Search
Search
About
Log in
Join
Experiences with
Giant axonal neuropathy
Posts
Communities
4,074 public posts
Filter results
Cancelled cycle - over developed follicle?
Hi gang I had a really fantastic response from you great people last time I thought I would post a development which we weren't expecting. I wonder if others have had a similar story. Forgive me if some of the terms are incorrect - such a lot to take in! We were all ready to start a second round of IVF
Hi gang I had a really fantastic response from you great people last time I thought I would post a development which we weren't expecting. I wonder if others have had a similar story. Forgive me if some of the terms are incorrect - such a lot to take in! We were all ready to start a second round of IVF
jdiraus
in
Fertility Network UK
3 years ago
PA and proctitis
My mom was diagnosed with PA awhile back and has struggled with proctitis for some time. Is there any connection? Anyone else experience this? Did B12 injections help?
My mom was diagnosed with PA awhile back and has struggled with proctitis for some time. Is there any connection? Anyone else experience this? Did B12 injections help?
Ctadds1
in
Pernicious Anaemia Society
3 years ago
Is it a prolapse
Hi guys, I've had severe stabbing pain since February, doctors first told me it was a prolapse then others said it shouldn't hurt so much. After going to so many doctors back an forth it just got worse and my right leg started to really hurt, to the point I couldn't walk on it. I was then diagnosed with
Hi guys, I've had severe stabbing pain since February, doctors first told me it was a prolapse then others said it shouldn't hurt so much. After going to so many doctors back an forth it just got worse and my right leg started to really hurt, to the point I couldn't walk on it. I was then diagnosed with
Taluh
in
Pelvic Pain Support Network
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Slow growing or doomed?
Hi everyone, new to this forum. I am 32, have had three miscarriages in the past year and a half and the last one was a complete molar pregnancy. We have started IVF in hopes of collecting and freezing embryos as I have very low AMH (0.44), FSH was normal. I started last week, we are at max dose 450
Hi everyone, new to this forum. I am 32, have had three miscarriages in the past year and a half and the last one was a complete molar pregnancy. We have started IVF in hopes of collecting and freezing embryos as I have very low AMH (0.44), FSH was normal. I started last week, we are at max dose 450
pm1988
in
Fertility Network UK
3 years ago
Burning Sensation in Toe...ADT related?
I am nearing the end of my first year of ADT treatments (Eligard) with one more year to go. About two months ago, I noticed a burning sensation in one of my big toes, like someone was holding a cigarette to my toe. The pain lasts a few minutes before subsiding. I've read that this could be a sign of
I am nearing the end of my first year of ADT treatments (Eligard) with one more year to go. About two months ago, I noticed a burning sensation in one of my big toes, like someone was holding a cigarette to my toe. The pain lasts a few minutes before subsiding. I've read that this could be a sign of
DJBUNK
in
Advanced Prostate Cancer
3 years ago
Recent Developments in RLS : rTMS and rDCS
Every hear of : tDCS transcranial direct current stimulation or TMS transcranial magnetic stimulation From my paper... this was the best part..... "Lastly, further understandings come from recent investigations using noninvasive stimulation techniques:DCS has proved to be a painlessway of reducing spinal
Every hear of : tDCS transcranial direct current stimulation or TMS transcranial magnetic stimulation From my paper... this was the best part..... "Lastly, further understandings come from recent investigations using noninvasive stimulation techniques:DCS has proved to be a painlessway of reducing spinal
WideBody
in
Restless Legs Syndrome
3 years ago
IVF/ICSI Not Responding To Stims - Desperate Advice Needed.
Hi, We've just started our first IVF / ICSI through the NHS. I've been on 0.5ml of Buserelin Injections since 3rd April and 450iu Gonal F Injections (the max they can give) since 2nd May. And have a low AMH level of 2pmol/l. We've just had our second of three progress scans which was 9 days on Gonal
Hi, We've just started our first IVF / ICSI through the NHS. I've been on 0.5ml of Buserelin Injections since 3rd April and 450iu Gonal F Injections (the max they can give) since 2nd May. And have a low AMH level of 2pmol/l. We've just had our second of three progress scans which was 9 days on Gonal
sparkle183
in
Fertility Network UK
3 years ago
Poor response to stim
Hi Ladies, I have started my first ivf cycle in April, was on buserelin for 3 weeks and now am in the 3rd week of stimulation but am very disappointed as I only have 2 folicles of 11mm ): . I am taking gonal f started at 300 now taking 450 but despite increased dose the response isn't good. The lining
Hi Ladies, I have started my first ivf cycle in April, was on buserelin for 3 weeks and now am in the 3rd week of stimulation but am very disappointed as I only have 2 folicles of 11mm ): . I am taking gonal f started at 300 now taking 450 but despite increased dose the response isn't good. The lining
Viorela
in
Fertility Network UK
3 years ago
NAD IV ? Anyone tried
Is it a cure ? Is there any way to get IV benefit by other means. ? What is the best brand for intra nasal NAD ? R suppositories better ? NR or NMN. What's better.? What boosters (ex Resveratrol) I just want my dad to have DNA repair and have more energy! Thankyou for any guidance . Kind regards
Is it a cure ? Is there any way to get IV benefit by other means. ? What is the best brand for intra nasal NAD ? R suppositories better ? NR or NMN. What's better.? What boosters (ex Resveratrol) I just want my dad to have DNA repair and have more energy! Thankyou for any guidance . Kind regards
Vegegardner
in
Cure Parkinson's
3 years ago
NAD/ NMN/ or NR ??????
What works? What brands? How much? Is Resveratrol or Pterostilbene essential?? With NR or just NMN? N-STAC ? TRU NIAGEN ? Alive by science? INTRANASAL NAD? My dad has a mitochondrial problem they say. Niacin helped. Anyone have experience. Please help with your experience. Dads PD symptoms include weakness
What works? What brands? How much? Is Resveratrol or Pterostilbene essential?? With NR or just NMN? N-STAC ? TRU NIAGEN ? Alive by science? INTRANASAL NAD? My dad has a mitochondrial problem they say. Niacin helped. Anyone have experience. Please help with your experience. Dads PD symptoms include weakness
Vegegardner
in
Cure Parkinson's
3 years ago
IVF/ICSI Not Responding To Stims - can that change?
Hi, We've just started our first IVF / ICSI through the NHS. I've been on 0.5ml of Buserelin Injections and 450iu Gonal F Injections (the max they can give). We've just had our second of three progress scans and unfortunately only one follicle out of 2-3 is growing. So looking like we'll only have one
Hi, We've just started our first IVF / ICSI through the NHS. I've been on 0.5ml of Buserelin Injections and 450iu Gonal F Injections (the max they can give). We've just had our second of three progress scans and unfortunately only one follicle out of 2-3 is growing. So looking like we'll only have one
sparkle183
in
Fertility Network UK
3 years ago
Information for people in the UK on Tocilizumab (Ro-Actemra) injections
Hello, and apologies for not posting for such a long time. As one of the few (and greatly privileged) LVV-GCA sufferers in the UK lucky enough to have been prescribed subcutaneous Tocilizumab injections, I have a couple of items of news. First of all, along with my husband, I have been a participant
Hello, and apologies for not posting for such a long time. As one of the few (and greatly privileged) LVV-GCA sufferers in the UK lucky enough to have been prescribed subcutaneous Tocilizumab injections, I have a couple of items of news. First of all, along with my husband, I have been a participant
Suzita76
in
PMRGCAuk
3 years ago
Update/ small fiber antibodies test (fyi, a bit long)
Hi it’s been a while. I’ve been a little stretched thin. Lately these days have been a bit harder (extra one on one attention is needed and jealousy has been more prevelant). But we constantly push forward, reminding them that we have more than enough love for both and know that the ultimate goal is
Hi it’s been a while. I’ve been a little stretched thin. Lately these days have been a bit harder (extra one on one attention is needed and jealousy has been more prevelant). But we constantly push forward, reminding them that we have more than enough love for both and know that the ultimate goal is
JennaShi
in
LUPUS UK
3 years ago
Sensory neuropathy panel
Has anyone had the sensory neuropathy panel done? Not sure how different it is from US to UK. For some reason haven’t been tested for the small fiber nerve antibodies but have been tested for others. Since I have normal emg doc said my positive Ganglioside antibodies are cross reactive. Hoping to get
Has anyone had the sensory neuropathy panel done? Not sure how different it is from US to UK. For some reason haven’t been tested for the small fiber nerve antibodies but have been tested for others. Since I have normal emg doc said my positive Ganglioside antibodies are cross reactive. Hoping to get
JennaShi
in
Neuropathy Support
3 years ago
Follow up and long protacol
hi everyone We have had our follow up with our consultant today about going forward with our 4th cycle and he is going to be putting me on a long protocol this time along with meriofert instead of the Gonal F, short. Has anyone been familiar and have had much success with this type of protocol. He
hi everyone We have had our follow up with our consultant today about going forward with our 4th cycle and he is going to be putting me on a long protocol this time along with meriofert instead of the Gonal F, short. Has anyone been familiar and have had much success with this type of protocol. He
Elizabeth30
in
Fertility Network UK
3 years ago
Best place to buy IVF medication - Gonal F
Hi ladies, I am due to start my ivf cycle in mid May and have been given my prescription for all my medication. I want to shop around as the cost of Gonal F is very eye watering have checked with Boots and Clinic and all have quoted above £1k is this the normal price? I have been prescribed 150 for
Hi ladies, I am due to start my ivf cycle in mid May and have been given my prescription for all my medication. I want to shop around as the cost of Gonal F is very eye watering have checked with Boots and Clinic and all have quoted above £1k is this the normal price? I have been prescribed 150 for
2020F
in
Fertility Network UK
3 years ago
B12 deficiency and neuropathy
Hi, I'm a retired psychotherapist and was diagnosed with diabetes type 2 twenty two years ago. I'm concerned about the side effects of metformin especially since it affects B12 absorption which has led to my neuropathy. I now have balance issues which I believe is down to my nerve damage in both legs
Hi, I'm a retired psychotherapist and was diagnosed with diabetes type 2 twenty two years ago. I'm concerned about the side effects of metformin especially since it affects B12 absorption which has led to my neuropathy. I now have balance issues which I believe is down to my nerve damage in both legs
Pleaforsanity
in
Pernicious Anaemia Society
3 years ago
Piles 😖😳
Hello 👋 all Always using the ‘P’ word is a bit embarrassing, but having not really suffered since I gave birth to my son 21 years ago, a few days ago they’ve returned 😖 I have been diagnosed with IBS, but weirdly enough I’m going to the loo fine, not constipated 🤷♀️ so wondering why I have them.
Hello 👋 all Always using the ‘P’ word is a bit embarrassing, but having not really suffered since I gave birth to my son 21 years ago, a few days ago they’ve returned 😖 I have been diagnosed with IBS, but weirdly enough I’m going to the loo fine, not constipated 🤷♀️ so wondering why I have them.
Chockyuk
in
IBS Network
3 years ago
Back pain from Firmagon?
Hello! My father has gotten terrible back pain, to the point that he is almost not getting out of bed. He says that it is worse when he rises, but has gotten gradually worse over the last four weeks. Of course we are going to do scans to see it is has anything to do with the cancer, but I also wondered
Hello! My father has gotten terrible back pain, to the point that he is almost not getting out of bed. He says that it is worse when he rises, but has gotten gradually worse over the last four weeks. Of course we are going to do scans to see it is has anything to do with the cancer, but I also wondered
TheTopBanana
in
Advanced Prostate Cancer
3 years ago
Diabetic neuropathy
I have type 2 diabetes for thirty years but was put on metformin an year ago. I have no pain in legs etc but have sensitive to touch pain in chest muscles. Flashing pain comes and goes every few minutes. I am on 150mg pregabalin twice a day with not much difference. Any tips to reduce pain or cure..
I have type 2 diabetes for thirty years but was put on metformin an year ago. I have no pain in legs etc but have sensitive to touch pain in chest muscles. Flashing pain comes and goes every few minutes. I am on 150mg pregabalin twice a day with not much difference. Any tips to reduce pain or cure..
Ayurvij
in
AF Association
3 years ago
1
...
50
51
52
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
707 results
Fibromyalgia Action UK
322 results
Pernicious Anaemia Society
267 results
View top 10 communities
Sort by
Most Relevant
Newest