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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Why you should NOT supplement high-dose D3
https://youtu.be/GsomcvdT7Po This random video I came across deserves more views. If you're baffled about how to get enough vitamin D when not exposed to regular sunlight, try supplementing raw cold-pressed cod liver oil instead along with vitamin K. https://www.westonaprice.org/health-topics/cod-liver-oil
https://youtu.be/GsomcvdT7Po This random video I came across deserves more views. If you're baffled about how to get enough vitamin D when not exposed to regular sunlight, try supplementing raw cold-pressed cod liver oil instead along with vitamin K. https://www.westonaprice.org/health-topics/cod-liver-oil
rescuema
in
Cure Parkinson's
2 years ago
Low B12 and headaches
I suffer with low iron and low b12. I had an iron infusion 10 days ago, prior that I and a persistent headache for a week. I had a b12 injection 2 days after the iron infusion. The headache went 2 days after the b12 jab, but then came back 3 days later with really bad dizziness. I’ve had another b12
I suffer with low iron and low b12. I had an iron infusion 10 days ago, prior that I and a persistent headache for a week. I had a b12 injection 2 days after the iron infusion. The headache went 2 days after the b12 jab, but then came back 3 days later with really bad dizziness. I’ve had another b12
Beee2
in
Pernicious Anaemia Society
2 years ago
cryoablation
Back again with an old problem. Had my cryoablation 15 months ago and went through the usual recovery with the help of all you nice folks. So I need some more help. The past 3 weeks my flutters have been returning. I've been stressed lately and I'm sure that helped to start them. So I went on Klor-con
Back again with an old problem. Had my cryoablation 15 months ago and went through the usual recovery with the help of all you nice folks. So I need some more help. The past 3 weeks my flutters have been returning. I've been stressed lately and I'm sure that helped to start them. So I went on Klor-con
mlp3434
in
AF Association
2 years ago
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how much gentle iron?
what dose should i start on… i have bought iron bisglycinate 20 mg. But have been recommended 320 mcg ferrous sulphate. So very confused at the different levels. How do these figures relate to each other? And do you have to take gentle iron on an empty stomach? The bottle says to take with food. Any
what dose should i start on… i have bought iron bisglycinate 20 mg. But have been recommended 320 mcg ferrous sulphate. So very confused at the different levels. How do these figures relate to each other? And do you have to take gentle iron on an empty stomach? The bottle says to take with food. Any
Jukebox55
in
Restless Legs Syndrome
2 years ago
What pain relief do you use?
Following on from my thread, I just wondered what pain relief you use? Naproxen, paracetamol, Mefenamic acid have done nothing for me. I'm currently on co-codamol 30/500 which is working but is saying my constipation to be worse than it is already. Does anyone use Amitriptyline? Thinking it might help
Following on from my thread, I just wondered what pain relief you use? Naproxen, paracetamol, Mefenamic acid have done nothing for me. I'm currently on co-codamol 30/500 which is working but is saying my constipation to be worse than it is already. Does anyone use Amitriptyline? Thinking it might help
Mindfullness4791
in
Endometriosis UK
1 year ago
PA with iron deficiency
Hi all.I think I told you guys that my Iron is very low. Ferritin is 5, iron saturation is 4 and always low rbc. I finally got set up with an infusion center for iron and start next. I'll do one a week for 10 weeks. I've felt off, breathy and tired for a year or so now. Someday's, i just can't get off
Hi all.I think I told you guys that my Iron is very low. Ferritin is 5, iron saturation is 4 and always low rbc. I finally got set up with an infusion center for iron and start next. I'll do one a week for 10 weeks. I've felt off, breathy and tired for a year or so now. Someday's, i just can't get off
Wowo23
in
Pernicious Anaemia Society
2 years ago
Iron/Ferritin
Dear All,I have now had my latest blood tests back and my ferritin levels, with the help of iron tablets, has risen from 45 to 120. However, unlike others in our group, my RLS are still pretty awful. Do I have to be patient and hope the RLS now improve???? Otherwise it will be pretty depressing. Sue
Dear All,I have now had my latest blood tests back and my ferritin levels, with the help of iron tablets, has risen from 45 to 120. However, unlike others in our group, my RLS are still pretty awful. Do I have to be patient and hope the RLS now improve???? Otherwise it will be pretty depressing. Sue
Simkin
in
Restless Legs Syndrome
2 years ago
Dad’s iron studies
Hello all My dad has just collected his latest iron studies prior to call from GP at some point today. Would you mind taking a look and interpreting please. Have tried to use the Polish calculator to work out percentages but there’s an error and I can’t use it. 23/11/22 CRP <4 (0 - 9) Ferritin
Hello all My dad has just collected his latest iron studies prior to call from GP at some point today. Would you mind taking a look and interpreting please. Have tried to use the Polish calculator to work out percentages but there’s an error and I can’t use it. 23/11/22 CRP <4 (0 - 9) Ferritin
musicaljune
in
Thyroid UK
2 years ago
pain after surgery
Hi, I have been struggling with a wound on my left foot for over two years, it became very infected last September, and I had to be put on several different antibiotics for a month, they did mri scans testing for osteomylitis, but I was clear of that, also various other scans. They said that if the wound
Hi, I have been struggling with a wound on my left foot for over two years, it became very infected last September, and I had to be put on several different antibiotics for a month, they did mri scans testing for osteomylitis, but I was clear of that, also various other scans. They said that if the wound
salamander160
in
Pain Concern
1 year ago
Liothyronine and histamine sensitivity
Hi everyone. I am having trouble getting my levo and lio amounts right and will post on that separately to ask advice, please, but I also have another concern which I would very much appreciate your help with. I wondered if anyone could help with regard to what I think is a histamine intolerance/sensitivity
Hi everyone. I am having trouble getting my levo and lio amounts right and will post on that separately to ask advice, please, but I also have another concern which I would very much appreciate your help with. I wondered if anyone could help with regard to what I think is a histamine intolerance/sensitivity
Zebra5
in
Thyroid UK
2 years ago
Worried that my 17 year old daughter has colon cancer
I sadly lost my brother to bowl cancer in 2012. After months of being told that he had gastroenteritis or tummy bug. He was then made to feel that he was being a pest, so stopped speaking help. My brother was 40 when he died and only lived for 6 months after they found the stage 4 tumour. They never
I sadly lost my brother to bowl cancer in 2012. After months of being told that he had gastroenteritis or tummy bug. He was then made to feel that he was being a pest, so stopped speaking help. My brother was 40 when he died and only lived for 6 months after they found the stage 4 tumour. They never
Rhona78
in
Colon Cancer Connected
2 years ago
”CONFUSED” UPDATE
Well, I increased my Pred to 9 mg for 5 days but didn’t go straight back to my previous dose (4.5mg) but went to 6mg. So far the flu-type symptoms have gone but I still have a low-grade headache, plus pain in both shoulders and in the neck. I have tried taking paracetamol but this only has minimal
Well, I increased my Pred to 9 mg for 5 days but didn’t go straight back to my previous dose (4.5mg) but went to 6mg. So far the flu-type symptoms have gone but I still have a low-grade headache, plus pain in both shoulders and in the neck. I have tried taking paracetamol but this only has minimal
Janann25
in
PMRGCAuk
2 years ago
how to get IV iron infusion
i have had RLS for 30 years. Been on dopamine for 6 years. Shocked to read about how iron can help. Has anyone been able to get IV iron infusion? Who from? How best to go about it?? thanks!!!
i have had RLS for 30 years. Been on dopamine for 6 years. Shocked to read about how iron can help. Has anyone been able to get IV iron infusion? Who from? How best to go about it?? thanks!!!
Jukebox55
in
Restless Legs Syndrome
2 years ago
Co Enzyme Q10
Hoes it going fellow heart obsessed lot, do any of you guys take this and how much? I’ve tried magnesium and with the beta blockers it seems to slow my heart way too much. Pvcs are frequent but not as bad as they were. They’re there all the time so looking for a natural help. Cod liver oil is good for
Hoes it going fellow heart obsessed lot, do any of you guys take this and how much? I’ve tried magnesium and with the beta blockers it seems to slow my heart way too much. Pvcs are frequent but not as bad as they were. They’re there all the time so looking for a natural help. Cod liver oil is good for
Achant1
in
AF Association
2 years ago
IMPORTANT: Nicotinamide riboside (or NAD+ or Tru Niagen) may be involved in neoplastic and metastatic processes
Some of us were taking nicotinamide riboside for RLS. A few days ago a paper was published with data suggesting it could be involved neoplastic and metastatic processes. Hence, please take this in consideration if you were taking nicotinamide riboside. Here is the reference: A bioluminescent-based
Some of us were taking nicotinamide riboside for RLS. A few days ago a paper was published with data suggesting it could be involved neoplastic and metastatic processes. Hence, please take this in consideration if you were taking nicotinamide riboside. Here is the reference: A bioluminescent-based
enjoy2013
in
Restless Legs Syndrome
2 years ago
IFAB testing guidelines per Mayo clinic laboratory website
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
EllaNore
in
Pernicious Anaemia Society
2 years ago
Advice on blood results based on increase.
Hello I increased my thyroid medication as I have been struggling, I’ve been freezing cold, suffering from anxiety and weight gain. Back in June 2022 I started on HRT as I was having peri menopausal symptoms, and started on one pump of Oestrogel , and 200mcg nightly of Progesterone 14 days on, 14
Hello I increased my thyroid medication as I have been struggling, I’ve been freezing cold, suffering from anxiety and weight gain. Back in June 2022 I started on HRT as I was having peri menopausal symptoms, and started on one pump of Oestrogel , and 200mcg nightly of Progesterone 14 days on, 14
Peanut31
in
Thyroid UK
2 years ago
Seemingly a sudden drop in ferritin but is it really?
15/08/22 Ferritin 236ug/L (13 - 150) Quite a bit over range, so I’m puzzled that a mere 12 weeks later - 16/11/22 - according to the new reference range it has suffered a significant drop to 39% through Yes, I immediately stopped iron supplementation but I continued with acerola to aid with food
15/08/22 Ferritin 236ug/L (13 - 150) Quite a bit over range, so I’m puzzled that a mere 12 weeks later - 16/11/22 - according to the new reference range it has suffered a significant drop to 39% through Yes, I immediately stopped iron supplementation but I continued with acerola to aid with food
Noelnoel
in
Thyroid UK
2 years ago
Steroids and Ibuprofen
I am currently on 7mg pred for PMR. I am also suffering from a trapped nerve in my back which I have had for six weeks now which has been VERY painful. My doctor has said under no circumstances to take any medication containing ibuprofen because of my steroids. Paracetomol does nothing to relieve
I am currently on 7mg pred for PMR. I am also suffering from a trapped nerve in my back which I have had for six weeks now which has been VERY painful. My doctor has said under no circumstances to take any medication containing ibuprofen because of my steroids. Paracetomol does nothing to relieve
Washingup
in
PMRGCAuk
2 years ago
Struggling to get comfortable when sleeping
Hello all, my wife is exhausted and 1) She's scared to sleep in case she doesn't wake up and 2) The pain in her neck and shoulders from lying down. Now we've got a V-shaped pillow which she puts (normal) pillows on top of the V-shaped pillow but TBH this isn't working. Is she doing right or wrong? I've
Hello all, my wife is exhausted and 1) She's scared to sleep in case she doesn't wake up and 2) The pain in her neck and shoulders from lying down. Now we've got a V-shaped pillow which she puts (normal) pillows on top of the V-shaped pillow but TBH this isn't working. Is she doing right or wrong? I've
Derek1uk
in
PSP Association
2 years ago
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