Minoca and still have chest pains

[Quiltingqueen]

Newbie here.

I had a MINOCO at the end of July, I had been getting chests pains for months. Nothing showed up except for troponin raised levels. My blood pressure is always low, I am not overweight, I don't smoke or drink, so I'm not on any medication, except for a 10mg statin, which I have just stopped taking.

I've been back to the A&E 3 times since discharge for bad chest pains which the GTN does not alleviate. They cannot find anything wrong e.g. ECG , chest x-ray and blood test, except the 2nd time I went to A&E they kept me in overnight as my blood test showed there was a blood clot 'somewhere' in my system, but they discharged me the next day without further investigation.

I'm in a lot of chest pain every day, which radiates to my back, I'm taking co-codamol for this. The cardiac rehabilitation team have let me down with phone calls, and I'm now at my wit's end, trying to get help, and for some relief from this chest pain.

Has anyone else experienced after pains like this for weeks ? Or should I be concerned, as the drs don't seem to be listening to me.

Any help would be very grateful. Thank you Jen

[Milkfairy Heart Star]

Hello Quiltingqueen,

Welcome to the forum.

Have you been told why you had your Myocardial infarction non obstructive coronary arteries MINOCA?

A MINOCA can be due to microvascular and or vasospastic angina known as Ischaemia non obstructive coronary arteries INOCA, Spontaneous coronary artery dissection, SCAD or a blood clot blocking a coronary artery.

There is a blood test d dimer that can confirm whether you have has a clot.

These conditions are often overlooked, poorly understood, under treated and under researched. They effect women more commonly than men.

There is very little information on the BHF website about MINOCA, however it is mentioned in the information about vasospastic angina.

bhf.org.uk/informationsuppo...

I suggest you keep a diary of your symptoms and how you respond to your medication.

Ask to be reviewed by your Cardiology team and ask for the cause of your MINOCA is identified.

It's important to have an accurate diagnosis as the treatment for Microvascular angina is different to vasospastic angina.

[Quiltingqueen in reply to Milkfairy]

Thank you so much for responding so quickly, I appreciate that. What you say makes sense, and I will put these questions to the cardiologist when I see him/her. They did not tell me the reason for the MINOCA, and even when my blood test for d dimer was slightly elevated they were not concerned and did no more tests.I will certainly be well armed when I go for my appointment. Thank you again for your help and support xx

[Milkfairy Heart Star in reply to Quiltingqueen]

No problem, I was just in the right place at the right time!You might find this research article about MINOCA helpful.

It's written by Prof John Beltrame and his team. He is a leading researcher and expert into the condition.

internationalheartspasmsall...

[Quiltingqueen in reply to Milkfairy]

Thank you xx

[Beempty]

My troponin levels are raised, my blood pressure fluctuations, sometimes normal to high, my husband died almost two years old and I am alone but glad to be alive.. So alot of what I am going through is because of stress. I was referred to a cardiologist by the NHS, waiting for the appointment. What helps me to prolong my life and deal with the stress, it is chanting Nam Myoho Renge Kyo, the Lotus Sutra is the doctrine. It is about cause and effect. There is information on the internet under Nichiren Shoshu Buddhism

[Quiltingqueen in reply to Beempty]

Thank you for replying, and for the good advice on how to manage stress. Good luck with your cardiology appointment xx

[Beempty]

This practice is more than just managing stress, it's the way that human beings can become more accountable for their thoughts, actions and deeds. It is letting go of attachments what ever they may be, and bringing out wisdom and understanding the true nature of life, this practice is not outside of ourselves. We need to become aware that we are born, grow old, get sick and die.

Thanks for the encouragement with the cardiologist.