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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Carboplatin/ Gemcitabine
Hello ladies I want to share my experience of carbo/gem and ask if you have had similar experiences or if you can shed some light on the problems I have had. I had the first gem/carbo last Thursday. I was fine at first but by Sunday I had excruciating abdominal pain. I rang the oncology triage on the
Hello ladies I want to share my experience of carbo/gem and ask if you have had similar experiences or if you can shed some light on the problems I have had. I had the first gem/carbo last Thursday. I was fine at first but by Sunday I had excruciating abdominal pain. I rang the oncology triage on the
Duskygem
in
My Ovacome
2 years ago
Has anyone tried methyl cobalamin for injection from India, japan and Malaysia?
In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality assurance. In the meantime there are some facilitators for continuous delivery of hydroxocobalamin which are so cheap and work like insulin pump work
In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality assurance. In the meantime there are some facilitators for continuous delivery of hydroxocobalamin which are so cheap and work like insulin pump work
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
Bowel trouble post laparoscopy.
Hello, I underwent diagnosis laparoscopy for endometriosis on Thursday morning and am recovering at home having had stage 1 endometriosis removed from my bladder. Feeling rather tender from the procedure as you can imagine and have been given co-codamol as painkillers. However, this has of course effected
Hello, I underwent diagnosis laparoscopy for endometriosis on Thursday morning and am recovering at home having had stage 1 endometriosis removed from my bladder. Feeling rather tender from the procedure as you can imagine and have been given co-codamol as painkillers. However, this has of course effected
graceeredpath
in
Endometriosis UK
2 years ago
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Iron Panel Results
Hi, I have posted on here before re my own thyroid test but have some questions about an iron paneltest my daughterdid and noticed a few people on this group are able to offer advice on iron panel tests (I could not find a specific iron group,just one relating to haemochromatosis) My 21 year old daughter
Hi, I have posted on here before re my own thyroid test but have some questions about an iron paneltest my daughterdid and noticed a few people on this group are able to offer advice on iron panel tests (I could not find a specific iron group,just one relating to haemochromatosis) My 21 year old daughter
ginid
in
Thyroid UK
2 years ago
Unexplained Leg and Thigh Pain
Morning all, not sure that this anything to do with the forum and I wasn't going to mention it until my long chat with the doctor yesterday morning. Since Thursday I have been suffering from excruciating pain in my right leg, which appears to start in/around my knee and which then radiates up to my thigh
Morning all, not sure that this anything to do with the forum and I wasn't going to mention it until my long chat with the doctor yesterday morning. Since Thursday I have been suffering from excruciating pain in my right leg, which appears to start in/around my knee and which then radiates up to my thigh
Bcol
in
PMRGCAuk
2 years ago
It's back what supplements are ok?
Hi all, Budge up everyone, I need a place at the PMR table again. My last Pred was taken in December 2016 or so I thought. My osteo arthiritis flared a couple of weeks ago but after three days of Flarin it didn't calm down. I noticed after a while a few familiar shoulder twinges and booked a telephone
Hi all, Budge up everyone, I need a place at the PMR table again. My last Pred was taken in December 2016 or so I thought. My osteo arthiritis flared a couple of weeks ago but after three days of Flarin it didn't calm down. I noticed after a while a few familiar shoulder twinges and booked a telephone
BirmLiz
in
PMRGCAuk
2 years ago
Sciatica hell
Hi. I have been diagnosed (over phone!) either sciatica. It crept upon me over a few days, no obvious cause, I've now had it 2 weeks. Its so very painful - a gnawing deep ache across right buttock down back of leg into calf. Can't get comfortable anywhere and difficulty walking without holding on
Hi. I have been diagnosed (over phone!) either sciatica. It crept upon me over a few days, no obvious cause, I've now had it 2 weeks. Its so very painful - a gnawing deep ache across right buttock down back of leg into calf. Can't get comfortable anywhere and difficulty walking without holding on
Lunadoo
in
Pain Concern
2 years ago
Help with unexplained weight loss
Hello all, I am waiting upon the fitting of an ICD. In the meantime, as a type II diabetic, I have been having terrible problems with my guts. Lost 20lbs in just a month. Seems my medications had pushed me into Ketosis which probably is the cause. This came on top of painful cramps and griping in my
Hello all, I am waiting upon the fitting of an ICD. In the meantime, as a type II diabetic, I have been having terrible problems with my guts. Lost 20lbs in just a month. Seems my medications had pushed me into Ketosis which probably is the cause. This came on top of painful cramps and griping in my
Brunovsky
in
British Heart Foundation
2 years ago
Cerrelle constant bleeding
I was given the progesterone only pill because I can’t take the combination pill as I have aurora migraines and it increases the risk of stroke. Well I have been bleeding constantly for two weeks. I’ve been on it for 5 weeks. I can handle the annoyance of a constant period but not the pain and discomfort
I was given the progesterone only pill because I can’t take the combination pill as I have aurora migraines and it increases the risk of stroke. Well I have been bleeding constantly for two weeks. I’ve been on it for 5 weeks. I can handle the annoyance of a constant period but not the pain and discomfort
ZebraZone
in
Endometriosis UK
2 years ago
Please help. Where do I go next?
I had my first gynaecology appointment this morning and have come away feeling like I haven’t been listened to and my symptoms are not real. I am considering my next steps and whether to go back to my GP. I had been waiting 1.5 years for this appointment and feel very upset that I may now not get any
I had my first gynaecology appointment this morning and have come away feeling like I haven’t been listened to and my symptoms are not real. I am considering my next steps and whether to go back to my GP. I had been waiting 1.5 years for this appointment and feel very upset that I may now not get any
sweetpea2288
in
Endometriosis UK
2 years ago
Painkillers
I have cirrhosis and my back has just given out on me (I have a dodgy disc) I know my pain relief options are limited but I need something as it is extrememly painful. What is the latest advice about what painkillers are best for the liver? Co-codamol is what I have here (and paracetamol) but I know
I have cirrhosis and my back has just given out on me (I have a dodgy disc) I know my pain relief options are limited but I need something as it is extrememly painful. What is the latest advice about what painkillers are best for the liver? Co-codamol is what I have here (and paracetamol) but I know
theoldboiler
in
British Liver Trust
2 years ago
Is it a flare?
Diagnosed last September and have been able to lead a fairly normal life since apart from stiffness and tiredness. Had got down to 11 mg tapering slowly until this morning when I got out of bed and felt as if someone was sticking red hot knives into my left hip. I can honestly say it’s the worst pain
Diagnosed last September and have been able to lead a fairly normal life since apart from stiffness and tiredness. Had got down to 11 mg tapering slowly until this morning when I got out of bed and felt as if someone was sticking red hot knives into my left hip. I can honestly say it’s the worst pain
Jayveedee
in
PMRGCAuk
2 years ago
Anemia and Different Blood Test Results Help
I have been taking iron for anemia for some time. My latest CBC had some different test results on it. I researched and they relate to different shapes of red blood cells. I just wonder if they mean anything as relating to the anemia. Here are the findings - Anisocytosis1+ Polychromasia1+ Hypochromia1
I have been taking iron for anemia for some time. My latest CBC had some different test results on it. I researched and they relate to different shapes of red blood cells. I just wonder if they mean anything as relating to the anemia. Here are the findings - Anisocytosis1+ Polychromasia1+ Hypochromia1
Pumpkin2009
in
LUPUS UK
2 years ago
Pip
Well just been signed off sick from work pain and exhaustion so bad, gp has upped my gabapentin and put me on co codamol I feel so sick on them, phoned citizens advice regarding pip does anyone else receive this can my husband claim carers allowance? Never been on benefits so we have no clue what to
Well just been signed off sick from work pain and exhaustion so bad, gp has upped my gabapentin and put me on co codamol I feel so sick on them, phoned citizens advice regarding pip does anyone else receive this can my husband claim carers allowance? Never been on benefits so we have no clue what to
Minniebuttons
in
Fibromyalgia Action UK
2 years ago
Feeling so fed up
Hey fellow spoonies. Just after some advice on how you'd approach this situation. I feel like I've pretty much been in a flare on and off since Christmas. I was given some pred tablets (v low dose) for some of Jan and Feb, which really helped. But since then it's gotten worse agqain. Then two weeks
Hey fellow spoonies. Just after some advice on how you'd approach this situation. I feel like I've pretty much been in a flare on and off since Christmas. I was given some pred tablets (v low dose) for some of Jan and Feb, which really helped. But since then it's gotten worse agqain. Then two weeks
SlothSandpit
in
NRAS
2 years ago
help
I had my laparoscopy a month ago and have a lot of pelvic pain even after one month taking two co codamol three times a day but still have stool leak and anal pain.are these normal symptoms after surgery 😢
I had my laparoscopy a month ago and have a lot of pelvic pain even after one month taking two co codamol three times a day but still have stool leak and anal pain.are these normal symptoms after surgery 😢
Mylovepari1
in
Endometriosis UK
2 years ago
Moorefields Consultant
I had an appointment at Moorefields on the 14th February this year and my Consultant said i had pernicious anemia and that my GP was to give me B12 injections - well she will not do it - this is the third time in eighteen months that she has refused what the consultants say and they even send her letters
I had an appointment at Moorefields on the 14th February this year and my Consultant said i had pernicious anemia and that my GP was to give me B12 injections - well she will not do it - this is the third time in eighteen months that she has refused what the consultants say and they even send her letters
xeena
in
Glaucoma UK
2 years ago
Low iron and ferritin levels?
I have low iron. My HB is 9 and my ferritin levels are just 4. I also have many vitamin b12 and folate deficiency symptoms but my GP says my levels are fine and within the normal range. Vit b12 is 319 (range on the report was 197-771) and Folate is 5.9. Does anyone know if these deficiencies all go hand
I have low iron. My HB is 9 and my ferritin levels are just 4. I also have many vitamin b12 and folate deficiency symptoms but my GP says my levels are fine and within the normal range. Vit b12 is 319 (range on the report was 197-771) and Folate is 5.9. Does anyone know if these deficiencies all go hand
rustydog
in
Pernicious Anaemia Society
2 years ago
Dipyridamole update
I have been on 100mg x2, one at about 4pm and one closer to 8pm. It is recommended to take Dipyridamole on an empty stomach. This is still lower than the effective dosage in the study and I intend to increase it. I have cut pregabalin from 300mg to 150mg. My goal is to cut it again when the 150mg
I have been on 100mg x2, one at about 4pm and one closer to 8pm. It is recommended to take Dipyridamole on an empty stomach. This is still lower than the effective dosage in the study and I intend to increase it. I have cut pregabalin from 300mg to 150mg. My goal is to cut it again when the 150mg
WideBody
in
Restless Legs Syndrome
2 years ago
I Can't Keep Up This Stack :(
Update 6/29/22: Berberine may be neurotoxic. It is off of my stack: https://healthunlocked.com/cure-parkinsons/posts/148177820/finding-some-negatives-on-berberine-i-will-keep-digging ========= You all are so much stronger than I am. Or maybe you are living your lives instead of obsessing over things
Update 6/29/22: Berberine may be neurotoxic. It is off of my stack: https://healthunlocked.com/cure-parkinsons/posts/148177820/finding-some-negatives-on-berberine-i-will-keep-digging ========= You all are so much stronger than I am. Or maybe you are living your lives instead of obsessing over things
Bolt_Upright
in
Cure Parkinson's
2 years ago
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