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Giant axonal neuropathy
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First major pathological fracture
We’ve sustained our first significant pathological fracture (right humerus), and upon X-rays have been told the other humerus and both femurs are of similar status. Ortho oncologist talked about doing preventative measures like plates and rods which seem very extreme to put him through major surgeries
We’ve sustained our first significant pathological fracture (right humerus), and upon X-rays have been told the other humerus and both femurs are of similar status. Ortho oncologist talked about doing preventative measures like plates and rods which seem very extreme to put him through major surgeries
WVtwinsmama
in
Advanced Prostate Cancer
3 years ago
Sotalol v flecanide
I feel lost with my current position. I suffer with PAF and ectopics. My cardiologist and nurse recommended flecanide and arranged a blood test to see if my heart was ok . I asked about echo and ecg . In wales they don’t do that they said . So I’m all prepared to start flecanide. Out of the blue a letter
I feel lost with my current position. I suffer with PAF and ectopics. My cardiologist and nurse recommended flecanide and arranged a blood test to see if my heart was ok . I asked about echo and ecg . In wales they don’t do that they said . So I’m all prepared to start flecanide. Out of the blue a letter
kalgs
in
AF Association
3 years ago
Anyone else suffering from peripheral neuritis?
Anyone else suffering from peripheral neuritis! Have burning sensation and pins and needles in my feet especially at night.
Anyone else suffering from peripheral neuritis! Have burning sensation and pins and needles in my feet especially at night.
Trenholm
in
Pain Concern
3 years ago
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Not responding well to IVF stims
Hello, I wonder if anyone can help. I am not responding to ivf stims currently on day 11 and only have 2 follicles above 10mm. I initially had 24 follicles at baseline and was put on a low dose of 125 Gonal F. After 7 days no progress, up to 175 on day 9 no progress, then 250 only 2 follicles . So disheartened
Hello, I wonder if anyone can help. I am not responding to ivf stims currently on day 11 and only have 2 follicles above 10mm. I initially had 24 follicles at baseline and was put on a low dose of 125 Gonal F. After 7 days no progress, up to 175 on day 9 no progress, then 250 only 2 follicles . So disheartened
GHMP0610
in
Women's Health
3 years ago
PN and vaccine
Hello everyone, happy to join this support group! I suffer from Peripheral Neuropathy caused by B12 deficiency. I have been on the B12 injections for 9 months now and although my symptoms have relieved greatly, I still have some bad days (as well as nerve damage on my left side). I have been scheduled
Hello everyone, happy to join this support group! I suffer from Peripheral Neuropathy caused by B12 deficiency. I have been on the B12 injections for 9 months now and although my symptoms have relieved greatly, I still have some bad days (as well as nerve damage on my left side). I have been scheduled
Hidden
in
Neuropathy Support
3 years ago
Bowel Endo Symptoms ** UPDATE **
Just an update to say I had the results of the MRI today. Stage 4 endo, everywhere. Particularly around the rectum, bowel, on my C Section scar... ovaries, inbetween vagina and rectum, I think he said bladder too. It was all a bit of a shock. I also have adeno. Lap booked in 2 weeks as I am so so
Just an update to say I had the results of the MRI today. Stage 4 endo, everywhere. Particularly around the rectum, bowel, on my C Section scar... ovaries, inbetween vagina and rectum, I think he said bladder too. It was all a bit of a shock. I also have adeno. Lap booked in 2 weeks as I am so so
Rose153
in
Endometriosis UK
3 years ago
Gonal F & tiredness - 1st round of IVF
I’m 4 days into 225units of Gonal F & come 4pm I’m flagging by 7pm I’m struggling to keep my eyes open is this normal? X
I’m 4 days into 225units of Gonal F & come 4pm I’m flagging by 7pm I’m struggling to keep my eyes open is this normal? X
Candlewax3
in
Fertility Network UK
3 years ago
Gonal F and Travel
Has any one ever had to manage taking their IVF medication whilst away from home for the weekend? My husband and I have a weekend of house hunting in a different city in the UK planned. I am about to start stims but AF is late. Typical! 🙄 The problem I have is that I am on Gonal F which has to stay
Has any one ever had to manage taking their IVF medication whilst away from home for the weekend? My husband and I have a weekend of house hunting in a different city in the UK planned. I am about to start stims but AF is late. Typical! 🙄 The problem I have is that I am on Gonal F which has to stay
JoyfulStar
in
Fertility Network UK
3 years ago
High AMH but poor egg quality
Hi All. Just 2dp5dt from my second cycle. I only had one viable embryo at the end of the first cycle and was really disappointed that it was the same story this time. I collected 15 eggs, 9 fertilised but day 3 only 3 embryos and by day 5 only one was suitable for transfer and the others were graded
Hi All. Just 2dp5dt from my second cycle. I only had one viable embryo at the end of the first cycle and was really disappointed that it was the same story this time. I collected 15 eggs, 9 fertilised but day 3 only 3 embryos and by day 5 only one was suitable for transfer and the others were graded
TheFoxes
in
Fertility Network UK
3 years ago
Late period after failed transfer
Hello, It was my fist IVF Cycle, I took a small doses of gonal and in the ponction we got 8 folicules, 5 fertilized and 3 made it to day 3 , all the 3 were 8AA , we did freeze two and did one fresh transfer, unfortunately 14 days later the blood test showed no pregnancy, so I stopped the progesterone
Hello, It was my fist IVF Cycle, I took a small doses of gonal and in the ponction we got 8 folicules, 5 fertilized and 3 made it to day 3 , all the 3 were 8AA , we did freeze two and did one fresh transfer, unfortunately 14 days later the blood test showed no pregnancy, so I stopped the progesterone
Titawine
in
Fertility Network UK
3 years ago
Ibrutinib and Anti-Inflammatory Medications
Wondering what is recommended for muscle type pain inflammation. Used to use ibuprofen, but no longer due to ibrutinib. Any recommendations will be checked with my MD before use. I have used bio freeze. Considering Voltaren creme but, not to sure about it’s safety profile.
Wondering what is recommended for muscle type pain inflammation. Used to use ibuprofen, but no longer due to ibrutinib. Any recommendations will be checked with my MD before use. I have used bio freeze. Considering Voltaren creme but, not to sure about it’s safety profile.
Davidcara
in
CLL Support
3 years ago
Has anyone had their downregs (buserelin) increased if their lining isn’t thin enough?
I was scanned Monday at 10.6mm, day 10 of buserelin. Started my period Monday afternoon, Wednesday scan - lining 5.6mm but they want below 4mm to start Gonal F. Fri scan, day 14 of buserelin - lining no change at 5.6mm but my period has finished. I’m waiting for my consultant to call me this evening
I was scanned Monday at 10.6mm, day 10 of buserelin. Started my period Monday afternoon, Wednesday scan - lining 5.6mm but they want below 4mm to start Gonal F. Fri scan, day 14 of buserelin - lining no change at 5.6mm but my period has finished. I’m waiting for my consultant to call me this evening
Candlewax3
in
Fertility Network UK
3 years ago
Change of Medication and Dosage
Hi Ladies This is my first time writing. I love this forum for the support and knowledge it provides to us on this IVF journey. I will soon begin my forth cycle of ivf. My first was a short flare with 225 IU of menopur. The cycle was cancelled as the follicles grew at different rates and there was quite
Hi Ladies This is my first time writing. I love this forum for the support and knowledge it provides to us on this IVF journey. I will soon begin my forth cycle of ivf. My first was a short flare with 225 IU of menopur. The cycle was cancelled as the follicles grew at different rates and there was quite
Beclp
in
Fertility Network UK
3 years ago
Has anyone else suffered breast tenderness?
Hi just wondered if anyone else has had breast tenderness on one side and numbness and tingling in arm. Not really painful more like pins and needles. I have SLE and lung fibrosis. So is this another lupus symptom? I am post menopausal so no longer have periods. Thank you in advance.
Hi just wondered if anyone else has had breast tenderness on one side and numbness and tingling in arm. Not really painful more like pins and needles. I have SLE and lung fibrosis. So is this another lupus symptom? I am post menopausal so no longer have periods. Thank you in advance.
Hidden
in
LUPUS UK
3 years ago
Muscle pain from ADT
Five months into ADT, severe muscle pain has emerged. Since I have not had any pain for decades except from bicycle falls, I assume the pain is cancer related. Since the area of pain has moved once, from just beneath my shoulder on the back side to my upper arm, both on the left side, I assume it
Five months into ADT, severe muscle pain has emerged. Since I have not had any pain for decades except from bicycle falls, I assume the pain is cancer related. Since the area of pain has moved once, from just beneath my shoulder on the back side to my upper arm, both on the left side, I assume it
Purple-Bike
in
Advanced Prostate Cancer
3 years ago
Anyone else having egg retrieval this month 😬
My wife went for her baseline scan today, ready for her to prepare for her second egg retrieval. They saw 16 follicles on one side and 12 on the other. Her lining was 5mm so she's ready to start her gonal F injections this evening. Anyone else preparing for egg collection this month? Also I have my ERA
My wife went for her baseline scan today, ready for her to prepare for her second egg retrieval. They saw 16 follicles on one side and 12 on the other. Her lining was 5mm so she's ready to start her gonal F injections this evening. Anyone else preparing for egg collection this month? Also I have my ERA
Hope_1234
in
Fertility Network UK
3 years ago
Paraneoplastic sensory neuropathy (PSN) with anti Hu-antibodies and promoting human growth hormone (HRH)
Good Morning all, Has anyone with sensory neuropathy focused on boosting their human growth hormone and had positive results of nerve regrowth or healing? Or used Red Light Therapy? Or any other advice to encourage healing of the nerve damage. Many thanks
Good Morning all, Has anyone with sensory neuropathy focused on boosting their human growth hormone and had positive results of nerve regrowth or healing? Or used Red Light Therapy? Or any other advice to encourage healing of the nerve damage. Many thanks
Cloe
in
Neuropathy Support
3 years ago
Nifedipine alternatives
I've been taking Nifedipine for 20 or more years and my current prescription is for 20mg MR (modified release) e.g. slowly, rather than a quick hit which is sometimes better. As I'm anti medicines, one prescription can sometimes last a year, as I only take them when its really cold. Although this year
I've been taking Nifedipine for 20 or more years and my current prescription is for 20mg MR (modified release) e.g. slowly, rather than a quick hit which is sometimes better. As I'm anti medicines, one prescription can sometimes last a year, as I only take them when its really cold. Although this year
mikejdrake
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Alternative to gabapentin?
I have what I think is nerve damage in thoracic spine. I've tried gabapentin and pregabalin and antidepressants, all things that "mess with your head". I have bad reactions to them all. Does anyone know of anything other than these that help nerve pain ?
I have what I think is nerve damage in thoracic spine. I've tried gabapentin and pregabalin and antidepressants, all things that "mess with your head". I have bad reactions to them all. Does anyone know of anything other than these that help nerve pain ?
Sunrise58
in
Pain Concern
3 years ago
Small Fibre Neuropathy in Feet
Diagnosed a few months ago with SFN caused by Sulfasalazine medication - a rare side effect. I'm off the Sulfa now but I've still got it. Is there any treatment or remedies that any body knows of to ease the discomfort (no pain).
Diagnosed a few months ago with SFN caused by Sulfasalazine medication - a rare side effect. I'm off the Sulfa now but I've still got it. Is there any treatment or remedies that any body knows of to ease the discomfort (no pain).
Biscuitman
in
Neuropathy Support
3 years ago
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