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Experiences with
Medium chain acyl dehydrogenase deficiency
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intestinal issues.
I Hzve berm suffering g with intestinal issues… that I am confined to house unless I take Imodium.. I had a bout of diverticulitis in June put on nasty antibiotics n have not been normal since … July 17 I had stool tests done no one called me i till k was having an ear issue n the pcp NP called me n
I Hzve berm suffering g with intestinal issues… that I am confined to house unless I take Imodium.. I had a bout of diverticulitis in June put on nasty antibiotics n have not been normal since … July 17 I had stool tests done no one called me i till k was having an ear issue n the pcp NP called me n
Dancing
in
SHARE Metastatic Breast Cancer
10 months ago
Latest Flare up
Hi all I've been having loose BMs on and off for about a week now, mainly in a morning. Normally, my IBS steers towards the constipation side, but this is predominantly loose and this morning the second BM was more like diarrhea. Had to take Imodium. In between all this was a BM a few days ago that
Hi all I've been having loose BMs on and off for about a week now, mainly in a morning. Normally, my IBS steers towards the constipation side, but this is predominantly loose and this morning the second BM was more like diarrhea. Had to take Imodium. In between all this was a BM a few days ago that
Misspomfrey
in
IBS Network
10 months ago
Iron - wishful thinking
If only there were an iron forum here on HealthUnlocked! There is one: [i]
Haemochromatosis Society UK
[/i] https://healthunlocked.com/haemochromatosis-uk But its last post was three months ago. And it is a very specific niche issue. (Obviously very important to those affected.) And (of course
If only there were an iron forum here on HealthUnlocked! There is one: [i]
Haemochromatosis Society UK
[/i] https://healthunlocked.com/haemochromatosis-uk But its last post was three months ago. And it is a very specific niche issue. (Obviously very important to those affected.) And (of course
helvella
Thyroid UK
in
Thyroid UK
11 months ago
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Iron Levels
Hi RLS survivors So I mistakenly had my Ferratin and TST levels tested at the wrong time of the day but the readings were: Serum Ferratin level - 64ugl/L All suggestions welcome ????? Transferrin Profile serum iron levels 12umol /L Serum transferrin levels 3.06g/L Transfer in saturation level
Hi RLS survivors So I mistakenly had my Ferratin and TST levels tested at the wrong time of the day but the readings were: Serum Ferratin level - 64ugl/L All suggestions welcome ????? Transferrin Profile serum iron levels 12umol /L Serum transferrin levels 3.06g/L Transfer in saturation level
careerSquirrel
in
Restless Legs Syndrome
11 months ago
Reassurance
Hello all, Hope everyone is feeling well. I've always tried to reassure people on here when they are worried about IBS , but now, I'd like some reassurance please. Over the last week I'm having constant symptoms, I've no idea why this is. I've been having the same symptoms for 15 years, and each
Hello all, Hope everyone is feeling well. I've always tried to reassure people on here when they are worried about IBS , but now, I'd like some reassurance please. Over the last week I'm having constant symptoms, I've no idea why this is. I've been having the same symptoms for 15 years, and each
Misspomfrey
in
IBS Network
10 months ago
Scary collapse
So with the lack of a definitive diagnosis I have assumed I have ‘a bowel condition’. All tests normal as of April this year. Uncontrollable diarrhoea and permanent loose movements over a number of years plus diverticulosis are my history apart from Diabetes (2) low B12 Hiatus Hernia previous Bladder
So with the lack of a definitive diagnosis I have assumed I have ‘a bowel condition’. All tests normal as of April this year. Uncontrollable diarrhoea and permanent loose movements over a number of years plus diverticulosis are my history apart from Diabetes (2) low B12 Hiatus Hernia previous Bladder
Nonameme
in
IBS Network
10 months ago
Night sweats
Hi all , last night I woke up with night sweats , I’m 70 so it’s not the menopause ! Is it connected to ET jak 2 pos . I also have a condition where my Bp drops when standing up called POTs , orthostatic hypotension also I’m starting on Ferritin pills for low iron . See Gp again Thursday he sees me
Hi all , last night I woke up with night sweats , I’m 70 so it’s not the menopause ! Is it connected to ET jak 2 pos . I also have a condition where my Bp drops when standing up called POTs , orthostatic hypotension also I’m starting on Ferritin pills for low iron . See Gp again Thursday he sees me
Birdlady2021
in
MPN Voice
10 months ago
Advice on below range TSH, low ferritin, poor absorption and current dosage
Dear all, I posted some very odd results 3 months ago and have retested on your advice, twice...two months apart, with similar results. Testing using protocol advised by the group.I am still on 125 levo (eutirox) and 10ml T3 Liotir (liquid). Based in Italy. I also had symptoms of low B12 including
Dear all, I posted some very odd results 3 months ago and have retested on your advice, twice...two months apart, with similar results. Testing using protocol advised by the group.I am still on 125 levo (eutirox) and 10ml T3 Liotir (liquid). Based in Italy. I also had symptoms of low B12 including
Sandytango
in
Thyroid UK
11 months ago
Traveling with Imodium
I am due to fly to France in September and take the occasional Imodium/loperamide to help with my IBS. I want to take some of these with me but I'm not sure of how to go about this. Has anyone taken this medication on a plane, can it go in your cabin bag. I have tried to google this but can't seem
I am due to fly to France in September and take the occasional Imodium/loperamide to help with my IBS. I want to take some of these with me but I'm not sure of how to go about this. Has anyone taken this medication on a plane, can it go in your cabin bag. I have tried to google this but can't seem
Su29
in
IBS Network
10 months ago
Various B12D/PA resources
Admin Edit: This is not an official PAS post but it does contain many resources that may be of use to members and has been pinned for that reason ___________________________________________________________________ Hi all, I had some time to spare today and thought I would write a post with a list of
Admin Edit: This is not an official PAS post but it does contain many resources that may be of use to members and has been pinned for that reason ___________________________________________________________________ Hi all, I had some time to spare today and thought I would write a post with a list of
jade_s
in
Pernicious Anaemia Society
11 months ago
iron deficiency
Hi all , just found out my blood tests show low in iron ,is this common with ET etc first time I have this I take sodium tablets also because was very low and vitamin. D so taking it long term ! I wonder if it’s all part of the condition ? Or the hydroxycarbamide or my age I’m 70 now 😀
Hi all , just found out my blood tests show low in iron ,is this common with ET etc first time I have this I take sodium tablets also because was very low and vitamin. D so taking it long term ! I wonder if it’s all part of the condition ? Or the hydroxycarbamide or my age I’m 70 now 😀
Birdlady2021
in
MPN Voice
10 months ago
don’t know what’s happening
previous test 30 may 23 at 8/30 on 150 thyroxine 12 and half t3 Tsh 0.02 (0.27-4.2). T4 17.9(10.5-22) t3 4.3(3.1-6.8) Mention to the dr about what you had said about iron panel/ chronic disease,she said yes your thyroid wasn’t sure if she was doing it although she’d book me to have bloods I had already
previous test 30 may 23 at 8/30 on 150 thyroxine 12 and half t3 Tsh 0.02 (0.27-4.2). T4 17.9(10.5-22) t3 4.3(3.1-6.8) Mention to the dr about what you had said about iron panel/ chronic disease,she said yes your thyroid wasn’t sure if she was doing it although she’d book me to have bloods I had already
Kowbie
in
Thyroid UK
11 months ago
Bring PSA from 6.7 to 3.1 in 4 weeks by pure water fast (3wks) and vegan diet (1 wk).
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
DADICIDAD
in
Advanced Prostate Cancer
10 months ago
Just need to talk.
hi there, Since, I really have no idea what I’m doing and having an ileostomy complicates things like I can’t just drink water I have to drink isotonic drinks etc. Anyway, I have stents due to hydronephrosis. My egfr was 22, then 20 in hospital last year. I have nephrostomy’s for a while. last week
hi there, Since, I really have no idea what I’m doing and having an ileostomy complicates things like I can’t just drink water I have to drink isotonic drinks etc. Anyway, I have stents due to hydronephrosis. My egfr was 22, then 20 in hospital last year. I have nephrostomy’s for a while. last week
AndreaBabyC
in
Kidney Disease
10 months ago
Treatment after Lu /Pluvicto?
It seems that there is paucity of data related to the effectiveness of treatments after Lu/Pluvicto. I'm beginning to suspect that pubished survival benefits for Radium 223/Pluvicto and chemotherapy cannot be assumed to be anticipated if the patient has had Pluvicto. My husband has completed 6 sessions
It seems that there is paucity of data related to the effectiveness of treatments after Lu/Pluvicto. I'm beginning to suspect that pubished survival benefits for Radium 223/Pluvicto and chemotherapy cannot be assumed to be anticipated if the patient has had Pluvicto. My husband has completed 6 sessions
cancervictim
in
Advanced Prostate Cancer
8 months ago
Has anyone been using TUDCA or Restore Gold? Have you seen slowing or halting of progression of symptoms?
It looks like TUDCA is one of two ingredients in a drug now being sold to treat ALS, under the brand name Relyvrio in the U.S. (but at an extortionate list price of $158,000 a year) and ALBRIOZA in Canada. Co-formulated sodium phenylbutyrate/taurursodiol (PB/TURSO). Approved by the FDA in Dec. 2022 and
It looks like TUDCA is one of two ingredients in a drug now being sold to treat ALS, under the brand name Relyvrio in the U.S. (but at an extortionate list price of $158,000 a year) and ALBRIOZA in Canada. Co-formulated sodium phenylbutyrate/taurursodiol (PB/TURSO). Approved by the FDA in Dec. 2022 and
kathy775
in
Cure Parkinson's
11 months ago
T3 much better but feeling worse again!
I'm on a high dose of levo, 200mcg per day (I weigh 80kg right now), and just got test results back that show my T3 levels are much improved. However, of course, my TSH is now below range and my T4 way over. My ferritin, etc, is as bad as it's ever been, despite taking 210mg of ferrous fumarate each
I'm on a high dose of levo, 200mcg per day (I weigh 80kg right now), and just got test results back that show my T3 levels are much improved. However, of course, my TSH is now below range and my T4 way over. My ferritin, etc, is as bad as it's ever been, despite taking 210mg of ferrous fumarate each
crabapple1
in
Thyroid UK
11 months ago
Loosing the weight/Blood Results
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
Btsfan
in
Thyroid UK
11 months ago
Terrified
I’m in a complete mess. In 2011 I was diagnosed with vitamin B12 deficiency, my level was 154 and I also had vitamin D deficiency and iron deficiency at the same time. I was given loading doses of B12 and felt so much better and then went onto 3 monthly injections. I found that towards the end of the
I’m in a complete mess. In 2011 I was diagnosed with vitamin B12 deficiency, my level was 154 and I also had vitamin D deficiency and iron deficiency at the same time. I was given loading doses of B12 and felt so much better and then went onto 3 monthly injections. I found that towards the end of the
Hayley31
in
Pernicious Anaemia Society
11 months ago
Light headed.
Twice this week I have felt slightly dizzy and lightheaded. My sodium levels are usually low. I'm waiting to go back for another test. I wonder if this could be causing my symptoms. I feel drained too. Usually, I am fine. It makes me really worried thinking I might have a stroke or heart attack
Twice this week I have felt slightly dizzy and lightheaded. My sodium levels are usually low. I'm waiting to go back for another test. I wonder if this could be causing my symptoms. I feel drained too. Usually, I am fine. It makes me really worried thinking I might have a stroke or heart attack
benmaise
in
AF Association
11 months ago
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