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Medium chain acyl dehydrogenase deficiency
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Pain killers and Hip replacement
Can someone help please. My hospital says it is VERY HIGH RISK me having a hip replacement, which means I have been having cortisol injections in both hips for 5 years. My hips are so so bad that the injections only last a few weeks rather than months. When I was diagnosed with JAK2 and mylioproliferative
Can someone help please. My hospital says it is VERY HIGH RISK me having a hip replacement, which means I have been having cortisol injections in both hips for 5 years. My hips are so so bad that the injections only last a few weeks rather than months. When I was diagnosed with JAK2 and mylioproliferative
Hildrethbird
in
MPN Voice
10 months ago
Dry eyes
Hi helpful warriors I am on 35 mg of pred for next 2 weeks, then tapering to 30. Does pred cause dry eyes? ( did have cataract removal surgery in June of 2023.) Since diagnosis of GCA in late July 2023 I have had very dry eyes. I am on Thealoz Duo drops (3% Trehalose, 0.15 Sodium Hyaluronate).
Hi helpful warriors I am on 35 mg of pred for next 2 weeks, then tapering to 30. Does pred cause dry eyes? ( did have cataract removal surgery in June of 2023.) Since diagnosis of GCA in late July 2023 I have had very dry eyes. I am on Thealoz Duo drops (3% Trehalose, 0.15 Sodium Hyaluronate).
Groda
in
PMRGCAuk
10 months ago
constipation help
hi,I have again started to suffer from constipation, I have been trying to find the best one because a lot of them contain a lot of sodium that draws calcium out of your bones, I have got to be careful with severe osteoporosis,
hi,I have again started to suffer from constipation, I have been trying to find the best one because a lot of them contain a lot of sodium that draws calcium out of your bones, I have got to be careful with severe osteoporosis,
Radars
in
Bone Health and Osteoporosis UK
11 months ago
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Confusing iron panel results
Hi, guys, I'd like to ask for help interpreting my iron panel results. First of all, let me say that this is the first time ever that I have had these tests done, so I don't have anything to compare with. This is what the results look like: Hemoglobin: 155 g/l (reference range: 120 - 160 g/l) Serum
Hi, guys, I'd like to ask for help interpreting my iron panel results. First of all, let me say that this is the first time ever that I have had these tests done, so I don't have anything to compare with. This is what the results look like: Hemoglobin: 155 g/l (reference range: 120 - 160 g/l) Serum
Galadriel_BG
in
Thyroid UK
11 months ago
Jardiance Approved for CKD
Article from Drugs.com FDA Clears Jardiance for Use in Chronic Kidney Disease (CKD) In September, the FDA cleared Jardiance (empagliflozin), from Boehringer Ingelheim and Eli Lilly, to reduce the risk of further worsening of kidney disease, end-stage kidney disease (ESKD), death due to cardiovascular
Article from Drugs.com FDA Clears Jardiance for Use in Chronic Kidney Disease (CKD) In September, the FDA cleared Jardiance (empagliflozin), from Boehringer Ingelheim and Eli Lilly, to reduce the risk of further worsening of kidney disease, end-stage kidney disease (ESKD), death due to cardiovascular
orangecity41
NKF Ambassador
in
Kidney Disease
11 months ago
My Efforts to Educate the Scientific Community
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
notnowdad
in
Restless Legs Syndrome
11 months ago
Low iron test results and a way forward please
I had some blood tests recently and am wanting advice on a way forward, please. My serum iron level and my transferrin saturation index are both below the minimum level on the reference ranges. My serum ferritin is only just above the minimum on the reference range. I am struggling with symptoms I remember
I had some blood tests recently and am wanting advice on a way forward, please. My serum iron level and my transferrin saturation index are both below the minimum level on the reference ranges. My serum ferritin is only just above the minimum on the reference range. I am struggling with symptoms I remember
yorkshiregirl4
in
Pernicious Anaemia Society
11 months ago
Anyone know anything about ferritin and trans ferritin saturation levels?
OK so I got some results back re iron and B12 and would so appreciate some expert understanding from anyone of you. I believe I might have lowish ferritin. It's 39ug but my transferritin saturation is 52%, which is high. How do I increase my iron levels if I need to, with high transferritin saturation
OK so I got some results back re iron and B12 and would so appreciate some expert understanding from anyone of you. I believe I might have lowish ferritin. It's 39ug but my transferritin saturation is 52%, which is high. How do I increase my iron levels if I need to, with high transferritin saturation
Auntbessy
in
Thyroid UK
11 months ago
Holter results, bradycardia as predicted...
So, I got my results and as I predicted, it came back with bradycardia. I'm a male, 26 yo, 74kg(160 pounds I think), caucasian. I take levothyroxine 50mg for subclinical thypothyroidism, escitalopram 20mg and valproate 500mg( for anxiety).My symptoms are classical symptoms of bradychardia, like dizziness
So, I got my results and as I predicted, it came back with bradycardia. I'm a male, 26 yo, 74kg(160 pounds I think), caucasian. I take levothyroxine 50mg for subclinical thypothyroidism, escitalopram 20mg and valproate 500mg( for anxiety).My symptoms are classical symptoms of bradychardia, like dizziness
Tarfk
in
British Heart Foundation
8 months ago
Help! Stomach Bug & Holiday!
For over a week I have had some sort of stomach bug with awful pains in the lower stomach, causing loose stools, feeling chilled then hot, with a recurring headache. I contacted my doctor asking for urgent stool tests, as I am due to go on holiday to Spain next Monday, just in case it is a stomach bug
For over a week I have had some sort of stomach bug with awful pains in the lower stomach, causing loose stools, feeling chilled then hot, with a recurring headache. I contacted my doctor asking for urgent stool tests, as I am due to go on holiday to Spain next Monday, just in case it is a stomach bug
laurajn087
in
IBS Network
11 months ago
CLL and Lupus labs
on 9/22/23 i had labs as follows : Blood sodium was low at 132 (was 122 when I was critical in mid July ) Chloride 99 WBC 39.69 RBC 2.66 Hemoglobin 10.0 Hematocrit 29.8 MCV 112 MCH 37.6 Platelets 134 Neutrophils #manual diff 1.98 Reticulocyte absolute .03 Haptoglobin 2.9 ( super duper low
on 9/22/23 i had labs as follows : Blood sodium was low at 132 (was 122 when I was critical in mid July ) Chloride 99 WBC 39.69 RBC 2.66 Hemoglobin 10.0 Hematocrit 29.8 MCV 112 MCH 37.6 Platelets 134 Neutrophils #manual diff 1.98 Reticulocyte absolute .03 Haptoglobin 2.9 ( super duper low
JerrysGirl3
in
CLL Support
11 months ago
Help with iron results - follow up from 3 arrows nutra
Hi everyone, I did an iron panel and I’m quite amazed with my ferritin level. I have been lax with my iron supps since going to T3 only and thought I would definitely have ranked my previously low results. To my disbelief, my ferritin is the highest I’ve ever seen it! I was previously taking the 3 arrows
Hi everyone, I did an iron panel and I’m quite amazed with my ferritin level. I have been lax with my iron supps since going to T3 only and thought I would definitely have ranked my previously low results. To my disbelief, my ferritin is the highest I’ve ever seen it! I was previously taking the 3 arrows
Beau55
in
Thyroid UK
11 months ago
Iron Level for RLS
It is proven that we sufferers r[i]equire over 100 when it comes to Iron . I have had RLS for 21'years and have a vast knowledge base. Now I am on 250 mg Pregabalin combined with 7.5 mg Targin.[/i][i]Symptoms are all over the place and waking me up during the night. [/i] [i]My recent Iron blood test
It is proven that we sufferers r[i]equire over 100 when it comes to Iron . I have had RLS for 21'years and have a vast knowledge base. Now I am on 250 mg Pregabalin combined with 7.5 mg Targin.[/i][i]Symptoms are all over the place and waking me up during the night. [/i] [i]My recent Iron blood test
Katyparis
in
Restless Legs Syndrome
11 months ago
Anaemia anyone?
So the latest is diagnosed with anaemia. Add iron supplements to the steroid list !! Whatever next…. 🤪 Doc seems happy with everything else
So the latest is diagnosed with anaemia. Add iron supplements to the steroid list !! Whatever next…. 🤪 Doc seems happy with everything else
gillsky8
in
PMRGCAuk
11 months ago
My body did not get the memo.
I accept that a test had been done measuring the amount of Hydroxocobalamin and Cynocabalamin that can be measured in the urine at different times after the injection and that the numbers are likely repeatable. I do not know if any testing was done on a subject that was B12 deficient. I find it unlikely
I accept that a test had been done measuring the amount of Hydroxocobalamin and Cynocabalamin that can be measured in the urine at different times after the injection and that the numbers are likely repeatable. I do not know if any testing was done on a subject that was B12 deficient. I find it unlikely
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Clinical trial: keep an eye on this
First results should be available by the first months of 2024. Radiation Medication (Radium-223 Dichloride) Versus Radium-223 Dichloride Plus Radiation Enhancing Medication (M3814) Versus Radium-223 Dichloride Plus M3814 Plus Avelumab (a Type of Immunotherapy) for Advanced Prostate Cancer Not Responsive
First results should be available by the first months of 2024. Radiation Medication (Radium-223 Dichloride) Versus Radium-223 Dichloride Plus Radiation Enhancing Medication (M3814) Versus Radium-223 Dichloride Plus M3814 Plus Avelumab (a Type of Immunotherapy) for Advanced Prostate Cancer Not Responsive
Maxone73
in
Advanced Prostate Cancer
8 months ago
Mayo Clinic studies B12 def, are very interesting!!
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
brenanddave
in
Pernicious Anaemia Society
11 months ago
TO EVERYONE: I have TONS of Nutritional Information From the USDA Website I Can Share
I downloaded 15 spreadsheets from the USDA website. 13 of them are different food groups with potassium, phosphorous, and sodium values (over 100 foods listed in each). 1 is just potassium and 1 is just phosphorous (over 700 foods listed each). I would not suggest going to the USDA website and trying
I downloaded 15 spreadsheets from the USDA website. 13 of them are different food groups with potassium, phosphorous, and sodium values (over 100 foods listed in each). 1 is just potassium and 1 is just phosphorous (over 700 foods listed each). I would not suggest going to the USDA website and trying
checkman
in
Kidney Dialysis
11 months ago
Milestones.
Seems to me that my milestones associated with my cobalamin issues tend to be known to me only in hindsight. I thought about it and came to understand that is the way most milestones actually happen and it is only in hindsight and my narrative of the past that milestones become apparent. I need to
Seems to me that my milestones associated with my cobalamin issues tend to be known to me only in hindsight. I thought about it and came to understand that is the way most milestones actually happen and it is only in hindsight and my narrative of the past that milestones become apparent. I need to
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Raising Low Sodium Levels
Hi beautiful people! I have this ongoing issue with low sodium levels. It's been below the reference range by 1-2 points over the last 4 weeks in 2 tests (136 and now 135 with the ref range starting from 137) Prior to that, I was just within the range, one point above the norm. Prior to that, it
Hi beautiful people! I have this ongoing issue with low sodium levels. It's been below the reference range by 1-2 points over the last 4 weeks in 2 tests (136 and now 135 with the ref range starting from 137) Prior to that, I was just within the range, one point above the norm. Prior to that, it
Juliet_22
in
Thyroid UK
11 months ago
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