Ehlers-Danlos Support UK (EDS) assists those with Ehlers-Danlos. It is a genetic connective tissue condition that is a multi-systemic syndrome.Read more
How can I get urgent/quick diagnosis..before sons operation?
Tillyray18 days ago
Hi everyone. I wonder if you can help...
Great Ormond Street
Rachel-M12 days ago
Confused after rheumatology appointment,need advice please!
Tillyray6 days ago
Hello everyone.I have finally seen the rheumatologist at my follow-up appointment, and I am left feeling confused, upset and angry...
Got diagnosed with EDS but my current neurologist doesn't believe it- anyone else with an abnormal EEG and cognitive impairment?
VictoriaD199120 days ago
Hello forum world for people with too many issues to fit on an A4 paper...
The pain ladder and medication. Cocodamol does zilch.
TianneD287 days ago
So I'm on 30/500 2 pills a day 4x a day. I have EDS, instability of lower limbs, a joint deformity in my hip and a labral tear in the same h...
Has anyone developed Varicose veins at an early age?
Tillyray12 days ago
Hello everyone.I am wondering if anyone developed varicose veins at an early age...
Anyone else get ear pain?
Lin5314 days ago
Hello everyone. This may sound silly, but does anyone else get ear pain associated with their hypermobility? I have it in my left ear, feel...
4 Replies2 Likes
I'm new..unexplained symptoms?
Tillyray21 days ago
Hello to everyone.I'm new on here..I've had a diagnosis of fibromyalgia for 7 years and I have IBS, also many symptoms I suffer (2 lists on ...
Bowski3 days ago
Hello new to this but any advice for EDS and work would be helpful
Tingling in legs
Fhfay12 days ago
I have EDS type III and for the last 12 months or so I have been experiencing tingling (like pins and needles) in my legs from thigh to ankl...
What other conditions have you been diagnosed with in addition to EDS?
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