Anyone else suffering from peripheral neuritis?

[Trenholm]

Anyone else suffering from peripheral neuritis! Have burning sensation and pins and needles in my feet especially at night.

[bookish]

Hi, have they given you any idea about the cause as there are many possible reasons. Some are reversible, some less easy. I have what they call Small Fibre Neuropathy, but some symptoms resolved with B12 and methylfolate. I suspect a slight blood sugar issue may be causing some of it. Another possible may be Sjogren's in my case. If you can work out underlying cause/s you have a much better chance of improving symptoms. Best wishes

[Trenholm in reply to bookish]

Only went to GP a couple of months ago. Have had blood tests but no results yet. Have arthritis in my back so she things it could be that. Hate taking the amiltryptiline she prescribed. Too many side effects.

[bookish in reply to Trenholm]

Hopefully you'll have some better ideas once you've got a copy of results then. I wasn't keen on amitriptyline either, but it can help some. Made my heart go very odd if I took more than a tiny amount. Is it RA or osteo (or PA)?

[Trenholm in reply to bookish]

Osteoarthritis and a new hip and knee

[bookish in reply to Trenholm]

Sorry to hear that. I wondered if you already had established autoimmune issues, like RA and PA, but of course Osteo can occur alongside anyway. I found an anti-inflammatory autoimmune diet helped quite a bit with overall health so might be worth a try, but I'd get checked for Coeliac first, just in case, so you don't have to go back onto gluten for testing. There is some research into possible mast cell connections with Osteo. You may have seen it, but if not med.stanford.edu/news/all-n.... Mast cell dysregulation seems to be being connected to rather a lot at the moment, Long Covid included, so more research may be forthcoming. Mast cells don't only trigger with IgE there can be many other reasons. I use quercetin as a natural mast cell stabliser plus extra vitamin C and magnesium, and I eat a low histamine diet. Some use antihistamines too although they can aggravate the problem in the long term. Might be worth a try to see if it helps your symptoms, then you might have a clue to underlying cause. A food and 'other' diary can help too. I find changes in weather - drops in pressure/high winds - trigger my mast cells, as do hormone fluctuations. Best wishes

[Asherleymoco]

Hi there. I suffered with this and solely on a night. turns out I was folic acid deficient. This managed to disappear after a little course of folic acid. Maybe push your GP for some blood tests

[Trenholm in reply to Asherleymoco]

Have had some tests but no results yet. Hadn’t heard of folic acid deficiency being a cause only vitamin B12. Dont know if they would have tested for that. Maybe I should get some.

[Asherleymoco in reply to Trenholm]

It’s the test called serum folate. My neurologist sent me for bloods. Turns out she tested me for 56 separate things so it was thorough. I was vitamin D and folic acid deficient.