Search
Search
About
Log in
Join
Experiences with
Medium chain acyl dehydrogenase deficiency
Posts
Communities
4,478 public posts
Filter results
Feraheme / new acceptable ferritin levels
FERAHEME: is definitely good/new recommendation on iron ferritin for RLS Dr. B's response. On Wed, Jan 22, 2020 at 9:59 PM <somno@verizon.net> wrote: The community of truly good RLS doctors is very small and we all know each other fairly well. MY Dr. *** is an excellent RLS doctor and his advice and
FERAHEME: is definitely good/new recommendation on iron ferritin for RLS Dr. B's response. On Wed, Jan 22, 2020 at 9:59 PM <somno@verizon.net> wrote: The community of truly good RLS doctors is very small and we all know each other fairly well. MY Dr. *** is an excellent RLS doctor and his advice and
tinabuglaw
in
Restless Legs Syndrome
4 years ago
Anyone on Gazyva and Venetaklax combo?
My husband got off Imbruvica to switch to Gazyva and Venetaklax combo as Imbruv stopped working and he got anemia as hemoglobin was very low 7.1. Then he had to get 2 blood transfusions within 10 days and hemog is now a 9. Has anyone experienced low neutriphils, platelts, and hemoglobin while on Gazyva
My husband got off Imbruvica to switch to Gazyva and Venetaklax combo as Imbruv stopped working and he got anemia as hemoglobin was very low 7.1. Then he had to get 2 blood transfusions within 10 days and hemog is now a 9. Has anyone experienced low neutriphils, platelts, and hemoglobin while on Gazyva
Anavadya
in
CLL Support
4 years ago
Bowels misbehaving!
sorry for the delicate nature of this post! I finished chemo 5 weeks ago, all through cycle 5 & 6 I had diarrhoea and unfortunately it has continued. My recent scan was clear so my hospital are not overly concerned, they were pleased that Imodium works very well, but I can't take it for ever! can I?
sorry for the delicate nature of this post! I finished chemo 5 weeks ago, all through cycle 5 & 6 I had diarrhoea and unfortunately it has continued. My recent scan was clear so my hospital are not overly concerned, they were pleased that Imodium works very well, but I can't take it for ever! can I?
Hidden
in
My Ovacome
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Xofigo (Radium 223) to take with anything else as PSA levels have rocketed since coming off hormone treatment?
My father is hormone resistant and been fighting prostate cancer since 2013. He is 82, a recent scan showed his cancer hasn't spread to organs so has been approved to try Radium 223. His PSA levels have rocketed to 400 which is higher than when he had been on any hormone treatment, which he was taken
My father is hormone resistant and been fighting prostate cancer since 2013. He is 82, a recent scan showed his cancer hasn't spread to organs so has been approved to try Radium 223. His PSA levels have rocketed to 400 which is higher than when he had been on any hormone treatment, which he was taken
Luucy
in
Advanced Prostate Cancer
4 years ago
Too much iron causing hypo symptoms?
I've realized that, anytime I happen to eat red meat or take an iron supplement, I rapidly start feeling cold, lethargic and in a depressive mood (exactly how I feel when I am hypo) that lasts for a couple days. It seems like the extra iron interferes someway with my hormones. I take my levo in the morning
I've realized that, anytime I happen to eat red meat or take an iron supplement, I rapidly start feeling cold, lethargic and in a depressive mood (exactly how I feel when I am hypo) that lasts for a couple days. It seems like the extra iron interferes someway with my hormones. I take my levo in the morning
1366acul
in
Thyroid UK
4 years ago
Feeling on top of the world
Hello Ladies, I haven't posted for a while but I have news! I went for a scan last Wednesday and had a meeting with my oncologist on Thursday. The first thing he said was: 'We have your scan results'. I was not expecting them for another month but there was more. 'There is no measurable disease, a couple
Hello Ladies, I haven't posted for a while but I have news! I went for a scan last Wednesday and had a meeting with my oncologist on Thursday. The first thing he said was: 'We have your scan results'. I was not expecting them for another month but there was more. 'There is no measurable disease, a couple
LouisaMay
in
SHARE Metastatic Breast Cancer
4 years ago
Back In The Bed
I have been feeling great for a while but that came to an end, I spent all of last week in bed. I woke up feeling very fatigued i just couldn’t move around without feeling I was going to fall, I didn't go to the doctor because whenever I've gone because of how I am feeling they always say, they are not
I have been feeling great for a while but that came to an end, I spent all of last week in bed. I woke up feeling very fatigued i just couldn’t move around without feeling I was going to fall, I didn't go to the doctor because whenever I've gone because of how I am feeling they always say, they are not
PaigeyPaigeForLife
in
PKD Charity for Autosomal Dominant PKD
4 years ago
Leading pain doctor says no significant pain relievers for at least ten years.
A post I read in the newsletter Pain News Network, a leading doctor/scientist in the field of pain management stated that in her professional opinion there will not be a significant replacement pain reliever for at least ten years, or more. Seems Big Pharma is running out of options for pain relievers
A post I read in the newsletter Pain News Network, a leading doctor/scientist in the field of pain management stated that in her professional opinion there will not be a significant replacement pain reliever for at least ten years, or more. Seems Big Pharma is running out of options for pain relievers
Hidden
in
Action on Pain
4 years ago
Imbruvica and BM issues
Imbruvica 280mg. Hello, Gooz here again, Started this med a few days ago. I was told loose stool is a very common and to take Imodium (4 max daily) to help control this issue. My NP says it should subside in time. Does it? I'm 72 and I like being out and about without always being worried about nasty
Imbruvica 280mg. Hello, Gooz here again, Started this med a few days ago. I was told loose stool is a very common and to take Imodium (4 max daily) to help control this issue. My NP says it should subside in time. Does it? I'm 72 and I like being out and about without always being worried about nasty
goooz
in
CLL Support
4 years ago
Iron specific anemia symptoms
I recently had my b12 loading doses and my understanding is that an iron test can test falsely high, or rather iron levels can suddenly become depleted after a b12 deficiency is rectified. I am developing what looks like bruising around my eyes without having any accidents recently which would account
I recently had my b12 loading doses and my understanding is that an iron test can test falsely high, or rather iron levels can suddenly become depleted after a b12 deficiency is rectified. I am developing what looks like bruising around my eyes without having any accidents recently which would account
Roo32
in
Pernicious Anaemia Society
4 years ago
Stability and Compatibility Studies of Levothyroxine Sodium in Solid Binary Systems-Instrumental Screening
This is the sort of study that should have been done years ago. (At least, to the extent that the analytical techniques of the day were sensitive enough). And repeated as new analytical techniques became available. The sentence below, taken from the conclusions, is so obvious it is frightening that
This is the sort of study that should have been done years ago. (At least, to the extent that the analytical techniques of the day were sensitive enough). And repeated as new analytical techniques became available. The sentence below, taken from the conclusions, is so obvious it is frightening that
helvella
Thyroid UK
in
Thyroid UK
4 years ago
New signs of cancer in my L3 vertebrate
My diagnosis was prostate cancer Gleason 9.6 Had prostecamy and 28 lympnodes removed in pelvic area on Nov 2016 .. no signs of cancer till now . Had radiation 6 wks in 2018 june Hello group it's been awhile since iv been on the site . But I hit a problem my prostate cancer has spread to my L3 vertebrate
My diagnosis was prostate cancer Gleason 9.6 Had prostecamy and 28 lympnodes removed in pelvic area on Nov 2016 .. no signs of cancer till now . Had radiation 6 wks in 2018 june Hello group it's been awhile since iv been on the site . But I hit a problem my prostate cancer has spread to my L3 vertebrate
Teambaratta
in
Advanced Prostate Cancer
4 years ago
8 months waiting to not be given a diagnosis...?
Hi there. I wrote on here a few months ago now... I had a battle with my GP and finally got referred to a gastroenterologist who sent me for a colonoscopy, MRI scan and calprotectin stool test... I initially thought I had IBS, but wondered if I could possibly have Crohn's disease... I fought so hard
Hi there. I wrote on here a few months ago now... I had a battle with my GP and finally got referred to a gastroenterologist who sent me for a colonoscopy, MRI scan and calprotectin stool test... I initially thought I had IBS, but wondered if I could possibly have Crohn's disease... I fought so hard
kiisa
in
IBS Network
4 years ago
Need SOME ADVICE
DR ordered re-test 1 month after 1st test. BUN went down from 21 to 16 - is that good ? Creatinin still hovering about 1.5 Glucose 88, down from 89 / Protein - Negative / Potassium 4.3 / Sodium - 140 down from 145 / Last Albunim - 4.0. That was urine test still waiting for blood test results - Doctor
DR ordered re-test 1 month after 1st test. BUN went down from 21 to 16 - is that good ? Creatinin still hovering about 1.5 Glucose 88, down from 89 / Protein - Negative / Potassium 4.3 / Sodium - 140 down from 145 / Last Albunim - 4.0. That was urine test still waiting for blood test results - Doctor
apopnj01
in
Kidney Disease
4 years ago
Blood Results Antibodies Positive..Any Help or Guidance?
Below are my lab results. Diagnosed Graves Disease February 2019. Off thyroid medication. Feel awful. Pain left side of my head, shoulder, arm, hip and thigh. Itchy eyebrows. Also flush cheeks. Have deviated septum and possible TMJ. Recently put on estrogen patch. Been a year of feeling sick. Why if
Below are my lab results. Diagnosed Graves Disease February 2019. Off thyroid medication. Feel awful. Pain left side of my head, shoulder, arm, hip and thigh. Itchy eyebrows. Also flush cheeks. Have deviated septum and possible TMJ. Recently put on estrogen patch. Been a year of feeling sick. Why if
Kim327
in
Thyroid UK
4 years ago
Explosive d* - anxiety?
I almost went 3 whole weeks without my one Imodium per week (took one last on the 22 of December) and managed Christmas just fine, normal stools and quite a change in diet (no broccoli, sprouts, risky fruits and alot less chocolate and cake). Along with this I had no work, gigs or nerve inducing plans
I almost went 3 whole weeks without my one Imodium per week (took one last on the 22 of December) and managed Christmas just fine, normal stools and quite a change in diet (no broccoli, sprouts, risky fruits and alot less chocolate and cake). Along with this I had no work, gigs or nerve inducing plans
Cheesecake17
in
IBS Network
4 years ago
vitamin b12 supplement
Hi, I'm new here & need some help. I think I'm still stage 3 CKD & have been watching sodium, potassium, phosphorus & protein. I am concerned that I'm not getting enough vitamins. I already had multiple food allergies before CKD but my B-12 levels had been normal. Can anyone suggest a brand of supplements
Hi, I'm new here & need some help. I think I'm still stage 3 CKD & have been watching sodium, potassium, phosphorus & protein. I am concerned that I'm not getting enough vitamins. I already had multiple food allergies before CKD but my B-12 levels had been normal. Can anyone suggest a brand of supplements
promethes
in
Kidney Disease
4 years ago
Low in sodium
Happy new year everyone . Can anyone tell me if they had low salt levels come back in blood test at times and does HU cause this if so what will help raise my levels I have had to repeat my routine blood test today via Gp many thanks if anyone can advise I do drink lots of water
Happy new year everyone . Can anyone tell me if they had low salt levels come back in blood test at times and does HU cause this if so what will help raise my levels I have had to repeat my routine blood test today via Gp many thanks if anyone can advise I do drink lots of water
catwoman2015
in
MPN Voice
4 years ago
Can both t4 and t3 be used in treatment for hypothyroid.
Yesterday and today I've taken one and a half grains of armour and 25 of levo sodium. Probably silly but I feel like I have more energy. Is it ok to take both meds???
Yesterday and today I've taken one and a half grains of armour and 25 of levo sodium. Probably silly but I feel like I have more energy. Is it ok to take both meds???
Soundwell1
in
Thyroid UK
4 years ago
Can Sodium Lauryl Sulfate cause similar reaction as PG?
My son is allergic is PG - confirmed through patch testing. I've been VERY careful to avoid any medications that include PG as ingredient (which is challenging!). I'm noticing that my son's face is frequently red and splotchy (a reaction he used to get when he took medication that had PG in it). In playing
My son is allergic is PG - confirmed through patch testing. I've been VERY careful to avoid any medications that include PG as ingredient (which is challenging!). I'm noticing that my son's face is frequently red and splotchy (a reaction he used to get when he took medication that had PG in it). In playing
findtheanswernow
in
Allergic to Glycols
4 years ago
1
...
89
90
91
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
1458 results
Pernicious Anaemia Society
389 results
IBS Network
355 results
View top 10 communities
Sort by
Most Relevant
Newest