Hello ladies I want to share my experience of carbo/gem and ask if you have had similar experiences or if you can shed some light on the problems I have had.
I had the first gem/carbo last Thursday. I was fine at first but by Sunday I had excruciating abdominal pain. I rang the oncology triage on the Monday, they advised me to go to A&E.
I spent 8 hours at A&E, had blood tests and X-ray. The blood test showed CRP of 105, X-ray showed what the doctor thought was faeces in the lower bowel on left side. Dr thought it was diverticulitis and gave me pain killers to take home.
I would be surprised if I have diverticulitis as I have had many CT scans the last one was on 7 March this year. The radiologists at my local hospital are very thorough and have picked up on the minutest changes but they have never flagged up diverticulitis, furthermore, I don’t usually have abdominal pain.
I had the day 8 dose of gemcitabine today, within an hour or so of taking the steroids needed before treatment the pain eased. I saw an oncology registrar today, she examined my tummy and said it was nice and soft. She prescribed laxatives
, co codamol and orimorph. I have an appointment with my consultant on 3 May.
My question is has anyone had a similar experience and what could have caused it? I think it is linked to the chemo.
I was disappointed to note today that my ca125 has risen since the first dose of carbo/gem - it was 362 before treatment started and it is now 422. This is my third line chemo. In the past my ca125 has always dropped after the first chemo infusion. Has this happened to any of you lovely ladies?
Final note, the last time I posted it was about my PIP application, just to say that it has been awarded at the enhanced rate. My onc issued a Ds1500.
Thank you ladies