Search
Search
About
Log in
Join
Experiences with
Peroxisomal acyl-CoA oxidase deficiency
Posts
Communities
3,206 public posts
Filter results
No support from GP - need to change meds
Hi everyone and Merry Christmas! This is my first post to the forum and I'm sorry it's quite a long one. I'm hoping that someone can advise me about a change of medication. I've had RLS since a teenager (now in my 50s). I augmented on Pramipexole about 5 years ago and went through hell to stop. I tried
Hi everyone and Merry Christmas! This is my first post to the forum and I'm sorry it's quite a long one. I'm hoping that someone can advise me about a change of medication. I've had RLS since a teenager (now in my 50s). I augmented on Pramipexole about 5 years ago and went through hell to stop. I tried
Night_raven
in
Restless Legs Syndrome
3 years ago
Toe cramping and leg pain in Parkinson’s
My WWP experiences intense pain and discomfort that she finds difficult to describe in her legs, several times every day. Mostly accompanied by cramping, both upwards and downwards, of toes, which makes walking very difficult and sometimes impossible. She had DBS surgery 16 months ago, but this has not
My WWP experiences intense pain and discomfort that she finds difficult to describe in her legs, several times every day. Mostly accompanied by cramping, both upwards and downwards, of toes, which makes walking very difficult and sometimes impossible. She had DBS surgery 16 months ago, but this has not
paulalex1313
in
Cure Parkinson's
3 years ago
Lab results and plan forward
Hello fine people! ✨😍 Deja vu! I feel like I’m having flashbacks. Maybe it is Groundhog Day? Or just an I told you so and now you have wasted one year of my life so I have felt rubbish unnecessarily. ⚠️🆘 So, my Hb wasn’t as low as when I went to donate but it was still clearly in anemic range at 11.7
Hello fine people! ✨😍 Deja vu! I feel like I’m having flashbacks. Maybe it is Groundhog Day? Or just an I told you so and now you have wasted one year of my life so I have felt rubbish unnecessarily. ⚠️🆘 So, my Hb wasn’t as low as when I went to donate but it was still clearly in anemic range at 11.7
DRunnerchick
in
LUPUS UK
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Paracetamol and co-codamol
Hi all, I have significant osteoarthritis in my hip. I have been prescribed co-codamol 2 capsules at night and to take paracetamol in the daytime. As yet I have only taken 1 tablet at night and 2 paracetamol in the day. Not really helping a lot. I am not keen on taking too many painkillers as I also
Hi all, I have significant osteoarthritis in my hip. I have been prescribed co-codamol 2 capsules at night and to take paracetamol in the daytime. As yet I have only taken 1 tablet at night and 2 paracetamol in the day. Not really helping a lot. I am not keen on taking too many painkillers as I also
cmjoyce
in
Arthritis Action
3 years ago
Advice on Iron Supplements Please
My GP has agreed that I should have a blood test to check my iron levels but in the meantime has suggested that I should take an iron supplement 2-3 times a day. Based on previous advice seen on this forum, this seems excessive so I am thinking that I will just take gentle iron once a day as shown on
My GP has agreed that I should have a blood test to check my iron levels but in the meantime has suggested that I should take an iron supplement 2-3 times a day. Based on previous advice seen on this forum, this seems excessive so I am thinking that I will just take gentle iron once a day as shown on
Shad0w2
in
Restless Legs Syndrome
3 years ago
U-Shaped PCa Risk - Metformin (& Warfarin & Vitamin D).
A new Israeli Metformin study below [1] "With 666,553 person-years follow-up, 1,592 men were diagnosed with prostate cancer. Metformin exposure in the previous year was positively associated with prostate cancer risk ..." "However, exposure in the previous 2-7 years was negatively associated with risk
A new Israeli Metformin study below [1] "With 666,553 person-years follow-up, 1,592 men were diagnosed with prostate cancer. Metformin exposure in the previous year was positively associated with prostate cancer risk ..." "However, exposure in the previous 2-7 years was negatively associated with risk
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Low iron low Hb?
I have recently been diagnosed as having very low iron in my blood. It is only at 4. Is having low iron basically low hb?
I have recently been diagnosed as having very low iron in my blood. It is only at 4. Is having low iron basically low hb?
Xoxtara
in
Thyroid UK
3 years ago
Ongoing b12
Started this thread (as suggested by sleepy bunny) It is regarding my partner and his struggle of late. He got infection early november, antibiotics then had to have steroids spray as he still not well from infection. Since then developed sciatica and muscle pain, back and groin pain. Anyway last week
Started this thread (as suggested by sleepy bunny) It is regarding my partner and his struggle of late. He got infection early november, antibiotics then had to have steroids spray as he still not well from infection. Since then developed sciatica and muscle pain, back and groin pain. Anyway last week
Hidden
in
Pernicious Anaemia Society
3 years ago
My iron tests are apparantly fine. Please advise the full propper iron panel needed to detetmine amenia
Hello Restless people I have asked this question before but cannot find the answer. My endo and GP say my iron results are fine and that I am not anemic. However I remember that there are situations where tests seem okay but where the isnt passing the blood brain barrier. Is there a test that shows
Hello Restless people I have asked this question before but cannot find the answer. My endo and GP say my iron results are fine and that I am not anemic. However I remember that there are situations where tests seem okay but where the isnt passing the blood brain barrier. Is there a test that shows
smilingjane
in
Restless Legs Syndrome
3 years ago
Pain with every move
Hi please help I was on the menopause injections for 2 years, I switched between zoladex and prostap, and although I bled through out the 2 years and experienced bad menopausal side effects it helped me manage my endo pains. In March of this year I reached 2 years of using these injections, and I'm
Hi please help I was on the menopause injections for 2 years, I switched between zoladex and prostap, and although I bled through out the 2 years and experienced bad menopausal side effects it helped me manage my endo pains. In March of this year I reached 2 years of using these injections, and I'm
Love_koffy
in
Endometriosis UK
3 years ago
Blood Test Results - Comments on levels please
Well I got my blood iron levels back today and I need a little help in understanding where they stand. 1. Serum Ferritin is 376ug/l. I believe this is acceptable as it seems the level for RLS should be above 250. 2. Serum Transferrin is 1.79 g/L. The Lab indicated that the normal range was 2-4. 3. Serum
Well I got my blood iron levels back today and I need a little help in understanding where they stand. 1. Serum Ferritin is 376ug/l. I believe this is acceptable as it seems the level for RLS should be above 250. 2. Serum Transferrin is 1.79 g/L. The Lab indicated that the normal range was 2-4. 3. Serum
RLSofManyYears
in
Restless Legs Syndrome
3 years ago
Low folate - what causes it and what does it affect?
Hello, I recently had some private blood tests and my folate level was low: Vit D: 100 nmol/L (50 - 175) Folate (serum): 9.15 nmol/L (8.83 - 60.8) Ferritin: 100 ug/L (13 - 150) Active B12: 131 pmol/L (37.5 - 188) I was surprised with the low folate because my diet includes plenty of folate-rich foods
Hello, I recently had some private blood tests and my folate level was low: Vit D: 100 nmol/L (50 - 175) Folate (serum): 9.15 nmol/L (8.83 - 60.8) Ferritin: 100 ug/L (13 - 150) Active B12: 131 pmol/L (37.5 - 188) I was surprised with the low folate because my diet includes plenty of folate-rich foods
London3891
in
Thyroid UK
3 years ago
Cod Liver Oil
Does anyone know if it is ok to have cod liver oil to build up my adrenalines. I have read it is a good idea. Advice appreciated.
Does anyone know if it is ok to have cod liver oil to build up my adrenalines. I have read it is a good idea. Advice appreciated.
Crommie
in
PMRGCAuk
3 years ago
Anaemia problems ?
Pooh bear (the wife) has been having a very rough time of it recently. Surgery to rebuild her hip following too many steroids, breathing problems and sepsis which thankfully was caught early. A constant problem she seems to have is Anaemia, particularly after a bad flare. Her haemoglobin count falls
Pooh bear (the wife) has been having a very rough time of it recently. Surgery to rebuild her hip following too many steroids, breathing problems and sepsis which thankfully was caught early. A constant problem she seems to have is Anaemia, particularly after a bad flare. Her haemoglobin count falls
jimbo1605
in
LUPUS UK
3 years ago
... and relax (hopefully)!
Long story ahead! It’s been a few weeks of ‘things’. In early November hubby complained his head was sore, which can mean all sorts since his stroke and not always being able to explain very well. Two days later he had a cluster of little blisters by his eye - shingles. A course of Aciclovar stopped
Long story ahead! It’s been a few weeks of ‘things’. In early November hubby complained his head was sore, which can mean all sorts since his stroke and not always being able to explain very well. Two days later he had a cluster of little blisters by his eye - shingles. A course of Aciclovar stopped
Janma123
in
British Heart Foundation
3 years ago
Metastatic prostate cancer chronic lower back and pelvic pain which gets much, much worse at night.
Hi everyone! I have metastatic prostate cancer which has got into my bones. I’m currently on Zoladex long term hormone therapy following a 10 month course of chemotherapy which was not that successful so we’re looking at other options. FYI I have noted quite a lot of muscle wastage as a result of long
Hi everyone! I have metastatic prostate cancer which has got into my bones. I’m currently on Zoladex long term hormone therapy following a 10 month course of chemotherapy which was not that successful so we’re looking at other options. FYI I have noted quite a lot of muscle wastage as a result of long
RobbieSELDN
in
Advanced Prostate Cancer
3 years ago
The thyroid hormone converting enzyme human deiodinase 1 is inhibited by gold ions from inorganic salts, organic substances, ...
All that glisters… Not in the least clear whether this is likely to be of interest or significance to anyone. But I do think that the impact of anything on thyroid-related enzymes is an important avenue. [i]Chem Biol Interact . 2021 Oct 15;109709. doi: 10.1016/j.cbi.2021.109709. Online ahead of print
All that glisters… Not in the least clear whether this is likely to be of interest or significance to anyone. But I do think that the impact of anything on thyroid-related enzymes is an important avenue. [i]Chem Biol Interact . 2021 Oct 15;109709. doi: 10.1016/j.cbi.2021.109709. Online ahead of print
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Pain relief
Hi I have hip and back pain due to wear and tear and have been given amitriptyline I’ve been taking 2 co codamol at night but my pharmacist has said I can only take these for 3 days but they work and I don’t take them any other time as my pain is terrible at night when I lay down I’ve heard the amitriptyline
Hi I have hip and back pain due to wear and tear and have been given amitriptyline I’ve been taking 2 co codamol at night but my pharmacist has said I can only take these for 3 days but they work and I don’t take them any other time as my pain is terrible at night when I lay down I’ve heard the amitriptyline
Harley198
in
Arthritis Action
3 years ago
Question for Ellfindoe or Joolsg about Gabapentin please
I have written before, but a quick recap. I was on Ropinirole for around 17 years, starting off with 0.12mg nightly (when I have to confess I thought it was the most wonderful drug in the world as it completely stopped my RLS) to more recently when I have been taking 0.50mg and 0.25mg during the day
I have written before, but a quick recap. I was on Ropinirole for around 17 years, starting off with 0.12mg nightly (when I have to confess I thought it was the most wonderful drug in the world as it completely stopped my RLS) to more recently when I have been taking 0.50mg and 0.25mg during the day
67Waterman
in
Restless Legs Syndrome
3 years ago
Never ending story...
Hello, newbie here...I'll try keep it brief....started with multiple joint pain last Oct, diagnosed 12th March 2021 with RA. Started on Sulfasalazine and Naproxen back then along with a steroid depo, continued to up the dose till max, another depo, put on oral Methotrexate, again upping the dose then
Hello, newbie here...I'll try keep it brief....started with multiple joint pain last Oct, diagnosed 12th March 2021 with RA. Started on Sulfasalazine and Naproxen back then along with a steroid depo, continued to up the dose till max, another depo, put on oral Methotrexate, again upping the dose then
moon10008
in
NRAS
3 years ago
1
...
36
37
38
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
821 results
Pernicious Anaemia Society
324 results
Endometriosis UK
272 results
View top 10 communities
Sort by
Most Relevant
Newest