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Peroxisomal acyl-CoA oxidase deficiency
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Question about IV iron for anyone who has gotten an infusion.
Hey guys. Just asking this out of curiosity. But has anyone actually had RLS go away or improve after an IV iron infusion? I got one back in October and didn’t notice a perceivable difference. Pretty sure my levels are on the lower end now, so I’m getting an iron panel tomorrow but I just wanted to see
Hey guys. Just asking this out of curiosity. But has anyone actually had RLS go away or improve after an IV iron infusion? I got one back in October and didn’t notice a perceivable difference. Pretty sure my levels are on the lower end now, so I’m getting an iron panel tomorrow but I just wanted to see
Jademarie1
in
Restless Legs Syndrome
3 years ago
Blood test results and confused
Hi All, Still waiting to be seen by ENT. Meanwhile here is the result of blood test, can anyone help me understand if i've suddenly switched from hypothyriod to hyperthyriod? Is it possible and if so what is the next steps? Thank you.x TSH - 0.04mU/L (0.30 - 4.20mU/L) T3 - 5.6pmol/L (2.40-6.00pmol/L)
Hi All, Still waiting to be seen by ENT. Meanwhile here is the result of blood test, can anyone help me understand if i've suddenly switched from hypothyriod to hyperthyriod? Is it possible and if so what is the next steps? Thank you.x TSH - 0.04mU/L (0.30 - 4.20mU/L) T3 - 5.6pmol/L (2.40-6.00pmol/L)
noteboo
in
Thyroid UK
3 years ago
Diagnosis - Vitamin B12 or folate deficiency anaemia
The public-facing NHS England page about
[i]Diagnosis - Vitamin B12 or folate deficiency anaemia[/i]
includes this: [i]A particular drawback of testing vitamin B12 levels is that the current widely used blood test only measures the total amount of vitamin B12 in your blood. This means it measures
The public-facing NHS England page about
[i]Diagnosis - Vitamin B12 or folate deficiency anaemia[/i]
includes this: [i]A particular drawback of testing vitamin B12 levels is that the current widely used blood test only measures the total amount of vitamin B12 in your blood. This means it measures
helvella
in
Pernicious Anaemia Society
3 years ago
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Is it Osteoarthritis or R A?
I have had Osteoarthritis for more than 10yrs in a number of places, including bottom of my feet ankles hips spine elbow shoulder. Which has all gradually worsened, i take a lot of medications pregabalin for nerve damage pain co-codamol bu- trans patches, tramadol, etolac a anti depressant, and HRT.
I have had Osteoarthritis for more than 10yrs in a number of places, including bottom of my feet ankles hips spine elbow shoulder. Which has all gradually worsened, i take a lot of medications pregabalin for nerve damage pain co-codamol bu- trans patches, tramadol, etolac a anti depressant, and HRT.
caz1967
in
Osteoarthritis Action
3 years ago
Minoca and still have chest pains
Newbie here. I had a MINOCO at the end of July, I had been getting chests pains for months. Nothing showed up except for troponin raised levels. My blood pressure is always low, I am not overweight, I don't smoke or drink, so I'm not on any medication, except for a 10mg statin, which I have just stopped
Newbie here. I had a MINOCO at the end of July, I had been getting chests pains for months. Nothing showed up except for troponin raised levels. My blood pressure is always low, I am not overweight, I don't smoke or drink, so I'm not on any medication, except for a 10mg statin, which I have just stopped
Quiltingqueen
in
British Heart Foundation
3 years ago
Any advice
Sore joints especially first thing in morning,difficult to walk,taking co codamol but doesn’t seem to help much,been looking at supplements but there are so many plus I take omaprazole which might not agree with some supplements ,any advice would be appreciated
Sore joints especially first thing in morning,difficult to walk,taking co codamol but doesn’t seem to help much,been looking at supplements but there are so many plus I take omaprazole which might not agree with some supplements ,any advice would be appreciated
megans
in
IBS Network
3 years ago
Fred the iron molecules tale : The end
This will only make sense if you’ve read my previous post https://healthunlocked.com/rlsuk/posts/146515820/fred-the-iron-molecule-and-rls-a-story. There was a question in this post and I promised the writer of the best answer a chocolate muffin. It’s my opinion that the best information was provided
This will only make sense if you’ve read my previous post https://healthunlocked.com/rlsuk/posts/146515820/fred-the-iron-molecule-and-rls-a-story. There was a question in this post and I promised the writer of the best answer a chocolate muffin. It’s my opinion that the best information was provided
Hidden
in
Restless Legs Syndrome
3 years ago
Heart medication and CBD oil
Hi - prior to my heart attack and stent placement I took CBD oil on a regular basis - 2-3 drops twice daily. I did sone research, joined a CBD group and am now a member of the admin team. Whilst taking CBD I was able to stop my pain meds and tapered and eventually came off my anti-depressant medication
Hi - prior to my heart attack and stent placement I took CBD oil on a regular basis - 2-3 drops twice daily. I did sone research, joined a CBD group and am now a member of the admin team. Whilst taking CBD I was able to stop my pain meds and tapered and eventually came off my anti-depressant medication
Fiddlersmum
in
British Heart Foundation
3 years ago
Help.
Hey all. So, recently I have been really struggling to manage my pain, get out of that depressive mood, tiredness and the inability to sleep. I know they say that fibro can be linked to trauma, regardless of physical or emotional. In the last two months we have lost 2 family members to suicide. As you
Hey all. So, recently I have been really struggling to manage my pain, get out of that depressive mood, tiredness and the inability to sleep. I know they say that fibro can be linked to trauma, regardless of physical or emotional. In the last two months we have lost 2 family members to suicide. As you
Janjan81
in
Fibromyalgia Action UK
3 years ago
Fred the iron molecule, and RLS : A story.
A story with no ending. If you don't like stories skip to "THE END" I have an ex-colleague who used to teach physiology using guided imagery. I attended one of her lectures once on the oxygenation of blood. All the students had to close their eyes and sit, (or lie down) comfortably. Then she began
A story with no ending. If you don't like stories skip to "THE END" I have an ex-colleague who used to teach physiology using guided imagery. I attended one of her lectures once on the oxygenation of blood. All the students had to close their eyes and sit, (or lie down) comfortably. Then she began
Hidden
in
Restless Legs Syndrome
3 years ago
Dental abscess
Hello. I had my bottom two and upper left wisdom tooth removed on the 12th august. I developed dry socket in the bottom two and had to revisit the hospital three times to get them packed. I was on codeine, paracetamol and brufen for recovery and amitriptyline as I have TMJ. 48 hours ago I got a raging
Hello. I had my bottom two and upper left wisdom tooth removed on the 12th august. I developed dry socket in the bottom two and had to revisit the hospital three times to get them packed. I was on codeine, paracetamol and brufen for recovery and amitriptyline as I have TMJ. 48 hours ago I got a raging
Wanderlust96
in
Dentistry Health Support
3 years ago
Low blood pressure
Hi👋🏻 Has anyone had low blood pressure before a FET and had a successful outcome? This hasn’t happened before but I am wondering if it’s the mix of supplements I’m taking: Metformin Pre natal vitamins Ovulation support supplements Magnesium Calc Fluor Cod liver oil Probiotic Also want to try aspirin
Hi👋🏻 Has anyone had low blood pressure before a FET and had a successful outcome? This hasn’t happened before but I am wondering if it’s the mix of supplements I’m taking: Metformin Pre natal vitamins Ovulation support supplements Magnesium Calc Fluor Cod liver oil Probiotic Also want to try aspirin
RecipIVF
in
Fertility Network UK
3 years ago
Neuropathic Pain and AF
Hi. First time on but I would imagine this has been asked before so my apologies. I have suffered chronic pain for 6 years with a trapped ulnar nerve, the pain level is at times unbearable , numerous tests and nerve block but all to no avail as they can't find where it's trapped. I also have AF . The
Hi. First time on but I would imagine this has been asked before so my apologies. I have suffered chronic pain for 6 years with a trapped ulnar nerve, the pain level is at times unbearable , numerous tests and nerve block but all to no avail as they can't find where it's trapped. I also have AF . The
Nerja2012
in
Neuropathy Support
3 years ago
Low iron but normal ferritin levels. Iron tablets?
Hi. My symptoms of RLS have become noticeably worse in the last 9 months. I had my levels tested in March this year and my ferritin was 35 and my iron was 6.7. I was given an iron infusion which raised my ferritin to 172 and my iron to 8.1, which is still low (11 to 18 is normal). I noticed my RLS symptoms
Hi. My symptoms of RLS have become noticeably worse in the last 9 months. I had my levels tested in March this year and my ferritin was 35 and my iron was 6.7. I was given an iron infusion which raised my ferritin to 172 and my iron to 8.1, which is still low (11 to 18 is normal). I noticed my RLS symptoms
oceanred
in
Restless Legs Syndrome
3 years ago
Questions about Topamax
Hi, Everyone. Haven't been on here in a while. My doc wants me to take topamax. This is to reduce migraines but I've read it also might help RLS. Does anyone here know if it causes augmentation (since it's a dopamine agonist)? Any other info you can offer would be helpful, too. Side effects? She's
Hi, Everyone. Haven't been on here in a while. My doc wants me to take topamax. This is to reduce migraines but I've read it also might help RLS. Does anyone here know if it causes augmentation (since it's a dopamine agonist)? Any other info you can offer would be helpful, too. Side effects? She's
Restlesssinger
in
Restless Legs Syndrome
3 years ago
Update on op
Hi everyone, Well you are not going to believe this, but, my op got cancelled, 3.30pm today, ran out of time, the op is going to be a lot bigger than they thought, surgeon told me I will need bone graft taken from my lower leg to build up bone on hip, plus muscle transfer. He’s on holiday now for
Hi everyone, Well you are not going to believe this, but, my op got cancelled, 3.30pm today, ran out of time, the op is going to be a lot bigger than they thought, surgeon told me I will need bone graft taken from my lower leg to build up bone on hip, plus muscle transfer. He’s on holiday now for
2013mayo
in
PMRGCAuk
3 years ago
High B12 without injections - Symptoms of deficiency
TL;DR: Has anyone had levels of B12 above the standard reference range (while never having had any B12 injections) before getting diagnosed with PA? Hi, over the last couple of years Ive suffered from what I believe was bouts of anemia which I recovered using iron and B12 supplementation. After suffering
TL;DR: Has anyone had levels of B12 above the standard reference range (while never having had any B12 injections) before getting diagnosed with PA? Hi, over the last couple of years Ive suffered from what I believe was bouts of anemia which I recovered using iron and B12 supplementation. After suffering
pk97
in
Pernicious Anaemia Society
3 years ago
curcumin supplementation interfering with iron?
I am wondering if this Google article holds any truth. (I am low in ferritin and working on increasing it thru iron supplementation with Vit C) Turmeric And Iron Deficiency: Can too much turmeric intake lead to iron deficiency? "Turmeric And Iron Deficiency: Can too much turmeric intake lead to iron
I am wondering if this Google article holds any truth. (I am low in ferritin and working on increasing it thru iron supplementation with Vit C) Turmeric And Iron Deficiency: Can too much turmeric intake lead to iron deficiency? "Turmeric And Iron Deficiency: Can too much turmeric intake lead to iron
kicker2
in
Restless Legs Syndrome
3 years ago
Long term Fibromyalgia
Hi, suffered Fibromyalgia for over 10 years, made much worse post heart attack 6 years ago. Had to give up well paid job in airworthiness because my fog got too much to concentrate. Been juggling meds ever since. Now on Pregabalin 3 times a day, plus nortriptylene at night and co codamol when I need
Hi, suffered Fibromyalgia for over 10 years, made much worse post heart attack 6 years ago. Had to give up well paid job in airworthiness because my fog got too much to concentrate. Been juggling meds ever since. Now on Pregabalin 3 times a day, plus nortriptylene at night and co codamol when I need
Fra3021
in
Fibromyalgia Action UK
3 years ago
Nytol or any other antihistamine?
Hello, I have been struggling again with RLS since I possibly had Covid last year in March. My first time of RLS was in 2000 after I was ill with the Epstein Barr virus. After a few years of RLS it became less and less until I only had it a few nights per months and only always 2/3 nights before my menstruation
Hello, I have been struggling again with RLS since I possibly had Covid last year in March. My first time of RLS was in 2000 after I was ill with the Epstein Barr virus. After a few years of RLS it became less and less until I only had it a few nights per months and only always 2/3 nights before my menstruation
KassandraTroy
in
Restless Legs Syndrome
3 years ago
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