 days ago
Hi We have just had confirmation ( 6 days ago) that my granddaughter (9 y old). has heds . We went private in the end as we were just going ...
Diagnosis.. can anyone help me with the understanding of it all please
Leahmead1a month ago
Hi, I was refered and recently now been diagnosed with hypermobility spectrum disorder bordering EDS (2017 EDS criteria) and chronic widespr...
6 Replies2 Likes
EDS and Bladder Failure
EBashforda month ago
6 Replies1 Like
cwhelan2623 days ago
hi my name is charlotte I was diagnosed back in April with eds type 3, since then I have been referred to pain management and physio, the do...
yoda148912 days ago
Hi. I’m 37F. I have ED hyper mobility, POTS, and Asthma
3 Replies1 Like
Best splints to buy?
Hi can anyone recommend some splints that are reasonably priced and effective? I need them for ankles, feet, wrists and knees. I do have som...
What other conditions have you been diagnosed with in addition to EDS?
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