Ehlers-Danlos Support UK | HealthUnlocked

My Ehlers Danlos consists of long term muscle spasms. I take celebrex and diazepam constantly. I recently provoked an old injury to a vertebrae between my...

Hi all, I was just wondering if people with hypermobility tend to take longer to heal from a broken bone. I've recently dislocated and broken my shoulder...

Hello everyone! Does anybody know if you can drink silica water with EDS and spastic paraperesis? Silica water removes toxins and heavy metals from the body....

Hiya Has anyone had PDS, or have any knowledge whether it’s associated with EDS? My rheumy has dx’d me with hEDS. Thanks a lot

Anyone else with hypothyroidism? Does being undermedicated for your thyroid make your eds worse and if yes then in what way? More hyper mobile? I'm suspecting...

Hello, I was wondering if anyone has tried any treatments for neuropathic pain that have worked without causing autonomic issues? The common options like...

Hi everyone, I was just wondering if anyone has Hypermobility Spectrum Disorder and has also been diagnosed with PBC? Thanks

I'm 57 yo post menopausal woman with hypermobility and POTS (POTS only diagnosed in 40's after much pushing with medical profession). I take HRT and meds for...

Bit of a ramble incoming. I'm 24 and have had symptoms such as generalised stiffness & aches, back & wrist/knee pain since I was about 8. I noticed in my teen...

Hello! For years now been having issues swallowing. The hospital want to do an endoscopy (hope that's the right word!) However for the last year I've been...

I'm at the end of my tether with the whole suitable shoe drama. My daughter who is now 14 has to wear orthotics specially made by podiatry who, along with a...

Hi everyone, new poster here!I'm on the joint hypermobility spectrum, and was wondering if anyone here had any tips on finding a position to sleep in that...

Hi everyone, We're looking for a dentist in the UK, hopefully close to London or even in the surrounding area that knows about EDS. Can anyone recommend...

... hypothyroidism treatment? If so, did T4 alone help or did you need to add some T3 into the mix? ... Methylfolate as suggested by researchers at Tulane...

Hi there, I was Dx with EDS Type III back in 2013, and have been in the recent years had Lichen Schlerosus symptoms . My gynae initially said it was eczema...

I am what I’ve classed as flexible for a long time and seem to meet a few points on the Beighton scale from judgement at home. Can I see a physio in the uk...

Hi everyone, I've joined the group today as I'm not sure if my son has hypermobile EDS and I'm not sure where to turn and what to do next. He has lots of...

I get very cold after eating. Anyone know anything about this? Thanks.

. It was 85 and weather said it felt like 95. I went for a walk for half an hour. I did not sweat. Is this an issue?

Hi there. I have a diagnosis of HSD but my specialist EDS physio and GP both now think it is actually HEDS due to recent prolapse and confirmation of high...

So, I have a problem with dislocating and subluxing my shoulders. It has been happening for nearly ten years. It started with every other month and then every...

Hello, I have recently been diagnosed with Hypermobility EDS, via a Consultant who I was seeing for sudden non ige allergic reactions. During an hour's...

Hi!I was wondering if anyone else is struggling with this and maybe knows what causes it and something to help it. My hip sometimes gets really sore which is...

Hi there. Thanks for taking the time to read my post. I have recently been diagnosed with PoTs and I also have fibromyalgia and erythromelalgia. At my recent...

We thought Mum had dementia and the EDS (diagnosed) means she lives with pain and is unsteady. It just transpired that she has had a long term kidney infection...

Hi people! I’ve accidentally stumbled across this site, so quickly signed up. Hoping to communicate with people with similar experiences and issues. Not sure...

I was referred for an upright MRI by my rheumatologist last June but my Gp flat out refuses to make an individual funding request for me to have it and...

I am under investigation with NHS at the moment, at my request, given I think a lot of what I have experienced over decades corresponds to EDS. The NHS physio...

I was tested my my rheumatologist due to Ehlers Danlos, multiple hernias beginning age 18 months, cervical instability, and my mother passed away from clotting...

I may have surgery because someone looked at my wrist and misread an x-ray. I knew it didn't feel right and was told it was soft tissue damage. Gladly because...