Has anyone else had this type pain?

[EndoEffect]

Ok. I know I’ve been posting a lot over the last 3 weeks. If this is endometriosis then I have never had a flare up or symptoms like this before. I was diagnosed with endometriosis over a year ago through laparoscopy. I just mean that the doctors initially thought that there was another reason for my pain rather than my endo. I just want to explain my pain journey over the past 3 weeks (severe and haven’t been able to go into work) and see if anyone has had anything similar.

- Started with abdominal and pelvic pain and needing to go to the toilet for a wee more than usual.

- Went to GP. Found slight abnormality in my urine sample and sent me home with 3 days antibiotics.

- Pain continued to get worse. Started progressing to my sides, ribs and back. GP gave me another 3 days of antibiotics for urine infection (different type)

- Pain continued to get worse and I started with a fever. Went to A&E. Had a temp of 38.9 degrees along with severe pain in middle and lower back and sides and abdominal pain. Doctors thought I was starting with a kidney infection. Sent me home with 7 days antibiotics for kidney infection.

- Pain continued and grew worse. Started getting dizzy spells too.

- Went to A&E again 2 days ago (Monday). Stabbing and shooting pain began in lower left back and left buttock along with continuing other pain. Limping when I walk. Had blood tests and urine sample. All came back clear. Docs think it could be to do with endometriosis because they don’t know what else it is. Docs spoke to Gynaecology and said that Gynaecology said they would ring me within a week (before Monday) and would get me in for scans and tests. Sent me home with strong co-codamol (30/500mg)

- I am currently lay in a very hot bath to help with pain. Struggled getting in. Left buttock is completely numb and numbness in left leg.

- Still not heard from Gynaecology yet.

Has anyone else had endometriosis symptoms similar to this? The doctors at my GP and A&E seemed clueless and I can’t just be off work for weeks or months and given pain meds. I am struggling to walk. I don’t get paid at all when I’m not in work. I work in a nursery as a relief nursery nurse full time. I also should be finishing my counselling placement in 5 weeks and qualifying as a therapeutic counsellor after completing my Level 4 Diploma. And I am really passionate about that and want to get into that career ASAP.

Feel lost and frustrated and confused. Help! Lots of love to you all. Anyone that has replied to me over the last few weeks, thank you so much. You are really helping me get through and find strength. ❤️

[Moon_maiden]

Very similar last year, given antibiotics for kidney infection.

I’d give the gynae department a ring tomorrow and see if they received the referral and where you are on the list. Explain what GP had told you. Alternatively give surgery a call and tell them you haven’t heard from gynae and you’d been told you’d get a call within a week. There seems to be a degree of micromanaging these days.

Good luck, hope you get answers very soon.

[Lindle]

Obviously you don't know if you have endo but these symptoms are typical of rectovaginal endo affecting the uterosacral ligaments which is the most common location for endo. There is a nerve that runs along the ligament and pain is referred down the sciatic nerve. RV endo affects the left side mostly. You would usually get pain with sex too if you are sexually active, You need a thorough internal exam to feel for deep nodules there as that can give an immediate indication of deep endo. Ultrasound is excellent at detecting deep endo but only if done by an expert gynaecological sonographer so it is important that you are referred to a gynaecologist with expertise in diagnosing endo who had done advanced training and not just general gynaecology. Please feel free to pm if you want more help on treatment pathways. x

[Witty91]

If you have seen a gynecologist they should of told you that's how I got diagnosed on the 1st of September this year, when I had a lancroscopy as I could go into work most days

[EndoEffect]

I was diagnosed with endometriosis through laparoscopy just over a year ago. And they did find patches on my uterosacral ligaments. So I assume it has grown back or is worse or I’m having some sort of flare up at the minute? I have always worked full time with endometriosis so far. Just for the last week this pain has been so bad that I haven’t even been able to walk. So I cannot possibly do a 10 hour shift on my feet at nursery where I am picking up children and standing up and sitting down all day x