Minoca and still have chest pains - British Heart Fou...

British Heart Foundation

54,707 members34,239 posts

Minoca and still have chest pains

Quiltingqueen profile image
7 Replies

Newbie here.

I had a MINOCO at the end of July, I had been getting chests pains for months. Nothing showed up except for troponin raised levels. My blood pressure is always low, I am not overweight, I don't smoke or drink, so I'm not on any medication, except for a 10mg statin, which I have just stopped taking.

I've been back to the A&E 3 times since discharge for bad chest pains which the GTN does not alleviate. They cannot find anything wrong e.g. ECG , chest x-ray and blood test, except the 2nd time I went to A&E they kept me in overnight as my blood test showed there was a blood clot 'somewhere' in my system, but they discharged me the next day without further investigation.

I'm in a lot of chest pain every day, which radiates to my back, I'm taking co-codamol for this. The cardiac rehabilitation team have let me down with phone calls, and I'm now at my wit's end, trying to get help, and for some relief from this chest pain.

Has anyone else experienced after pains like this for weeks ? Or should I be concerned, as the drs don't seem to be listening to me.

Any help would be very grateful. Thank you Jen

Written by
Quiltingqueen profile image
Quiltingqueen
To view profiles and participate in discussions please or .
Read more about...
7 Replies
Milkfairy profile image
MilkfairyHeart Star

Hello Quiltingqueen,

Welcome to the forum.

Have you been told why you had your Myocardial infarction non obstructive coronary arteries MINOCA?

A MINOCA can be due to microvascular and or vasospastic angina known as Ischaemia non obstructive coronary arteries INOCA, Spontaneous coronary artery dissection, SCAD or a blood clot blocking a coronary artery.

There is a blood test d dimer that can confirm whether you have has a clot.

These conditions are often overlooked, poorly understood, under treated and under researched. They effect women more commonly than men.

There is very little information on the BHF website about MINOCA, however it is mentioned in the information about vasospastic angina.

bhf.org.uk/informationsuppo...

I suggest you keep a diary of your symptoms and how you respond to your medication.

Ask to be reviewed by your Cardiology team and ask for the cause of your MINOCA is identified.

It's important to have an accurate diagnosis as the treatment for Microvascular angina is different to vasospastic angina.

Quiltingqueen profile image
Quiltingqueen in reply toMilkfairy

Thank you so much for responding so quickly, I appreciate that. What you say makes sense, and I will put these questions to the cardiologist when I see him/her. They did not tell me the reason for the MINOCA, and even when my blood test for d dimer was slightly elevated they were not concerned and did no more tests.I will certainly be well armed when I go for my appointment. Thank you again for your help and support xx

Milkfairy profile image
MilkfairyHeart Star in reply toQuiltingqueen

No problem, I was just in the right place at the right time!You might find this research article about MINOCA helpful.

It's written by Prof John Beltrame and his team. He is a leading researcher and expert into the condition.

internationalheartspasmsall...

Quiltingqueen profile image
Quiltingqueen in reply toMilkfairy

Thank you xx

Beempty profile image
Beempty

My troponin levels are raised, my blood pressure fluctuations, sometimes normal to high, my husband died almost two years old and I am alone but glad to be alive.. So alot of what I am going through is because of stress. I was referred to a cardiologist by the NHS, waiting for the appointment. What helps me to prolong my life and deal with the stress, it is chanting Nam Myoho Renge Kyo, the Lotus Sutra is the doctrine. It is about cause and effect. There is information on the internet under Nichiren Shoshu Buddhism

Quiltingqueen profile image
Quiltingqueen in reply toBeempty

Thank you for replying, and for the good advice on how to manage stress. Good luck with your cardiology appointment xx

Beempty profile image
Beempty

This practice is more than just managing stress, it's the way that human beings can become more accountable for their thoughts, actions and deeds. It is letting go of attachments what ever they may be, and bringing out wisdom and understanding the true nature of life, this practice is not outside of ourselves. We need to become aware that we are born, grow old, get sick and die.

Thanks for the encouragement with the cardiologist.

Not what you're looking for?

You may also like...

Chest pains

Hi guys. Im 35 and I've been having chest pains since January. Well pain in the left rib cage...
Fruits44 profile image

MINOCA

Im 57 and have always been fit and well. Non smoker, not overweight. Had classic heart attack...
Fleur57 profile image

Chest pains...

Hi guys... I have posted on here before and that I was recently diagnosed with HF I’m currently...
Jamie27 profile image

Chest Pains and Tiredness

Hi all, I’m new to this blog and am delighted to see I’m in good company. I’m 56 and had a heart...
Ozz63 profile image

Advice on chest pains pls.

I had a heart attack in December 2022. I was 43yrs old. Ever since the HA, I have had intermittent...

Moderation team

See all
HUModerator profile image
HUModeratorAdministrator
Luke_BHF profile image
Luke_BHFPartner
Amy-BHF profile image
Amy-BHFPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.