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Experiences with
Medium chain acyl dehydrogenase deficiency
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My #1 support person & me
I'm new to the form. I have mcrpc. I was on lupron injections for almost 1 year. I didn’t like the pain for 5 days after injection plus insurance only paid half the cost so I got an orchiectomy. I don’t regret that. Several months after the orchiectomy, my PSA level went up so my urologist said it’s
I'm new to the form. I have mcrpc. I was on lupron injections for almost 1 year. I didn’t like the pain for 5 days after injection plus insurance only paid half the cost so I got an orchiectomy. I don’t regret that. Several months after the orchiectomy, my PSA level went up so my urologist said it’s
Canis-Lupus53
in
Advanced Prostate Cancer
2 years ago
Macro’s and sodium limits
Hi all, looking at cleaning up my diet. I’m planning on using “my fitness pal” to track macros. Can anyone advise on break down of carbs, protein and fat best for fatty liver and what I should set the sodium level at. Thanks in advance.
Hi all, looking at cleaning up my diet. I’m planning on using “my fitness pal” to track macros. Can anyone advise on break down of carbs, protein and fat best for fatty liver and what I should set the sodium level at. Thanks in advance.
Kettl
in
Living with Fatty Liver and NASH
2 years ago
Decision time. Input welcome
Saw my MO yesterday. I need to make a decision by next week on how to proceed. My personal life is imploding and all I see there is having to sell my house and move to... someplace -- long story, but everything I've tried has come up short. BTW, I live by myself with no close friends and only a very
Saw my MO yesterday. I need to make a decision by next week on how to proceed. My personal life is imploding and all I see there is having to sell my house and move to... someplace -- long story, but everything I've tried has come up short. BTW, I live by myself with no close friends and only a very
Miccoman
in
Advanced Prostate Cancer
2 years ago
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Ascites or weight gain
My husband is very thin and been advised on a high calorie diet .He was admitted a few weeks ago with his first bout of ascites. A drip was put up and he was discharged 5 days later. We had a GP appt who took him iff the water tabs that he was prescribed as his legs etc were fine. We had our first liver
My husband is very thin and been advised on a high calorie diet .He was admitted a few weeks ago with his first bout of ascites. A drip was put up and he was discharged 5 days later. We had a GP appt who took him iff the water tabs that he was prescribed as his legs etc were fine. We had our first liver
Moux1
in
British Liver Trust
2 years ago
Anaemia due to inflammation
I had a blood test in Oct 21 that showed iron deficiency anaemia haemoglobin 105g/L serum iron 6 ferritin 10 CHr 25.9 gp asked to follow up nothing done and now feeling beyond exhausted and because I am a picky eater not sure how I can help myself any advice please
I had a blood test in Oct 21 that showed iron deficiency anaemia haemoglobin 105g/L serum iron 6 ferritin 10 CHr 25.9 gp asked to follow up nothing done and now feeling beyond exhausted and because I am a picky eater not sure how I can help myself any advice please
Miasnana
in
NRAS
2 years ago
Blood results back. Ferritin low but haemoglobin normal. TSH slightly raised.
Hi, thank you for all your previous help when I first posted about how tired I was constantly. I was advised to repost when I got my blood results back from the doc. They didn’t test all my vitamins but these are, I think, the most relevant ones from my results. TSH 2.43 (0.3-4.50) I have an endo
Hi, thank you for all your previous help when I first posted about how tired I was constantly. I was advised to repost when I got my blood results back from the doc. They didn’t test all my vitamins but these are, I think, the most relevant ones from my results. TSH 2.43 (0.3-4.50) I have an endo
Redcar1993
in
Thyroid UK
2 years ago
What is AMX0035, and Why Is It Important for All of Us?
AMX0035 is a drug combination of sodium phenylbutyrate (PB) and tauroursodeoxycholic acid (TUDCA). It works by regulating the mitochondrial (cell power supply) and endoplasmic reticulum (quality control centers). Put simply, both processes should work in unison, but when they don’t, cells in the body
AMX0035 is a drug combination of sodium phenylbutyrate (PB) and tauroursodeoxycholic acid (TUDCA). It works by regulating the mitochondrial (cell power supply) and endoplasmic reticulum (quality control centers). Put simply, both processes should work in unison, but when they don’t, cells in the body
SilentEchoes
in
Cure Parkinson's
2 years ago
IBS general: my experience
Dear all, it's been a while since I posted this, so here it is: This is my general approach to help people understand and repair their gastro-intestinal (GI) performance after being diagnosed with IBS. Firstly, IBS must be diagnosed by your doctor or consultant, after checks and treatment for gastro-intestinal
Dear all, it's been a while since I posted this, so here it is: This is my general approach to help people understand and repair their gastro-intestinal (GI) performance after being diagnosed with IBS. Firstly, IBS must be diagnosed by your doctor or consultant, after checks and treatment for gastro-intestinal
Stuart24
in
IBS Network
2 years ago
Besremi -Six Week Update
I had another CMP and CBC yesterday. Background: I got my first Besremi shot on January 28. I asked to start at 50 mcg. Second shot was 60 mcg and third was 70mcg. After six weeks, I'm thrilled to see changes in my counts: My WBC went from 15 to 10.8 (while it can fluctuate, it doesn't have a drop
I had another CMP and CBC yesterday. Background: I got my first Besremi shot on January 28. I asked to start at 50 mcg. Second shot was 60 mcg and third was 70mcg. After six weeks, I'm thrilled to see changes in my counts: My WBC went from 15 to 10.8 (while it can fluctuate, it doesn't have a drop
Elizka
in
MPN Voice
2 years ago
Blood test results, can anyone help?
I have been having multiple symptoms which i thought were due to the start of the menopause. A hormone test came back indicating this was not the case but my TSH was right on the limit of normality at 4.2. As my symptoms also match an under active thyroid I paid for a blood test and my TSH came back
I have been having multiple symptoms which i thought were due to the start of the menopause. A hormone test came back indicating this was not the case but my TSH was right on the limit of normality at 4.2. As my symptoms also match an under active thyroid I paid for a blood test and my TSH came back
Whirlygig
in
Thyroid UK
2 years ago
Loperamide or Budenoside
I have just been diagnosed with collagenous colitis and have a telephone appointment next week. From my research budenoside is a recommended treatment but my GP said it’s usually loperamide which is the same as Imodium. I’ve been using Imodium but as soon as it wears off the diarrhoea returns. Anyone
I have just been diagnosed with collagenous colitis and have a telephone appointment next week. From my research budenoside is a recommended treatment but my GP said it’s usually loperamide which is the same as Imodium. I’ve been using Imodium but as soon as it wears off the diarrhoea returns. Anyone
Xzbv
in
Crohn's and Colitis Support
2 years ago
Has anyone tried methyl cobalamin for injection from India, japan and Malaysia?
In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality assurance. In the meantime there are some facilitators for continuous delivery of hydroxocobalamin which are so cheap and work like insulin pump work
In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality assurance. In the meantime there are some facilitators for continuous delivery of hydroxocobalamin which are so cheap and work like insulin pump work
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
Update and first time referral to a neph...
Hi everyone, This is my second post. My first post, my husband had been leaking protein and was told it would go away. A year later, he still has it. Now he's being referred to a Nephrologist for the first time. Does anyone have any suggestions or tips on what to ask? He's not diabetic and his blood
Hi everyone, This is my second post. My first post, my husband had been leaking protein and was told it would go away. A year later, he still has it. Now he's being referred to a Nephrologist for the first time. Does anyone have any suggestions or tips on what to ask? He's not diabetic and his blood
Bananas2007
in
Kidney Disease
2 years ago
Iron Panel Results
Hi, I have posted on here before re my own thyroid test but have some questions about an iron paneltest my daughterdid and noticed a few people on this group are able to offer advice on iron panel tests (I could not find a specific iron group,just one relating to haemochromatosis) My 21 year old daughter
Hi, I have posted on here before re my own thyroid test but have some questions about an iron paneltest my daughterdid and noticed a few people on this group are able to offer advice on iron panel tests (I could not find a specific iron group,just one relating to haemochromatosis) My 21 year old daughter
ginid
in
Thyroid UK
2 years ago
Diet & CKD
Good morning, I was wondering if anyone else has had this experience? I told my neph that I was limiting protein, sodium and foods bad for the kidneys. She said that limiting protein etc is old school and instructed me not to add salt to any food. I am at a stage 3b. I have been reading posts on this
Good morning, I was wondering if anyone else has had this experience? I told my neph that I was limiting protein, sodium and foods bad for the kidneys. She said that limiting protein etc is old school and instructed me not to add salt to any food. I am at a stage 3b. I have been reading posts on this
Hello67
in
Kidney Disease
2 years ago
Nervous about having blood work done
Hello, does anyone else feel like they are in panic mode knowing it is time to have blood work done. I am so afraid to see my numbers. I have been drinking my water and eating a mostly vegan diet (I eat no meat, no poultry, no processed foods, and watch my sodium very carefully). I will eat a piece
Hello, does anyone else feel like they are in panic mode knowing it is time to have blood work done. I am so afraid to see my numbers. I have been drinking my water and eating a mostly vegan diet (I eat no meat, no poultry, no processed foods, and watch my sodium very carefully). I will eat a piece
Yankees28
in
Kidney Disease
2 years ago
tremors shaking jerking
Hello psp family so my dad has psp, now is peg fed, and has urethral catheter. stopped talking, very rigid most of the time, sometimes he has these shaking episodes, they happen every other month, thank god they arent a regular thing, but recently it seems like it is happening more than before. His
Hello psp family so my dad has psp, now is peg fed, and has urethral catheter. stopped talking, very rigid most of the time, sometimes he has these shaking episodes, they happen every other month, thank god they arent a regular thing, but recently it seems like it is happening more than before. His
Mustafa128h
in
PSP Association
2 years ago
And another ER visit and hospital stay
Jeff went back in for chemo and his blood pressure had plummeted and he was running 102 + fever. They nixed chemo and sent him immediately to the ER. He was discharged yesterday, although we didn’t really get a lot of answers. His sodium is too low and he was advised to eat more salt. They almost didn
Jeff went back in for chemo and his blood pressure had plummeted and he was running 102 + fever. They nixed chemo and sent him immediately to the ER. He was discharged yesterday, although we didn’t really get a lot of answers. His sodium is too low and he was advised to eat more salt. They almost didn
Pancake_Lefse
in
Advanced Prostate Cancer
2 years ago
LU-177
Crazy how fast things change. The same day we saw Dr. Kwon we saw Jeff’s radiation oncologist that afternoon. As I wasn’t anticipating much of an update from that appointment, I posted an update prematurely. In short, Jeff’s radiation oncologist felt radium 223 was the best next treatment. Radium 223
Crazy how fast things change. The same day we saw Dr. Kwon we saw Jeff’s radiation oncologist that afternoon. As I wasn’t anticipating much of an update from that appointment, I posted an update prematurely. In short, Jeff’s radiation oncologist felt radium 223 was the best next treatment. Radium 223
Pancake_Lefse
in
Advanced Prostate Cancer
2 years ago
Please help, diarrhoea, lump in chest and back, stomach pains after food.
I’m in desperate need of help or advice. I have been having loose stools for the last 5 weeks, every morning I go the same, it smells bad and is pale in colour a little orange. I have had a stool sample done (FIP) which was fine. I also have had a scan on my upper abdomen including my gallbladder, the
I’m in desperate need of help or advice. I have been having loose stools for the last 5 weeks, every morning I go the same, it smells bad and is pale in colour a little orange. I have had a stool sample done (FIP) which was fine. I also have had a scan on my upper abdomen including my gallbladder, the
Hidden
in
IBS Network
2 years ago
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