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Experiences with
Medium chain acyl dehydrogenase deficiency
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My Stack - Need Suggestions
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
JayPwP
in
Cure Parkinson's
1 year ago
I didn't realise this could happen. ......
So after TBI I had a great recovery and after 5 months I went back to work on phased days back. Then 6 weeks later I go back full time. First week was ok and I seemed to enjoy it although some people were difficult to work with. The first 2 days of last week difficult a lot. Too difficult I ended up
So after TBI I had a great recovery and after 5 months I went back to work on phased days back. Then 6 weeks later I go back full time. First week was ok and I seemed to enjoy it although some people were difficult to work with. The first 2 days of last week difficult a lot. Too difficult I ended up
Hidden
in
Headway
1 year ago
SC in Australia
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
greenscarf
in
Pernicious Anaemia Society
1 year ago
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Just need to have a rant about this horrendous condition 😡
I thought this would be a good place to have a rant about my IBS. I am completely fed up of this horrendous condition completely taking control over my life. I have not slept in days due to constant nausea and pain and not being able to get in any sort of comfortable position so I can sleep. I find
I thought this would be a good place to have a rant about my IBS. I am completely fed up of this horrendous condition completely taking control over my life. I have not slept in days due to constant nausea and pain and not being able to get in any sort of comfortable position so I can sleep. I find
Floss-12
in
IBS Network
11 months ago
HELP, PLEASE??!!
I just had a total knee replacement. For 3 years now buprenorphine has helped, but today I took hydromorphone for pain that my surgeon prescribed, Nexium that my family doctor recommended to take to keep the aspirin I have to take postop to keep from getting ulcers, and cyclobenzaprine. Unfortunately
I just had a total knee replacement. For 3 years now buprenorphine has helped, but today I took hydromorphone for pain that my surgeon prescribed, Nexium that my family doctor recommended to take to keep the aspirin I have to take postop to keep from getting ulcers, and cyclobenzaprine. Unfortunately
LanaCSR
in
Restless Legs Syndrome
1 year ago
Laxido orange...
Hi all,I'm new to the community and this is my first post. I've had bowel problems on and off for many years but found they worsened in November 2022 when I was prescribed Laxido 2 to 3 times daily. Unlike usual the symptoms returned immediately after stopping laxido but was told by my GP its safe to
Hi all,I'm new to the community and this is my first post. I've had bowel problems on and off for many years but found they worsened in November 2022 when I was prescribed Laxido 2 to 3 times daily. Unlike usual the symptoms returned immediately after stopping laxido but was told by my GP its safe to
John_70
in
IBS Network
1 year ago
Radium-223 + Xtandi?
I’ve been on chemo (cabazitaxel + carboplatin) since Jan 2022 and also on Zometa and Lupron. PSA went from 1.3 in Jan 2023 to 11.7 this month. CT and Bone scans show bone mets somewhat stable but with activity, all bone no soft tissue. PET PSMA earlier this year did not show enough tracer activity
I’ve been on chemo (cabazitaxel + carboplatin) since Jan 2022 and also on Zometa and Lupron. PSA went from 1.3 in Jan 2023 to 11.7 this month. CT and Bone scans show bone mets somewhat stable but with activity, all bone no soft tissue. PET PSMA earlier this year did not show enough tracer activity
MechD
in
Advanced Prostate Cancer
11 months ago
Iron tabs.help
Hi fellow suffererers, I've just been reading the posts re.Iron supplements. I take two Gentle Iron 20mg every other night, I notice that the first ingredient listed on the bottle is a Bulking Agent(Microcrystalline Cellulose),I was wondering if I can purchase a Gentle Iron without any Bulking Agent,
Hi fellow suffererers, I've just been reading the posts re.Iron supplements. I take two Gentle Iron 20mg every other night, I notice that the first ingredient listed on the bottle is a Bulking Agent(Microcrystalline Cellulose),I was wondering if I can purchase a Gentle Iron without any Bulking Agent,
Whymelord
in
Restless Legs Syndrome
1 year ago
Does anyone use ‘Active Iron’ in UK?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
Dires
in
Restless Legs Syndrome
1 year ago
Iron supplements dosage
Is 20mg of gentle iron each night enough? It worked well the first night. What a wonderful relief it was. The second night it did work within 70 mins but returned within 3 hours.. I wonder why it didn't last as long? Would a slow release be better, like ferrous sulphate 325mg? Or will it need to be
Is 20mg of gentle iron each night enough? It worked well the first night. What a wonderful relief it was. The second night it did work within 70 mins but returned within 3 hours.. I wonder why it didn't last as long? Would a slow release be better, like ferrous sulphate 325mg? Or will it need to be
pennygates
in
Restless Legs Syndrome
1 year ago
Minoxidil
As most of you can relate to, I have given up so much in my life due to RLS. Every possible RLS trigger is in fact a trigger for me. I have given up HRT, SSRIs, statins, caffeine, alcohol, spicy foods (I used to put fresh jalapeno peppers on EVERYTHING), sugar, all processed foods, most carbs, and the
As most of you can relate to, I have given up so much in my life due to RLS. Every possible RLS trigger is in fact a trigger for me. I have given up HRT, SSRIs, statins, caffeine, alcohol, spicy foods (I used to put fresh jalapeno peppers on EVERYTHING), sugar, all processed foods, most carbs, and the
Birdland
in
Restless Legs Syndrome
1 year ago
General blood test - do I need to worry (not that it helps!)
Urea & electrolytes Serum sodium level 142 mmol/L (133.0-146.0) Serum potassium level 4.5 mmol/ (3.5-5.3) Serum urea level 6.7 mmol/L (3.5-7.2) Serum creatinine level 86 urology/L (49.0-90.0) EGFR. (F) 1.73M2 eGFR using creatinine (CKD-EPI) per 1.73 square metres 60 mL/min (60.9-200.0) …results
Urea & electrolytes Serum sodium level 142 mmol/L (133.0-146.0) Serum potassium level 4.5 mmol/ (3.5-5.3) Serum urea level 6.7 mmol/L (3.5-7.2) Serum creatinine level 86 urology/L (49.0-90.0) EGFR. (F) 1.73M2 eGFR using creatinine (CKD-EPI) per 1.73 square metres 60 mL/min (60.9-200.0) …results
Bluey-1
in
PMRGCAuk
1 year ago
Disimpacted 9 year old and still soiling
my 9 year old has been suffering with chronic constipation for 6 years, we are all at our wits end. It is hugely affecting my, but more importantly her, mental health. At the beginning of July we had a hospital stay for disimpaction via a NG tube. This was effective. Doctor prescribed 5 ml of sodium
my 9 year old has been suffering with chronic constipation for 6 years, we are all at our wits end. It is hugely affecting my, but more importantly her, mental health. At the beginning of July we had a hospital stay for disimpaction via a NG tube. This was effective. Doctor prescribed 5 ml of sodium
Natster90
in
ERIC
1 year ago
Good News - Nephrologist Visit Today
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
HisLittleOne
in
Early CKD Support
1 year ago
Good News From Nephrologist Today!
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
HisLittleOne
in
Kidney Disease
1 year ago
Another consultant cancellation
My husband was due to speak to the upper GI consultant next week.It has been cancelled again 3rd time. He has been waiting 12 months now for this appointment. I am so angry. I am going to ring the Secretary tomorrow to ask if they can please reconsider. He is very poorly now. Sleeping mostly, not eating
My husband was due to speak to the upper GI consultant next week.It has been cancelled again 3rd time. He has been waiting 12 months now for this appointment. I am so angry. I am going to ring the Secretary tomorrow to ask if they can please reconsider. He is very poorly now. Sleeping mostly, not eating
Diamondbabe
in
British Liver Trust
1 year ago
Has anyone ever had an Iron infusion?
Having suffered from underactive thyroid for years and taking Levothyroxine with mixed results, I also suffer from low iron and ferritin and Vitamin D. I find it hard to get my levels of iron up despite eating red meat and green veg and supplementing, and wondered if anyone had tried an iron infusion
Having suffered from underactive thyroid for years and taking Levothyroxine with mixed results, I also suffer from low iron and ferritin and Vitamin D. I find it hard to get my levels of iron up despite eating red meat and green veg and supplementing, and wondered if anyone had tried an iron infusion
doingitfordad
in
Thyroid UK
1 year ago
Blood results
Hi, i have now received my blood results and would like some advice please Sue/Jools. Transferrin Saturation 44% Serum Iron 25umol/l (normal 14-29) Serum Transferrin 2.28g/l Serum Ferritin 50 I hopefully have an appointment today
Hi, i have now received my blood results and would like some advice please Sue/Jools. Transferrin Saturation 44% Serum Iron 25umol/l (normal 14-29) Serum Transferrin 2.28g/l Serum Ferritin 50 I hopefully have an appointment today
Dires
in
Restless Legs Syndrome
1 year ago
Besremi Update 15 Months
Hi Community! I titrated my Besremi to 180 from 150 over the last three doses (a bit of a story there for another time). I assumed I'd need a phlebotomy as I hadn't had a CBC for 7 weeks and my Hematocrit was already 40 but it went down 2 points! Almost never happens without phlebotomy. Everything
Hi Community! I titrated my Besremi to 180 from 150 over the last three doses (a bit of a story there for another time). I assumed I'd need a phlebotomy as I hadn't had a CBC for 7 weeks and my Hematocrit was already 40 but it went down 2 points! Almost never happens without phlebotomy. Everything
Elizka
in
MPN Voice
1 year ago
Don't know What's happening to me!!
Doc recommended 2 x Amytryptyline in Feb., after it was discovered I had 2 x damaged discs in my lower back. Referred me to Physio, (appt. on 22nd!)I was OK for a couple of months, then started to feel dizzy, lost my appetite and taste, everything tastes sweet!, even a roast dinner. Went to see ACP
Doc recommended 2 x Amytryptyline in Feb., after it was discovered I had 2 x damaged discs in my lower back. Referred me to Physio, (appt. on 22nd!)I was OK for a couple of months, then started to feel dizzy, lost my appetite and taste, everything tastes sweet!, even a roast dinner. Went to see ACP
JanboC
in
PMRGCAuk
1 year ago
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