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Experiences with
Medium chain acyl dehydrogenase deficiency
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Heart Failure/low sodium
Hi My dad going through a bad time at the moment. He is 89 and for several weeks about 8 as been having headaches fuzzy heads, he calls them dizzyness. He has a pacemaker which was changed a few months ago and a echocardiogram in March diagnosed a weaker left ventricle of 25 to 30% efficiency. He takes
Hi My dad going through a bad time at the moment. He is 89 and for several weeks about 8 as been having headaches fuzzy heads, he calls them dizzyness. He has a pacemaker which was changed a few months ago and a echocardiogram in March diagnosed a weaker left ventricle of 25 to 30% efficiency. He takes
Leythersrus1
in
British Heart Foundation
1 year ago
what to do next?
Thanks for the support with my mum the past few weeks. It’s much appreciated. The last time I posted she had a temp of 38.2, struggled to move and had a v low BP. After a paramedic check up, 2 paracetamol and 7mg pred she was good for the rest of the day 2 hours later!!Mobility restored to around 60/
Thanks for the support with my mum the past few weeks. It’s much appreciated. The last time I posted she had a temp of 38.2, struggled to move and had a v low BP. After a paramedic check up, 2 paracetamol and 7mg pred she was good for the rest of the day 2 hours later!!Mobility restored to around 60/
RT18
in
PMRGCAuk
1 year ago
Ferritin Levels
Could Sue please advise on my Ferritin Levels. Clinician viewed03 May 2023Result typePathologyTestsUrea and electrolytesLiver function testsSerum lipid levelsAcute Kidney Injury StagingSerum total protein levelSerum folate levelSerum ferritin levelFiled byDr Steven Chan at The Orchard Medical Practice
Could Sue please advise on my Ferritin Levels. Clinician viewed03 May 2023Result typePathologyTestsUrea and electrolytesLiver function testsSerum lipid levelsAcute Kidney Injury StagingSerum total protein levelSerum folate levelSerum ferritin levelFiled byDr Steven Chan at The Orchard Medical Practice
VENEER
in
Restless Legs Syndrome
1 year ago
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Apologies -Loperamide Liquid Oral solution Discontinued
My post should have said Loperamide Liquid Oral Solution has been discontinued. I have tried taking half of an instant melt Imodium which wasn’t very successful so I will try to get tablets (as opposed to capsules ) and break up! Not sure why the liquid has been discontinued!
My post should have said Loperamide Liquid Oral Solution has been discontinued. I have tried taking half of an instant melt Imodium which wasn’t very successful so I will try to get tablets (as opposed to capsules ) and break up! Not sure why the liquid has been discontinued!
Happyretired
in
Pelvic Radiation Disease Association
1 year ago
Results please
Im taking teva levothyroxine 75mcg and t3, 5mcg at morning with levo then 10mcg afternoon.My symptoms have greatly improved with the addition of t3, but having increasing problems with low stomach acid. Any advice will be most welcome 🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 75mcg and t3, 5mcg at morning with levo then 10mcg afternoon.My symptoms have greatly improved with the addition of t3, but having increasing problems with low stomach acid. Any advice will be most welcome 🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
1 year ago
Iron tablets and T3 timing?
I'm trying to raise my low ferritin (33 at last test) and am taking ferrous sulphate twice a day (will be testing my levels again soon).I was previously taking my T3 meds once a day but am having a bit of trouble tolerating a recent 5mcg increase (was taking 10, now 15mcg) so I'd like to try splitting
I'm trying to raise my low ferritin (33 at last test) and am taking ferrous sulphate twice a day (will be testing my levels again soon).I was previously taking my T3 meds once a day but am having a bit of trouble tolerating a recent 5mcg increase (was taking 10, now 15mcg) so I'd like to try splitting
Smorzando
in
Thyroid UK
1 year ago
Tainted Blood Sample - Additional Info
Did not anticipate another blood sample error yesterday using hematology clinic lab with the personal touch specifically to avoid errors. Finding the positive, it is good to know that it is not only potassium that can be skewed greatly from a bad/coagulated sample but also protein and liver AST (aspartate
Did not anticipate another blood sample error yesterday using hematology clinic lab with the personal touch specifically to avoid errors. Finding the positive, it is good to know that it is not only potassium that can be skewed greatly from a bad/coagulated sample but also protein and liver AST (aspartate
Mishie14
in
MPN Voice
1 year ago
Severe Attacks and upcoming Endoscopy
I have taken Nexium for a few years to control bouts of Acid Reflux. About 2 months ago, I started getting severe attacks, which felt like a heart attack. (I had my heart checked last year, and all was good) so I knew it or believed it was Acid Reflux. I started to change my diet and found relief, but
I have taken Nexium for a few years to control bouts of Acid Reflux. About 2 months ago, I started getting severe attacks, which felt like a heart attack. (I had my heart checked last year, and all was good) so I knew it or believed it was Acid Reflux. I started to change my diet and found relief, but
JonnoCanada
in
Acid Reflux Support
1 year ago
IBS D
Hi, I’ve suffered with mixed ibs for 7 years but having a really bad flare up last few months of ibs D. So I’ve been taking Imodium for 2 days a week while I’m at work, which has helped to slow it down. But about 5 days after I’ve had the Imodium I have explosive diarrhoea! Is that because the Imodium
Hi, I’ve suffered with mixed ibs for 7 years but having a really bad flare up last few months of ibs D. So I’ve been taking Imodium for 2 days a week while I’m at work, which has helped to slow it down. But about 5 days after I’ve had the Imodium I have explosive diarrhoea! Is that because the Imodium
Yoga82
in
IBS Network
1 year ago
after radium 223
hi, husband diagnosed 2017, lots of different treatments, none lasted very long. Including 2 different chemos, xtandi, casodex, etc radium 223 last year. We are in the UK, have now been told we have exhausted treatments under NICE guidelines and he’ll be offered pain relief under palliative care. He
hi, husband diagnosed 2017, lots of different treatments, none lasted very long. Including 2 different chemos, xtandi, casodex, etc radium 223 last year. We are in the UK, have now been told we have exhausted treatments under NICE guidelines and he’ll be offered pain relief under palliative care. He
Jojoberries
in
Advanced Prostate Cancer
1 year ago
ICU recovery nightmare
Was in ICU for 6 days following a seizure due to low sodium (92) due they think to stomach virus though still having investigations for Addisons. 2 ambulances, helicopter , CPR , a stroke originally suspected. No ICU diary kept by hospital , no discharge help, no rehab , no advice on how I would feel
Was in ICU for 6 days following a seizure due to low sodium (92) due they think to stomach virus though still having investigations for Addisons. 2 ambulances, helicopter , CPR , a stroke originally suspected. No ICU diary kept by hospital , no discharge help, no rehab , no advice on how I would feel
downthemoor
in
ICUsteps
1 year ago
Can Anyone Help?
I’m currently abroad and have ‘spanish tummy’. Anyone know of any reason I can’t take Imodium or Dioralyte with Flecainide/Bisoprolol or Apixaban?
I’m currently abroad and have ‘spanish tummy’. Anyone know of any reason I can’t take Imodium or Dioralyte with Flecainide/Bisoprolol or Apixaban?
SilverliningsForNow
in
AF Association
1 year ago
Pregnancy loss, results confusing?
My previous postshttps://healthunlocked.com/thyroiduk/posts/149381508/suboptimal-results-pregnancy-loss?responses=149386968 https://healthunlocked.com/thyroiduk/posts/149405041/recurrent-loss-and-thyroid-more-results?responses=149405541 Bit of a long story - tried to test my blood with monitor my health
My previous postshttps://healthunlocked.com/thyroiduk/posts/149381508/suboptimal-results-pregnancy-loss?responses=149386968 https://healthunlocked.com/thyroiduk/posts/149405041/recurrent-loss-and-thyroid-more-results?responses=149405541 Bit of a long story - tried to test my blood with monitor my health
staceedin
in
Thyroid UK
1 year ago
B12 by injection 💉 - first steps . . . 👣
Hello All ! 😊 About to embark on the path of trialing B12 by injection as there seems plenty to confirm that those who do not benefit from supplementation, do ( - often enough!) see improvements via 💉s! Don't yet know if this will be available via the NHS, even citing credible info, of which there
Hello All ! 😊 About to embark on the path of trialing B12 by injection as there seems plenty to confirm that those who do not benefit from supplementation, do ( - often enough!) see improvements via 💉s! Don't yet know if this will be available via the NHS, even citing credible info, of which there
Sid_Arthur
in
Pernicious Anaemia Society
1 year ago
PMR & Stage II Polycystic Kidneys
PCP determined PMR based on my “tinman stiffness” and bloodwork showing crazy inflammation levels in late January, and started me on 20 mg of prednisone. An ultrasound and xray turned up polycystic kidneys with a too-large to pass stones. I’ve tapered to 15 mg of prednisone at this point, and am wondering
PCP determined PMR based on my “tinman stiffness” and bloodwork showing crazy inflammation levels in late January, and started me on 20 mg of prednisone. An ultrasound and xray turned up polycystic kidneys with a too-large to pass stones. I’ve tapered to 15 mg of prednisone at this point, and am wondering
Eleanor0123
in
PMRGCAuk
1 year ago
latest results please can you advise
Hello all please can you advise me on my latest results and your thoughts before I see my new Doc on the 24/4. I started new dose of Levothyroxine 100mcg on the 9/3 up from 75mcg. T3-4.40pmol/l ( 2.63-5.70) T4-16.20pmol/l (9.01-19.05) TSH-1.36miu/l (0.35-4.94) Vit B12- 236pg/ml (187-883) stopped
Hello all please can you advise me on my latest results and your thoughts before I see my new Doc on the 24/4. I started new dose of Levothyroxine 100mcg on the 9/3 up from 75mcg. T3-4.40pmol/l ( 2.63-5.70) T4-16.20pmol/l (9.01-19.05) TSH-1.36miu/l (0.35-4.94) Vit B12- 236pg/ml (187-883) stopped
Pooty
in
Thyroid UK
1 year ago
Zometa with or without Radium 223?
Hi I have done 1 year with Zometa alongside Docetaxel and more recently Radium 223. I'm halfway through the Radium 223 course but have been advised that after a year, Zometa has reached maximum effectiveness and should be stopped. After a rocky start I'm feeling much better and much less frail.
Hi I have done 1 year with Zometa alongside Docetaxel and more recently Radium 223. I'm halfway through the Radium 223 course but have been advised that after a year, Zometa has reached maximum effectiveness and should be stopped. After a rocky start I'm feeling much better and much less frail.
Finlay66
in
Advanced Prostate Cancer
1 year ago
Advice about results please. T3 prescription Portugal?
Thank you to all the admin and everyone on this great resource for your time and knowledge. Saw Endo a couple of weeks ago in Algarve, pretty depressing experience. He says not possible to get T3 prescription in Portugal. Says I need to lower my medication and wants to put me on statins. Can I please
Thank you to all the admin and everyone on this great resource for your time and knowledge. Saw Endo a couple of weeks ago in Algarve, pretty depressing experience. He says not possible to get T3 prescription in Portugal. Says I need to lower my medication and wants to put me on statins. Can I please
Bubydizer
in
Thyroid UK
1 year ago
Coming off Naproxen safely?
Hi After 3 doses of Radium 223, my pain and general core strength seems to be improving after a rocky start. I'm also taking low dose Dexamethasone. I'd like to come off Naproxen gently and just take Paracetamol. I'm taking 2 x500 mg a day after meals. I'd be grateful for any experience or advice
Hi After 3 doses of Radium 223, my pain and general core strength seems to be improving after a rocky start. I'm also taking low dose Dexamethasone. I'd like to come off Naproxen gently and just take Paracetamol. I'm taking 2 x500 mg a day after meals. I'd be grateful for any experience or advice
Finlay66
in
Advanced Prostate Cancer
1 year ago
Amgevita - low energy
Hi all, I've been on Amgevita for just over four weeks, and it's done a decent job of addressing my pain and inflammation. The only thing is, I feel really flat and lethargic. Has anyone found that there's a delay between getting relief from symptoms, and then getting your energy back? I know that
Hi all, I've been on Amgevita for just over four weeks, and it's done a decent job of addressing my pain and inflammation. The only thing is, I feel really flat and lethargic. Has anyone found that there's a delay between getting relief from symptoms, and then getting your energy back? I know that
cuppa69
in
NRAS
1 year ago
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