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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Is severe pain 2 days after a period a PCOS symptom?
Hi all, I'm curious to know if what I'm experiencing is a known additional symptom of PCOS or could it possibly be caused by endometriosis? Or something else? I am 35, was diagnosed with PCOS in my early 20s. I'm not on the pill or anything to manage it (due to having DVT once in the past caused by
Hi all, I'm curious to know if what I'm experiencing is a known additional symptom of PCOS or could it possibly be caused by endometriosis? Or something else? I am 35, was diagnosed with PCOS in my early 20s. I'm not on the pill or anything to manage it (due to having DVT once in the past caused by
snowflakemidnight
in
PCOS UK (Verity)
4 years ago
Severe pain two days after period ended - Is this a sign of endo?
Hi all, I'm curious to know if what I'm experiencing could possibly be caused by endo or if anyone else has experienced anything similar.... I am 35, was diagnosed with PCOS in my early 20s. I'm not on the pill or anything to manage it (due to having DVT once in the past caused by the pill). I normally
Hi all, I'm curious to know if what I'm experiencing could possibly be caused by endo or if anyone else has experienced anything similar.... I am 35, was diagnosed with PCOS in my early 20s. I'm not on the pill or anything to manage it (due to having DVT once in the past caused by the pill). I normally
snowflakemidnight
in
Endometriosis UK
4 years ago
Vitamin results. Any guidance please??
I have got my blood test results. What you think please? B12 245ng/L range (120-900) Serum c 1ng/L (0-5) Mean cell haemoglobin level 31ng/L (27-32) Monocyte count observetion 0.8 10^9/L (0-0.8) Serum ferritin level 41ng/ml (15-300) Serum globulin level 32g/l (20-35) Serum free T4 level
I have got my blood test results. What you think please? B12 245ng/L range (120-900) Serum c 1ng/L (0-5) Mean cell haemoglobin level 31ng/L (27-32) Monocyte count observetion 0.8 10^9/L (0-0.8) Serum ferritin level 41ng/ml (15-300) Serum globulin level 32g/l (20-35) Serum free T4 level
Ela_peraj
in
Thyroid UK
4 years ago
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Struggling after long period of remission
If I were needing treatment again for sero negative arthritis would they put me back on DMARD’s after 4 years without them? Previously took Sulphasalazine, Methotrexate, Hydroxychloroquine altogether then had bony erosions in wrist which was fused. Came off those and tried Leflunomide which I had a reaction
If I were needing treatment again for sero negative arthritis would they put me back on DMARD’s after 4 years without them? Previously took Sulphasalazine, Methotrexate, Hydroxychloroquine altogether then had bony erosions in wrist which was fused. Came off those and tried Leflunomide which I had a reaction
Hidden
in
NRAS
4 years ago
Newly diagnosed and had laparoscopy
Had a laparoscopy three weeks ago was hoping with the pain that comes with healing until 5 days ago. Now have excruciating pain in my pelvis and been told can’t speak to consultant till 20th Oct. I’m having to take co-codamol just to be able to get out of bed has anyone else experienced this
Had a laparoscopy three weeks ago was hoping with the pain that comes with healing until 5 days ago. Now have excruciating pain in my pelvis and been told can’t speak to consultant till 20th Oct. I’m having to take co-codamol just to be able to get out of bed has anyone else experienced this
MzLita
in
Endometriosis UK
4 years ago
Has anyone else had this type pain?
Ok. I know I’ve been posting a lot over the last 3 weeks. If this is endometriosis then I have never had a flare up or symptoms like this before. I was diagnosed with endometriosis over a year ago through laparoscopy. I just mean that the doctors initially thought that there was another reason for my
Ok. I know I’ve been posting a lot over the last 3 weeks. If this is endometriosis then I have never had a flare up or symptoms like this before. I was diagnosed with endometriosis over a year ago through laparoscopy. I just mean that the doctors initially thought that there was another reason for my
EndoEffect
in
Endometriosis UK
4 years ago
Help with blood results
So, the endo is happy with my T3 and T4. Mid to upper range. However I still suffer from bloating, hair loss and fairly rapid pulse (90 bpm) . I take 50mcg levo and 1 grain Thai NDT. I had my iron checked in June 19. GP told me that my levels were ‘normal’. I’ve recently had the Mirena coil removed
So, the endo is happy with my T3 and T4. Mid to upper range. However I still suffer from bloating, hair loss and fairly rapid pulse (90 bpm) . I take 50mcg levo and 1 grain Thai NDT. I had my iron checked in June 19. GP told me that my levels were ‘normal’. I’ve recently had the Mirena coil removed
Boon79
in
Thyroid UK
4 years ago
Co-codamol
Please can I have a little help. Although possibly a silly question. I have been taken off the Butrans pain patches due to the bad reactions to them. I have since been tried on 2 Amitriptyline at night, also Pregabalin twice a day. And just recently started as well, on Co-codamol, initially 1 of the
Please can I have a little help. Although possibly a silly question. I have been taken off the Butrans pain patches due to the bad reactions to them. I have since been tried on 2 Amitriptyline at night, also Pregabalin twice a day. And just recently started as well, on Co-codamol, initially 1 of the
Hidden
in
Pain Concern
4 years ago
Medication for osteoarthritis of the knee
Just been diagnosed Osteoarthritis of the knee and given ibuprofen Gel and Co-codamol but nothing is helping it hurts all the time and I can’t sleep at night can anyone give me some advice what to ask my doctor for another pain killer like maybe steroids.
Just been diagnosed Osteoarthritis of the knee and given ibuprofen Gel and Co-codamol but nothing is helping it hurts all the time and I can’t sleep at night can anyone give me some advice what to ask my doctor for another pain killer like maybe steroids.
Purpleshoe
in
Stand Up 2 OA
4 years ago
Iron may not be what we think it is.
The latest thinking from RLS research is that when we talk about iron ,we should be looking at Haemoglobin (hgb) rather than ferritin. This is from the latest magazine of the Restless legs Foundation ( Nightwalkers summer 2020). James R Connor PhD. The thinking is that hgb levels are a better indication
The latest thinking from RLS research is that when we talk about iron ,we should be looking at Haemoglobin (hgb) rather than ferritin. This is from the latest magazine of the Restless legs Foundation ( Nightwalkers summer 2020). James R Connor PhD. The thinking is that hgb levels are a better indication
Madlegs1
in
Restless Legs Syndrome
4 years ago
Blue Badge before applying for PIP
Hello everyone, I hope you’re all staying warm and dry on this miserable wet Saturday?! I’m new to the site and was wondering if anyone can shed light on my question. I have been diagnosed some 20 years with RA that then got changed to PsA and 4 years ago an MRI scan diagnosed deterioration of the lumbar
Hello everyone, I hope you’re all staying warm and dry on this miserable wet Saturday?! I’m new to the site and was wondering if anyone can shed light on my question. I have been diagnosed some 20 years with RA that then got changed to PsA and 4 years ago an MRI scan diagnosed deterioration of the lumbar
MadamePetitPois
in
NRAS
4 years ago
Just want to share wonder drug for me!!
Hi guys so I was practically a wreck due to panic attacks anxiety and chronic pain but I have started duloxetine honest to god I've stopped sertraline amitriptyline and Co codamol 30/500 since I'm still not sleeping and only get 3 hours a night I don't crash either wich is a shame however my nervous
Hi guys so I was practically a wreck due to panic attacks anxiety and chronic pain but I have started duloxetine honest to god I've stopped sertraline amitriptyline and Co codamol 30/500 since I'm still not sleeping and only get 3 hours a night I don't crash either wich is a shame however my nervous
Hidden
in
Fibromyalgia Action UK
4 years ago
Any midnight treatments/ tricks to help sleep when Codeine hasn't worked and stem the attack?
I'm 28, Male and have been living with it for 10 years, on/ off and manageable in earlier life, it's progressively getting worse, especially recently as I've lost weight/ exercising more. Have tried Gabapentin and Iron supplements in the past to no avail. Usually it comes on like an attack either when
I'm 28, Male and have been living with it for 10 years, on/ off and manageable in earlier life, it's progressively getting worse, especially recently as I've lost weight/ exercising more. Have tried Gabapentin and Iron supplements in the past to no avail. Usually it comes on like an attack either when
Dabbskebabs
in
Restless Legs Syndrome
4 years ago
iron's role in B12 injections
Could I ask your opinion please on iron? There are two conflicting views: B12 injections bring down iron levels and B12 will help absorption of iron and therefore increase them. I don’t have and never had macrocytosis. If iron, like potassium, is used in the formation of red blood cells only if there
Could I ask your opinion please on iron? There are two conflicting views: B12 injections bring down iron levels and B12 will help absorption of iron and therefore increase them. I don’t have and never had macrocytosis. If iron, like potassium, is used in the formation of red blood cells only if there
Kerrierach
in
Pernicious Anaemia Society
4 years ago
Fibroscan and possibly biopsy
Afternoon all A while ago I was referred to a specialist as liver blood test wasn't right ? No idea really why there not right doctor never said? So eventually I've had a call couple of weeks ago from specialist and I have to go for a fibroscan if this doesn't come back ok it will also be a liver
Afternoon all A while ago I was referred to a specialist as liver blood test wasn't right ? No idea really why there not right doctor never said? So eventually I've had a call couple of weeks ago from specialist and I have to go for a fibroscan if this doesn't come back ok it will also be a liver
worriedcats
in
British Liver Trust
4 years ago
Tight neck muscles excruciating headache
Hi all it’s been a while since I’ve posted on the site, hope you’re all keeping safe and well. I’ve not been so good lately and am having a severe flare after having to miss my methotrexate for two weeks (long story but gastroenteritis and a hospital visit were involved). Anyway I’m looking for any
Hi all it’s been a while since I’ve posted on the site, hope you’re all keeping safe and well. I’ve not been so good lately and am having a severe flare after having to miss my methotrexate for two weeks (long story but gastroenteritis and a hospital visit were involved). Anyway I’m looking for any
Froggie70
in
LUPUS UK
4 years ago
Hi, 37 years with Crohn’s disease and B12 deficiency plus folate deficiency. New member.
Hi there.... just joined this site today. Hoping to find people in similar situation for support and sharing experiences. Thanks x
Hi there.... just joined this site today. Hoping to find people in similar situation for support and sharing experiences. Thanks x
B12_crohnie
in
Pernicious Anaemia Society
4 years ago
supplements timings
Hi, I know this has been asked before but i can't find any posts on it. I take my levothyroxine first thing in the morning, and i'm going to start taking vitamin D, B12 and iron. I'm sure iron needs to be taken away from anything else but i wondered can i take vitamin B12 and D together? I was thinking
Hi, I know this has been asked before but i can't find any posts on it. I take my levothyroxine first thing in the morning, and i'm going to start taking vitamin D, B12 and iron. I'm sure iron needs to be taken away from anything else but i wondered can i take vitamin B12 and D together? I was thinking
catpurple7
in
Thyroid UK
4 years ago
Ferritin
I came across some posts here helping somebody with low ferritin and you sound extremely knowledgeable and hope you can advise me. I've been having tests for an IBS type problem and the bloods found my ferritin is 10.1 (new word to me!) I was called with the result and was just told my Ferritin level
I came across some posts here helping somebody with low ferritin and you sound extremely knowledgeable and hope you can advise me. I've been having tests for an IBS type problem and the bloods found my ferritin is 10.1 (new word to me!) I was called with the result and was just told my Ferritin level
2008Oscar
in
Thyroid UK
4 years ago
Ferritin blood test result back for 10 year old with hashi
Hi there Well finally had ferritin blood test and full blood count done at surgery. I have been told that full blood count and ferritin normal and no further action required. My daughters ferritin was at 34 in January, she has grown since and also started her periods in Feb. Her ferritin level has now
Hi there Well finally had ferritin blood test and full blood count done at surgery. I have been told that full blood count and ferritin normal and no further action required. My daughters ferritin was at 34 in January, she has grown since and also started her periods in Feb. Her ferritin level has now
Refat
in
Thyroid UK
4 years ago
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