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Medium chain acyl dehydrogenase deficiency
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Your best adjunct therapy pick
If you could only continue with just one alternative PD therapy, what would it be? (My rather gauche attempt to pick your brains and not re-invent the wheel.) For me, it's MCT oil. What about you?
If you could only continue with just one alternative PD therapy, what would it be? (My rather gauche attempt to pick your brains and not re-invent the wheel.) For me, it's MCT oil. What about you?
Dabaa
in
Cure Parkinson's
2 months ago
Suggestions on Supplements
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
Hello Friends, I need your opinion and advice on the supplements I am taking, and wish to add soon. Timings are +/- 45 mins. Currently taking: 8.30am R-Alpha Lipoic Acid 9.30am Omega 3 Super DHA, Curcumin Meriva, D3 2000iu 11am Vitamin C Complex, Ginkgo Biloba 12pm MCT oil 3.30pm GlyNAC 8pm Omega
JayPwP
in
Cure Parkinson's
3 months ago
The 'Brain Energy Gap' and its possible implication on the progress of PD.
Has anyone else seen the work of Professor Stephen Cunnane on the 'brain energy gap' and its implications for PD, Alzheimers and cognitive impairment? I've put a link to one of his talks below, but to summarise: - Cognitive impairment and brain health in PD, Alzheimers, is due in part to an 'brain
Has anyone else seen the work of Professor Stephen Cunnane on the 'brain energy gap' and its implications for PD, Alzheimers and cognitive impairment? I've put a link to one of his talks below, but to summarise: - Cognitive impairment and brain health in PD, Alzheimers, is due in part to an 'brain
Mezmerric
in
Cure Parkinson's
3 months ago
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Mct oil
Can you take Mct oil if you have pbc?
Can you take Mct oil if you have pbc?
Survived-
in
PBC Foundation
4 months ago
Help!
I am a 57 year old male. I've been feeling very tired and run down over the past months. I've been suffering from bouts of dizziness and my balance has become a real problem. My G.P. has run a whole range of blood tests. One of the tests carried out was Iron Profile and another was the Haematinics
I am a 57 year old male. I've been feeling very tired and run down over the past months. I've been suffering from bouts of dizziness and my balance has become a real problem. My G.P. has run a whole range of blood tests. One of the tests carried out was Iron Profile and another was the Haematinics
Henbud
in
Pernicious Anaemia Society
9 hours ago
Is there concerning interactions with cytomel/T3?
Hey folks Was wondering, are there any potentially dangerous interactions that me/people should bê aware of ? Wondering as i deal with some stuff,só i take some chemicals, as for example i take tropisetron an 5ht3 antagonist /nicotinc receptor agonist, Tudca/Udca (bile acids) but also others as sometimes
Hey folks Was wondering, are there any potentially dangerous interactions that me/people should bê aware of ? Wondering as i deal with some stuff,só i take some chemicals, as for example i take tropisetron an 5ht3 antagonist /nicotinc receptor agonist, Tudca/Udca (bile acids) but also others as sometimes
Mobilepirate
in
Thyroid UK
2 days ago
Iron problem?
Hi,I have a low iron saturation - latest blood tests show range = just out (low side). Apologies I haven't got details atm. Although I do supplement with iron it's obviously not enough? I'm not too sure regarding Folate and Ferritin? What exactly do I purchase? Love to you all
Hi,I have a low iron saturation - latest blood tests show range = just out (low side). Apologies I haven't got details atm. Although I do supplement with iron it's obviously not enough? I'm not too sure regarding Folate and Ferritin? What exactly do I purchase? Love to you all
Booblet
in
Thyroid UK
5 days ago
ferritin still low
As mentioned before my ferritin is 13, can’t tolerate any oral form and have had infusions in the past. Am being denied infusion as Full bloods are within range, no idea what to do now, eating plenty of iron rich foods, feeling really unwell and down. Recent test results: B12=651(187-883), vit D=92(
As mentioned before my ferritin is 13, can’t tolerate any oral form and have had infusions in the past. Am being denied infusion as Full bloods are within range, no idea what to do now, eating plenty of iron rich foods, feeling really unwell and down. Recent test results: B12=651(187-883), vit D=92(
Pennypingu
in
Thyroid UK
16 days ago
The Origin of Ferritin Reference Intervals: A Systematic Review
I've slightly altered the formatting of the abstract in the hope of making it easier to read. ... Authors : Judy Truong, Kanza Naveed, Daniel Beriault, David Lightfoot, Michael Fralick, Michelle Sholzberg Link : https://ashpublications.org/blood/article/140/Supplement%201/11078/490505/The-Origin-of-Ferritin-Reference-Intervals-A
I've slightly altered the formatting of the abstract in the hope of making it easier to read. ... Authors : Judy Truong, Kanza Naveed, Daniel Beriault, David Lightfoot, Michael Fralick, Michelle Sholzberg Link : https://ashpublications.org/blood/article/140/Supplement%201/11078/490505/The-Origin-of-Ferritin-Reference-Intervals-A
humanbean
in
Thyroid UK
17 days ago
A clinical picture of a B12 deficiency and PA explained.........
Hopefully the following will be of interest to newbies on the sight and give a little insight of the condition and how to treat............ https://www.bmj.com/content/383/bmj-2022-071725
What is a patient with a lack of B12 would have pa?
Pernicious anemia (PA) is a decrease in red blood
Hopefully the following will be of interest to newbies on the sight and give a little insight of the condition and how to treat............ https://www.bmj.com/content/383/bmj-2022-071725
What is a patient with a lack of B12 would have pa?
Pernicious anemia (PA) is a decrease in red blood
Jillymo
in
Pernicious Anaemia Society
18 days ago
Recent blood test results advice please
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
yorkshiregirl4
in
Thyroid UK
23 days ago
Please advise on iron panel blood test results
Please can anyone advise if I need to take iron tablets with these results. I feel so tired. Due to see the endo on Monday but I know he might say it is in range.The blood tests are as follows: I sent the TSH, T3and t4 in a previous email. Folic acid 9.6 range e >2.7 B12 695 ng/L range 160-800ng/L MCV
Please can anyone advise if I need to take iron tablets with these results. I feel so tired. Due to see the endo on Monday but I know he might say it is in range.The blood tests are as follows: I sent the TSH, T3and t4 in a previous email. Folic acid 9.6 range e >2.7 B12 695 ng/L range 160-800ng/L MCV
cbraffe
in
Thyroid UK
27 days ago
Massachusetts Opioid Register Year 4 results
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
Joolsg
in
Restless Legs Syndrome
28 days ago
teeth clenching
I’m titrating NDT Armour over the last year but I’ve got a hypo symptom that’s bothering me, nighttime teeth clenching. I have no knowledge I’m doing this. I take amitriptyline and once I get to sleep midnight to 1am, I’m out for the count. I think the dentist told me September 2023 that I was clenching
I’m titrating NDT Armour over the last year but I’ve got a hypo symptom that’s bothering me, nighttime teeth clenching. I have no knowledge I’m doing this. I take amitriptyline and once I get to sleep midnight to 1am, I’m out for the count. I think the dentist told me September 2023 that I was clenching
Insomania
in
Thyroid UK
30 days ago
Blood test results
I have recently had a full panel fasting blood test done, and these are the results. I would appreciate your thoughts before I make an appointment with my GP. Serum ferritin level 144 Serum iron 17.8 Serum transferrin 2.44 Iron saturation 32.3% Thank you
I have recently had a full panel fasting blood test done, and these are the results. I would appreciate your thoughts before I make an appointment with my GP. Serum ferritin level 144 Serum iron 17.8 Serum transferrin 2.44 Iron saturation 32.3% Thank you
Flora-Rose
in
Restless Legs Syndrome
1 month ago
Tigger is bouncing around Winnie the Pooh, because he is happy his RLS is better
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
HipHop1972
in
Restless Legs Syndrome
1 month ago
TMS/TBS, Buprenorphine tip
I have just completed TMS/TBS(theta burst stimulation) treatments(36 TMS+10 TMS/TBS) It has been a game changer for the post Dopamine agonist depression, that was quite severe and unresponsive to meds. I currently have no depression symptoms. What I have found is that the RLS symptoms are decreased
I have just completed TMS/TBS(theta burst stimulation) treatments(36 TMS+10 TMS/TBS) It has been a game changer for the post Dopamine agonist depression, that was quite severe and unresponsive to meds. I currently have no depression symptoms. What I have found is that the RLS symptoms are decreased
teakabeagle
in
Restless Legs Syndrome
1 month ago
Recent blood test – Why do I feel so tired?
Hello, Please could you have a look at my recent blood test results and tell me what could be the cause of my constant tiredness? I find it hard to get out of bed in the morning and often wake up with brain fog. I often wake up during the night to pee. I often feel the need to fall asleep in the afternoon
Hello, Please could you have a look at my recent blood test results and tell me what could be the cause of my constant tiredness? I find it hard to get out of bed in the morning and often wake up with brain fog. I often wake up during the night to pee. I often feel the need to fall asleep in the afternoon
Zazbag
in
Thyroid UK
1 month ago
Iron status, thyroid dysfunction and iron deficiency anemia: a two-sample Mendelian randomization study
Time and again, we see members with some level of iron deficiency [u]
and
[/u] thyroid issues. Here is a paper which identifies specific genetic causes. In this case, we desperate need the full paper to understand what they are really saying. [i]Ann Nutr Metab. 2024 Jun 10.[/i] [i]doi: 10.1159
Time and again, we see members with some level of iron deficiency [u]
and
[/u] thyroid issues. Here is a paper which identifies specific genetic causes. In this case, we desperate need the full paper to understand what they are really saying. [i]Ann Nutr Metab. 2024 Jun 10.[/i] [i]doi: 10.1159
helvella
Thyroid UK
in
Thyroid UK
1 month ago
Anyone had an iron infusion
My husband has CLL and has a problem with low B12 and folate. His ferritin is also stubbornly low for which he’s been recommended an iron infusion for deficiency anaemia and injections for his B12 deficiency I’m ok about the B12 injections but for some reason feel a bit nervous about the infusion but
My husband has CLL and has a problem with low B12 and folate. His ferritin is also stubbornly low for which he’s been recommended an iron infusion for deficiency anaemia and injections for his B12 deficiency I’m ok about the B12 injections but for some reason feel a bit nervous about the infusion but
Noelnoel
in
CLL Support
1 month ago
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